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How Much "cheating" Is Allowed ?


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43 replies to this topic

#1 Tamber

 
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Posted 10 April 2013 - 06:17 AM

I'm new to this forum and newly diagnosed. I have NO digestive symptoms but understand that gluten still has a negative impact on my body - lower bone density, elevated D, etc.

Since those who are very gluten sensitive still eat out and sometimes accidentally ingest gluten, how about people like me ? Does anyone out there intentionally cheat ? How many times per month is it safe enough to get a gluten fix ?
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#2 shadowicewolf

 
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Posted 10 April 2013 - 06:27 AM

For those with celiac, none. Damage is damage regardless of if you have symptoms or not.

 

That being said, I cheated three times... :ph34r: Never again.


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#3 kareng

 
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Posted 10 April 2013 - 06:29 AM

You are about to be bombarded!  You might want to duck behind a piece of furniture.  :lol:

 

No on purpose cheating!  You may accidentally get a little gluten at times but you should never do it on purpose.  Would you eat a little rat posion?  Or cat poop?

 

http://www.curecelia...guide/treatment

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms"

 

http://bidmc.org/Cen...Diet.aspx#cheat

 

Can I cheat on my gluten-free diet?

Unfortunately, the answer to this question is no. Even when you are sticking to a gluten-free diet, it is impossible to eat gluten-free 100% of the time. This is because there is always some level of contamination of foods, whether it is when the food is processed, when dining out, or in your own kitchen at home. Intentional or unintentional ingestion of gluten will prevent your villi from healing well. Therefore, it is very important to follow the gluten-free diet as carefully as you can to benefit from it.


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#4 Lisa

 
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Posted 10 April 2013 - 06:33 AM

I suppose I get enough gluten through unaware cross contamination.  Adding to that, just doesn't make sence. ;)


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#5 tarnalberry

 
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Posted 10 April 2013 - 06:46 AM

None. If the autoantibodies from gluten stick around for two weeks (there is a semi-self-sustaining reaction in the gut), and it takes two weeks to heal from it, one instance of contamination requires a month to get back to square one.

But we don't know that full body (not just the intestines) healing happens that quickly.

And it's likely that minor contamination will happen once in a while.

So, the answer is no intentional cheating. Gluten is something of a poison to us, and its not like us ok to ingest poison even if its only every few weeks.
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#6 Tamber

 
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Posted 10 April 2013 - 06:58 AM

OKAY, OKAY, I YIELD!!!!! ..... but I'm whispering to myself, if mild diabetics can cheat, why can't I ?
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#7 pricklypear1971

 
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Posted 10 April 2013 - 07:02 AM

Autoimmune disease, if you haven't dealt with it prior to a Celiac dx, can be difficult to get your head around.

There are two aspects to Celiac, IMO. The obvious food related impact (what you eat, impact of eating what you shouldn't); then there's the autoimmune response....which means gluten is damaging your body: potentially all over - all tissues, all systems, even your brain.

So, if you want to lessen the wear and tear and potential life-limiting damage you must stay gluten-free. All the time. Gluten, for a celiac, can be an invisible and silent poison.

And I don't know if this other bit is good or bad; however, you probably won't remain asymptomatic after ingesting gluten. Happens to alot of us. When you get off gluten for a while your body screams loudly when you ingest it (accidentally or on purpose). So, I don't suggest purposely eating it (once you get off it) when you don't have the latitude to sit in the bathroom/bed and cry for 24 hours.
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#8 kareng

 
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Posted 10 April 2013 - 07:18 AM

OKAY, OKAY, I YIELD!!!!! ..... but I'm whispering to myself, if mild diabetics can cheat, why can't I ?

 

 

Its not the same thing.  A diabetic can have carbs or sugar if they adjust what they eat and thier insulin.  We can't adjust anything to make the body not attack our intestines from the presence of gluten. 

 

You might want to think of it more like rat poison - a small amount probably won't kill you.  Might make you feel sick for a day or 2.  Do you choose to eat rat poison?

