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Choking?

baby choking gluten-free

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5 replies to this topic

#1 momma bee

 
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Posted 07 April 2013 - 06:29 PM

Hi everyone,  I am new to this forum.  My daughter is 17 months old and has been dignosed celiac from a scope Feb 14/2013.  She has been gluten free since the date that we found out.  She seems to be doing much better in many ways but she is persistently choking on foods- soft foods, crunchy foods, purees, all sorts of foods.  Does anyone else have a child/baby that chokes frequently?  Does anyone know if choking can be associated with celiac in any way?  They initially thought she had esophageal eosinphila (and scoping for that they suprisingly found celiac).  She did not have evidence of esophageal eosinophila so I am perplexed if there is anything else that could be making her choke. Hard to figure all this out so just wanting to see if anyone else has ideas?


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#2 tarnalberry

 
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Posted 07 April 2013 - 08:21 PM

Sometimes it's an oral motor issue that causes increased gagging.  And you should verify if she is choking (no noises, no breath, needs help to clear her airway) or gagging (making coughing noises, spits food back out herself).  If it's gagging, I wouldn't worry a lot, but would ask about an eval by an occupational therapist.


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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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Bellevue, WA

#3 stanleymonkey

 
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Posted 08 April 2013 - 05:53 PM

Does she snore as well? My youngest started gagging and choking which was surprising as at 11 months she was eating spare ribs with 3 teeth, then at about 18 months had to go back on baby food. She is getting her adenoids checked on Wednesday. I second an occupational therapist, our ped went that path first, they were helpful, there was no issue, but they still gave suggestions on how to deal with the gagging
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#4 momma bee

 
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Posted 08 April 2013 - 06:51 PM

Thanks for your responses. Yes it is definitely choking and affecting her breathing. I was wondering if maybe something oral or motor since doesn't seem to be structural. But I think I will advocate for a swallow study perhaps. Can't be "normal" when it is getting so much worse can it?

She does snore and has sleep apnea and actually had her adenoids removed the same day of the scope (so just in February). We have seen some improvement with snoring and apnea but not a significant improvement and they think sleep apnea remains so we are awaiting reassessment for that and they think perhaps cpap machine for sleep apnea but we will see in may they said. Good luck with your adenoid and tonsil check, if need be the surgery itself really isn't that bad for the wee ones. But good luck with the appointment! Maybe the choking is all related tonsils?

So much complicated information and figuring it all out! Thanks for you answers! Have to remind myself many things she has won't be related to the celiac but hard to know for sure when it is so new!
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#5 mommida

 
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Posted 09 April 2013 - 07:20 AM

Just my 2 cents about EE.  There is a seasonal allergy connection for some patients.  If the seasonal allergen was not present for the 12 days of activation of eosinophils ~ testing would not have been accurate.  Normal looking tissue needs to be biospied, because the cells can be embedded  in the "normal looking"  tissue.


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#6 momma bee

 
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Posted 09 April 2013 - 08:03 PM

Thanks! I didn't know there was a seasonal component. I was just thinking food/home environment etc... I am still wondering about EE a bit as it seems better some days then others. I am still really curious about oral motor issues as well but her speech is pretty advanced which I figured meant her oral skills would likely be pretty good? Maybe will ask ped about both potentials. Thanks!
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