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Gluten Withdrawal-Does Everyone Go Through It?


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14 replies to this topic

#1 snowflake

 
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Posted 09 April 2013 - 08:13 PM

Hello, I started a gluten free diet 2 days ago. Yesterday I felt alright except for feeling like I had low blood sugar on and off. I think that I didn't eat enough protein in the morning. Today was completely miserable. I have been exhausted beyond reason, I can't stay awake, but when I try to sleep I wake up every few minutes. I have had brain fog to the point of basically unable to function beyond going to the bathroom and eating food I prepared yesterday. I've also had a bad headache this evening. I took a Lortab for the headache and the fog began to dissapte after about 10-15 minutes. I still don't feel well, but I'm a heck of a lot better than I was awhile ago.
 

I did some research and found out about gluten withdrawal (wish I had known that earlier so I would have been prepared). I also came across some articles about gluten and the fact that they contain a small amount of opiates. What I'm wondering is if there is a link between the withdrawals and sensitivity or if people who aren't gluten intolerant also experience withdrawals. Basically, I don't mind going through the withdrawals if I will feel better at the end of it. But I'm going to be seriously upset if I go through this for weeks and it turns out I'm not gluten intolerant. I would also appreciate any tips for dealing with the withdrawal symptoms that anyone would like to share.

 

A brief synopsis of my health in case that is helpful at all:

 

I have a long  list of health problems including Crohn's Disease(2 bowel resections-missing 18 inches of small intestine), adreanal fatigue, RLS, various vitamin deficiencies,  possible Fibro or CFS, and some other various issues that I can't remember at the moment. :huh: I did test positive for something (I think it was the genetic marker...I'll have to look it up) when I did the saliva testing for my adrenals, but I tested negative for some other test my gastro. doctor did (I know it was a blood test).


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#2 mushroom

 
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Posted 09 April 2013 - 08:49 PM

To the best of my knowledge, no one goes through gluten withdrawal unless they have a sensitivity to it (or I could be wrong since so few people eat truly Paleo and thus gluten free voluntarily, or at least we don't hear whether they suffer it).  It is possible to test negative for celiac via blood tests and yet still be gluten sensitive.


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#3 shadowicewolf

 
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Posted 09 April 2013 - 09:13 PM

Ah, I went through it. Mood swings, the whole deal.


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#4 GottaSki

 
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Posted 09 April 2013 - 09:30 PM

Yes...well everyone in my family did.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 1desperateladysaved

 
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Posted 10 April 2013 - 02:44 AM

Hi Snowflake,

 

Yes, I did withdrawal I dealt mostly with foggy brain almost to dizziness.  I had extra bloating and fatigue.  Meanwhile it seemed like people expected me to feel better right away. 

 

One day when it was particularly bad, I did some aroma therapy.  I diffused peppermint essential oil in the room.  I felt better. If you don't have a diffuser, you can just put a couple of drops on your front neckline.  Peppermint candy could work IF it were real peppermint.  I had forgotten about this, until my functional medicine nurse asked if I ever tried aromatherapy for my symptoms.  She approved of peppermint, for this purpose so much, she wanted me to work there.  I didn't have time for the daily 6 hour drive, though. 

 

Lastly, take time if you have it, to rest..  It sounds like you can have some down time?  It could be a while, but you are on the right track to feel better.  Consider this also, I usually feel my absolute worst, just before there is some improvement.  I hope improvement will happen for you!

 

I mostly am beyond my fog, but having 30 years of trouble, I had some pretty complicated reactions to other food and things to deal with.

 

Get Well, Snowflake  ***** (These are my flowers to get you well)  Perhaps they are red Mint flowers?

Diana


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#6 cavernio

 
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Posted 10 April 2013 - 09:01 AM

I am a100% dx celiac and I can say I didn't notice a gluten withdrawal. I wasn't eating only fresh food when I began though, I went out and bought all those gluten-free flours and pasta and a few baked things, so if I'm one of those who is very sensitive to gluten it probably would have been more of a tapering.