 

Also, you may not heal if you keep eating gluten once a week or once a month.  It can take months to get the body to stop making the antibodies and then heal the intestines.  If your intestines are damaged, even if you don't feel them, you are not able to absorb the nutrients you need.  This leads to many things like bone loss, teeth/mouth issues, nerve damage/ataxia, a rare cancer or two, infertility (looks like new studies show this is in male & females), etc.

 

You don't seem to want to take it seriously, but I hope you will for your health.


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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#9 Tamber

 
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Posted 10 April 2013 - 07:37 AM

You don't seem to want to take it seriously, but I hope you will for your health.

 

 

Of course I'll take it serioulsy but my new reality is less than 24 hours old so I stiil have to wrap my head around it. After all, even for loss of gluten, 2 of the natural stages are denial and bargaining ;)  


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#10 Chiana

 
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Posted 10 April 2013 - 07:41 AM

Imagine for a minute that you have the flu.  There are millions of little viruses in your body, all smaller than anything you can imagine.  Your immune system systematically finds and wipes them out.  It can locate a single virus or organism in your body and irradicate it.  Now, think about this by logical extension: you are turning the most powerful part of your body on your own tissues, intentionally.  Even if you don't feel it happening, you are causing terrible amounts of damage and not allowing them to heal. 

 

My uncle has MS.  He has been in a wheel-chair for the past 30 years, from a single MS event.  He got tired while at work, sat down, and never stood up again.  His immune system did that to him, without pain or warning.  Auto-immune diseases are not something to screw with.  We have people on here with the celiac cancer, people with failing kidneys, people who lost all their hair. 

 

One of my coworkers was a Celiac who cheated from time to time.  He was 45 and looked 65.  I say was, because he died last year.  This stuff can kill you.


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#11 ruthie_ray

 
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Posted 10 April 2013 - 08:10 AM

I'm new to this forum and newly diagnosed. I have NO digestive symptoms but understand that gluten still has a negative impact on my body - lower bone density, elevated D, etc.

Since those who are very gluten sensitive still eat out and sometimes accidentally ingest gluten, how about people like me ? Does anyone out there intentionally cheat ? How many times per month is it safe enough to get a gluten fix ?

 

 

Hi Tamber,

I've only been diagnosed for about 5 weeks.  I had mild digestive symptoms, almost not enough to consider the agony of removing gluten from my diet.  I am a bread lover.  I've been gluten free for about 5 weeks, accidentially ingesting gluten once about 2 weeks ago.  Having been off of gluten when I ingested it, I noticed a difference within an hour of eating.  My stomach was cramping and bloated, etc.  Although my digestive symptoms were not major, I had a miriad of other minor health issues that improved, such as anemia, excema, migranes, etc.  You may find that although you do not have any major symptoms, you still may not be aware of some minor issues that could be resolved and improve the quality of your life.  It's not a matter of "if" you have major problems if left untreated, but "when".  If you continue to eat gluten, even with only minor or no symptoms and you are a diagnosed Celiac patient, then you will continue to damage your intestines, have decreased nutrient absorbtion and lower your immune system.  You will be at greater risk for cancer, and other autoimmune related complications.  My suggestion would be to learn to live with it the best you can and learn how to eat out without cheating.  My family and I eat out more than 1xweek.  We go to places where I know I can eat something safe.  I read their websites, I call the specific location, or I ask to speak to someone who is knowledgable about the menu.  Once you have 4 or 5 places you are comfortable with, you won't feel so deprived.  For quick places, Chic-fil-a as a dedicated french fryer for gluten free fries, grilled chicken and a salad (no croutons).   Five Guys offers a gluten free burger that they wrap in lettuce and also has a decicated french fryer. I love 5 Guys because for no extra $, they will grill mushrooms, onions, etc. w/your burger and wrap it all in lettuce. My local Wendy's has some Gluten free options too.  Check with each local spot you like for what they have.  My local Mexican Food joint uses gluten free corn tortillas.  I've confirmed with them that their carnitas and beans are also Gluten free.  I get the carnitas meal twice a month on corn tortillas, with beans and cheese.  (I skip the rice, since they said they cannot confirm it is gluten free and have them give me double beans or a side salad instead).  I can go to a steak house and get filet, baked potato and salad (all gluten free), just watch for certain dressings, all croutons and some other extras that could blow it.  If in doubt, I do not eat it.  Think of the items you already eat, like potatoes and corn that are naturally gluten free and get creative with those, rather than just cutting out gluten.  I have gotten crazy with corn tortillas and potatoes, making wraps, stuffed potatoes, etc.  I try not to complicate dinner too.  I made fried chicken with rice flour this week and it was wonderful.  Easy swap and I did not feel deprived.  Good Luck.  You will have to take it seriously and take the plunge without cheating in order to avoid more serious complications in the future. 

