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What A Difference A Year (Well Four Years) Makes!
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38 posts in this topic

Mendocino coast in CA is pretty kewl.  But I don't know anybody there :(

 

 

but, we've got a resident Cali scout on our team  :)

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Maybe the brain fog just lifted this morning?

 

" You're out of the woods

  You're out of the dark 

 You're out of the night. 

 Step into the sun,

step into the light ...."

 

:)

 

 

Nuttin' like that fog lifting for good.

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I'm going into the light....

 

Oh,  I will need to strap some parasols onto my chair as I am terrified of the sun.  And, no offense Irish, I would like California since the humidity is lower, just saying...

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None taken, my sweet. But if you come to my house, I'll keep you cool. I promise. 

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I will be on your doorstep next February and I can't wait..

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I do not do humidity. Like... ever. There is simply no excuse for water in the air. Utah is beautiful year round. Plus we have skiing. Lots of people say we have the best snow on earth, better than CO anyway, all they get is our leftovers. :lol: I don't do snow either, but I can keep the cocoa hot for the snow bunnies all winter long.

 

Plus we have Moab and Arches National Park. Tons of forests and canyons and that sort of thing too. And cities for us civilized folk. The kind with In N Out.

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I love Arches - one of my faves!

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I will be on your doorstep next February and I can't wait..

 

Oh goody, my first visitor! I will hold you to that, Missy.

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I do not do humidity. Like... ever. There is simply no excuse for water in the air. 

 Nonsense!  it gives curl to your hair and makes your skin all dewey.

 

(but really, this is why they invented "central air")

 

hey, all I know is, I feel GREAT down there.

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 Nonsense!  it gives curl to your hair and makes your skin all dewey.

 

Wrong!  It gives kinks to your hair and frizzy ends and makes your feets swell :ph34r:

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Wrong!  It gives kinks to your hair and frizzy ends and makes your feets swell :ph34r:

 

I must be "different". :ph34r: my "half-Mediterranean" roots and all?? Neither my Dad nor I felt this way in the humidity.

 

NOTE: We are coming NORTH in July and August to see the ponies at Saratoga and visit family & friends

in Mass, NH and Cape Cod.  

Edited by IrishHeart
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Wrong!  It gives kinks to your hair and frizzy ends and makes your feets swell :ph34r:

 

BINGO! I think that some of us are just different. I couldn't stand the weather last time I visited PA and it was only in the 80s most days. It was all I could to to drag myself from bed to the shower to a chair to sweat in all day.

 

I hated the humidity growing up, and I hate it more now. To be fair though, my hair lost all its curl when I came to Utah. :( Straight as a board now, and totally tragic.

 

But hey, if it doesn't make you hate life I say enjoy it!

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I want to thank everyone who responded to my post i really appreciate all your feedback. I don't know anyone else with celiacs. Alot of the time i feel like people think i am exaggerating about how i don't want any food with gluten around me. Trying to explain that a simple crumb can make me sick. When food gets brought into the house like pizza by my teenage boys makes me cringe. It's just nice to have people that understand and know more about the disease than i do. I can tell you all are going to be invaluable to me and i thank you.:)

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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