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diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#7 Gemini

 
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Posted 10 April 2013 - 09:17 AM

I never had one moment of any gluten withdrawal because I was so ill at the time I was diagnosed, I was happy to go gluten-free and get better.  I also had just about every symptom and complication you can have with Celiac so if I did go through any withdrawal, it was probably masked by the fact I felt so bad, in general, from eating wheat.  Many times, when changing your diet, people can go through mood swings and feeling lousy because your mind wants the offending food and you're not complying.  Why wouldn't the same symptoms happen with food that you get with alcohol or drugs?  Sugar is one of the biggest withdrawal foods out there so I'm sure wheat fits in somewhere.  After a couple of weeks, things get vastly better with coping.


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#8 nvsmom

 
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Posted 11 April 2013 - 06:42 AM

I too had a withdrawl. Yuck. For me, it lasted about 10 days. I was cranky, tired, cranky, had a huge migraine, and cranky... I'm lucky my family didn't disown me.  ;)

 

Hang in there and be nice to yourself for a week or two


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#9 love2travel

 
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Posted 13 April 2013 - 10:06 AM

My withdrawal lasted about two weeks.  When you think about it, two weeks in one's lifetime really is a blip.  You will feel better soon.  ;)

 

My husband went mostly gluten free with me.  When I say mostly I mean in our home he is gluten free.  He does have pizza or whatever at work from time to time.  He had no withdrawal at all but as far as we know he does not have celiac (was tested). 


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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#10 daisy buchanan

 
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Posted 13 April 2013 - 01:02 PM

I was wondering about this too. 


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#11 peanutbutter&jelly

 
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Posted 17 April 2013 - 07:03 PM

Really glad I discovered this forum before my appointment next week for my gastroscopy confirmation. Preparing my poor man and family to cop all kinds of lovely from me. Can't wait to get past that stage and be happily gluten-free.


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#12 rene83

 
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Posted 09 May 2013 - 08:05 AM

Seeing this has made me feel so much better. I am on day 7 of being gluten free after a surprise celiac diagnosis :rolleyes: . Ever since I have had headaches, I am so emotional I wish I could step outside my body and shake some sense into myself (seriously I cried over bacon the other day, marshmallows yesterday :mellow:  <_<  :)  :wub:  :angry:  :blink:  :rolleyes: :mellow:  :)  :mellow:  :)  :angry:  ), and I have never been so exhausted in my life. I am shocked I am functioning at a level where I can breathe on my own!! Yikes! I am also getting the fun runs now :wacko: . I wish this withdrawal was over already I am not a happy camper. :(


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#13 Celiac Mindwarp

 
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Posted 09 May 2013 - 08:57 AM

Hey rene83
I hope things start to improve for you soon, most people seem to do so fairly quickly.

I never quite worked out if I had gluten withdrawal, or I was still wrecked after my gluten challenge, but my symptoms were very similar to yours, and I was just a bit useless for a couple of weeks or so. I stood in tears in a health foods store because I didn't know what to eat! There is often a mental as well as physical response.

Come here if you need a rant, and let us know how it goes :)
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#14 Deaminated Marcus

 
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Posted 09 May 2013 - 06:21 PM

When i went gluten free over 2 years ago, I went into hyper mode at the start.

I don't remember how long it lasted. It must have been over a month.

I could barely sleep and I was bouncing off the walls with energy and I was rambling on full speed when I spoke.

 

Thanks Mushroom. That is encouraging as I still don't have a diagnosis.


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#15 rene83

 
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Posted 21 May 2013 - 01:43 PM

Hey rene83
I hope things start to improve for you soon, most people seem to do so fairly quickly.

I never quite worked out if I had gluten withdrawal, or I was still wrecked after my gluten challenge, but my symptoms were very similar to yours, and I was just a bit useless for a couple of weeks or so. I stood in tears in a health foods store because I didn't know what to eat! There is often a mental as well as physical response.

Come here if you need a rant, and let us know how it goes :)

Thanks, I may be taking you up on that soon. I am almost 3 weeks in (19 days to be exact) and I have never felt worse in my life :( 


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