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Sailing Along Then....wham!
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12 posts in this topic

I have had several good day where I have felt pretty good lately.  I went out hiking and felt strong and good. Then something happened.  I didn't add anything new to eat.  I've been doing the same thing that I always do as far as food is concerned.  I got D and mucus out of nowhere.  Sometimes I feel like since celiac is an autoimmune disease, sometimes I just feel like I get a flare up out of no where.  I am pretty certain that I haven't had any gluten.  Does this happen to anyone else..good days followed by a few not so good ones out of the blue?

I know that with other autoimmune diseases, they can flare up at any given time from stress or whatever.

Thanks 

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Have you considered that you might have picked up a stomach bug somewhere?

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I don't think it's a bug b/c this happens too often for it to be one.

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I am right there with you, yesterday and today . . . my gut and my low back are hurting so badly I just want to die.  The two things I ingested that i'm now questioning are a bowl of chili I thawed and ate on Saturday night (which I made (checking all ingredients for gluten-free), ate a bowl without incident, and froze) and some Gas-x taken yesterday around lunch.  I definitely think I've been glutened - this is the first time since I was Dx'd and started gluten-free diet.  This is as bad or worse than when I was not eating gluten-free!  What do you do when you hurt this bad to get some relief???

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All that you can really do it wait it out, drink water and hot mint tea.  The mint tea helps to get the gas out.  I feel the exact same way that you do.  I have been eating Hershey's kisses and I think I may have eaten too many and it's the lactose bothering me.  Who knows, with celiac sometimes you have no idea.  Hope you feel better.

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Last I heard the Gas-X chewable tablets were not gluten free; the gelcaps are.

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I can definitly relate to what your talking about and it is very frustrating. It happened to me this morning. I had a cup of coffee like i always do with nothing different in it and within 30 min. i was all bloated with an aching in my stomach. I wish this was easier to deal with.

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Flares happen to me.

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It took me at least 9 months to have any sort of predictable bathroom themes. And another six to notice it stopped at 9. And another 6 to not panic when things would change from time to time.

I'm not saying to discount what you notice at all - but it did take me a while. And if you get sick at any point in there ...things can just get weird. Sometimes you'll recover quickly, next time it will take forever.

It's frustrating.

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Thanks everyone.  It's good to know that I am not the only one that experiences these out of the blue flares.  I can be feeling really good with no stomach issues and then a few days later while eating the same things, I get digestive issues.  I guess it comes with the territory of having a bowel disease.  

Prickly, that is great advice.  I really need to quit paying attention and just get what I get.  You are also right in that it is frustrating b/c just when you think you have your celiac all under control, something happens and it's hard not to get caught up in it.

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I think that it can come from a lot of things.  A bug which you mistake for gluten, someone leaving a crumb somewhere for you to pick up accidentally, going through the flour isle at the store right after a spill has been cleaned up so that you can't tell that there is still flour in the air, and inconsistent contamination.  Sometimes I have a food that I can eat much of the time, but some boxes of it will get me.  Last time I bought 4 boxes of buckwheat and sorted through them, I found a wheat berry in 3 of the 4 boxes.  I could have eaten it for breakfast sometimes and been fine, and then when I got the batch with the wheat berry, I would have gotten sick and would not have know why.  That's why I buy my grains whole and sort them.

 

I hope you feel better soon.

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Feel Better!  I say this a lot, but I learn more all the time.

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