Does this match with anyone else’s experience?
Until I went gluten-free two years ago (something that has transformed my health), I’d been chronically under par for nearly 15 years with recurring swollen neck glands, sore throat, conjunctivitis and exhaustion. I thought this was an immunological problem caused by having toxoplasmosis shortly followed glandular fever in my late 20s.
The crisis point (which led to the gluten-free diet) came after the usual symptoms appeared towards the end of holiday in France where I had been eating bread at every meal, which was very unusual for me. I developed an odd abdominal pain, which over the next few weeks got to so bad I could hardly walk and I ended up in hospital on morphine. I recovered by not eating. Over the following months, I relapsed every time I got my appetite back. During that time, my weight dropped drastically and I developed a bend in my spine, I guess from malabsorption. Doctors were confused. I cut out gluten from sheer desperation in case it helped. By the time an endoscopy and biopsy appointment came through, I was perfectly well (and had been pretty much gluten free for over the 6 weeks necessary). There was visual erosion of the duodenal folds but the biopsy was normal.
Like many people who are not 'officially' coeliac I struggle at times to not have a proper diagnosis but feel so healthy now and the ill- effects when I do get accidently 'glutened' are so bad that I don't feel there is any doubt about avoiding gluten.