I'm new to this forum and newly diagnosed. I have NO digestive symptoms but understand that gluten still has a negative impact on my body - lower bone density, elevated D, etc.

Since those who are very gluten sensitive still eat out and sometimes accidentally ingest gluten, how about people like me ? Does anyone out there intentionally cheat ? How many times per month is it safe enough to get a gluten fix ?


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#12 1desperateladysaved

 
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Posted 10 April 2013 - 08:27 AM

I hope if you stay tempted to cheat that your body will give you some loud protests.  I mean it is for your own good.  I am glad for my body letting me know when I accidentally blow it. 

 

I just want to say too that it is understandable to want gluten back.  It seems so sudden and final to you, perhaps.  Many of us had grief at first.  Hopefully you will discover that you really do feel better gluten free.  You need some time, though.


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#13 snowflake

 
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Posted 10 April 2013 - 08:28 AM

Of course I'll take it serioulsy but my new reality is less than 24 hours old so I stiil have to wrap my head around it. After all, even for loss of gluten, 2 of the natural stages are denial and bargaining ;)  

Hugs to you! I'm new to this forum, but not to auto-immune problems. I'm not sure how old you are, but if I could go back in time and know the things I know now....I'm pretty sure my overall health would be much much better. As it is now, I have to allocate my spoons (if you don't know what this is, read The Spoon Theory here:  http://www.butyoudon...e-spoon-theory/ . I've just recently started a gluten free diet, and I truly hope that it will make me feel better. Will I miss eating certain foods? Yep, but if I can feel anything approaching normal, it is worth it and more. I have 2 daughters and I know I'm the best mom I can be, but I also know that they are missing out on things because of my health. My poor health is a huge factor in the dissentigration of my marriage. So if I could go back in time and tell my younger self...do this, try that, be aware of these things, this will happen if you don't...it makes me want to cry just thinking about it. So take a bit of time to adjust to your new reality...do alot of research and become informed. You are your own best advocate! Scream and rail at the universe (if you aren't there yet, you will be) and then find acceptance. Do what you need to do to keep further damage from happening to your body. Consider it a gift from God that you are given this chance to prevent all the damage you could have done unknowingly. You will have a much happier life if you are healthy. There will be so many things you won't have to miss out on!


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#14 foam

 
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Posted 10 April 2013 - 08:35 AM

Depends how sick you want to get later in life and which auto immune system you want to live with....during your by then shortened life span  :D. That's the correct answer to your question. I.e if your smart you'll never touch it again and be thankful you got it in time. Once your body starts destroying itself it's no joke any more and you'll see on this forum a VERY abnormal percentage of people have auto immune conditions. Play with gluten as a known celiac and you'll get messed up big time eventually... but you'll never know which grain of wheat is one too many so any is too many.

 

I've never drank or smoked or done anything unhealthy in my life other than eat bread... and I've got the Kidneys of a 70 year old (I'm 40) I've got a lymph node the size of a fist at times in my neck. I didn't cheat on the gluten once I knew I just didn't know for a long time, you got lucky. Trust me on this, don't cheat.


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#15 Celiac Mindwarp

 
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Posted 10 April 2013 - 08:50 AM

I am guessing you got the message, so I won't add to the advice above :)

Welcome to the board, sorry you need to be here. Hopefully you will find improvements on the gluten-free diet. It does take a while to get your head round it, but there are plenty of folks here who have traveled the road and are happy to help. Look at the 101 pinned thread for starters, and ask lots of questions.

We are here for rants too :). Some people get gluten withdrawal, it will pass. Come and talk when your head wants to explode from reading labels...

Good luck
Mw
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image




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