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Having Symptoms Again And Not Sure Why.
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After becoming terribly ill for months a year ago, I went strictly gluten free. I started feeling better right away and a year later I was back to feeling great and in excellent shape. Two and a half weeks ago I traveled for business and had to try to stay gluten free eating out. In the middle of the trip I became really sick. Since then I have been feeling better but on multiple occasions I have had symptoms and I am struggling to eat even though I am back to following my diet.

I am hoping that someone can tell me if they have ever experienced something similar. I hate that this is making me question if I have some issue other than gluten, especially with the mental symptoms I start to second guess what I was so sure of just three weeks ago.

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It's normal to struggle from time to time when recovering from a glutening. I've had it bother me anywhere from a month to a day. I don't know why it varies - perhaps the volume consumed? Perhaps one time it set off an AI reaction?

Digestive enzymes with meals, probiotics, antacids, whatever it takes. Working out/exercise helps me (sort of like sweating out a hangover?).

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Could be explained as being cross contaminated some where.

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It could just be ongoing recovery from your glutening.  It's not  a 5 minute process.  And or you could be re-glutening yourself from time to time by eating something that is cross contaminated.   When your gut is raw, irritated, and inflamed it is not surprising if it doesn't digest food well.  It would probably help to stick to whole foods and a simple diet for a while and no eating out.  You may need to take your food to work rather than eating out.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

What's For Breakfast Today?
http://www.celiac.com/gluten-free/topic/81858-whats-for-breakfast-today/
 

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I find that when I have been recently glutened, I am more sensitive to trace gluten.  I think that it would help to go on a super gluten free diet of mainly whole foods until you heal again, and then you would probably be able to go back to that old diet.  Some of us seem to get sensitive to lower levels as time goes on, but in your case it seems more like you just have to reheal new damage.

 

Gluten's effect on my brain makes me question everything too.  I hope that you feel better soon.

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Thank you all for your advice and support. This life style change has been a learning process for me as I am sure it is for everyone. My best to you regarding your own health. I hope to get my condition under control and eventually be able to help others by sharing my experience as you have.

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After becoming terribly ill for months a year ago, I went strictly gluten free. I started feeling better right away and a year later I was back to feeling great and in excellent shape. Two and a half weeks ago I traveled for business and had to try to stay gluten free eating out. In the middle of the trip I became really sick. Since then I have been feeling better but on multiple occasions I have had symptoms and I am struggling to eat even though I am back to following my diet.

I am hoping that someone can tell me if they have ever experienced something similar. I hate that this is making me question if I have some issue other than gluten, especially with the mental symptoms I start to second guess what I was so sure of just three weeks ago.

Sometimes people who are gluten sensitive or have celiac disease don't know that they also have sulfite sensitivities. It's in so many of the gluten free prepackaged baking products and is in non-organic tapioca starch, potato starch and cornstarch. Because it's used in the processing at the beginning companies don't have to make that know to us because it's only a certain percentage of redidue left in the product so as to be considered negligible. To many of us it's not negligible as I can vouch for, and it can cause many of the same symptoms as gluten intolerance. I wish this was made known by the celiac and gluten intolerance web sites.

ljay

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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