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What A Difference A Year (Well Four Years) Makes!


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37 replies to this topic

#16 Gemini

 
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Posted 17 April 2013 - 10:58 AM

You are all inspiring and i thank you for that. I have had MS for 26 years and Celiac for 8mos.. There is so much to learn about gluten. It all can be so overwhelming some days. Having one autoimmune disease was enough for me. No one ever told me that having one autoimmune disease put you at risk for developing more. So thank you for your posts they are all encouraging. Nancy :)

Nancy....you might actually find that gluten is the aggravator of your MS.  It might be that you have had Celiac for years and did not know and ended up triggering for MS because of all the gluten ingestion.  When you are eating food that is activating your immune system and causing inflammation, that is one of the reasons you start to pop with other AI diseases. The immune system does not just stop with your small intestine.  I have 4 AI diseases and they have all gotten a lot better since I went gluten free.  They are still there but the symptoms are far less acute.  My cousin has MS also.  She moved to Florida and I don't have much contact with her but she was always very, very thin, like me, so I suspect she may have Celiac also.

It's not co-incidental that Celiacs often have many other AI problems.


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#17 IrishHeart

 
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Posted 17 April 2013 - 12:29 PM

My friend with MS adopted a grain free diet back in 1987 (this was all her "radical" idea back then) when she was DXed.

That woman is in better shape than anyone I know, keeping her MS at bay for 25 years. 

 

Do we both think she was probably a celiac? yup. Inadvertently, she has kept her MS from progressing

that much and I think she's amazing!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#18 mushroom

 
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Posted 17 April 2013 - 04:37 PM

Do we both think she was probably a celiac? yup. Inadvertently, she has kept her MS from progressing

that much and I think she's amazing!

 

I wouldn't exactly say inadvertently ;)   I think I would say she has been instrumental in keeping it from progressing, just as I think that my gluten free has been very instrumental in keeping my PsA at bay.  My rheumy can't believe that I take only an occasional Humira shot (like every six months or so :blink: ) now.  He is totally mystified :P  because "diet has nothing to do with it"


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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#19 IrishHeart

 
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Posted 17 April 2013 - 07:22 PM

Oh, I most definitely think it has helped her directly. :)

 

It's my friend who says "inadvertently" because she was not really thinking about the gluten connection at all when

she started this "diet" 25 years ago. She did it, in fact, as part of a diet with OA (over-eaters anonymous) to lose weight

and to control her carbs and sugar intake and in conjunction with her recovery in AA. It worked out so well, she kept at it.

 

She took control of her life through her diet. But you're right, no doctor would have thought it possible.

She sometimes has to do the interferon and some meds , but all in all, she has done amazingly well with symptom management.

 

As we say to each other, neither of us is in the wheelchair some had suggested we would need. (Not yet anyway, touch wood!)


  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#20 GF Lover

 
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Posted 18 April 2013 - 03:58 AM

When I go to "The Chair" I'm going straight for the Hover Round thing.  Beef up the motor a bit, add some side bags and strap a cooler in back to store my gluten free snackies.

 

:) Colleen 


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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

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#21 GF Lover

 
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Posted 18 April 2013 - 04:01 AM

OMG!  I just realized I am over the 1 year mark being gluten free.!  

 

Maybe the brain fog just lifted this morning?


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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

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#22 GottaSki

 
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Posted 18 April 2013 - 05:58 AM

:) Happy Belated First Birthday Colleen :)

 

I'm too stubborn for the stinking chair  :unsure:

-- at least I was at age 45 and 47 :huh:

-- might be fun in a few years :P

 

-- we can race them to the dinning/party room for L2T's scrumptious dinners ;)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#23 Adalaide

 
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Posted 18 April 2013 - 08:56 AM

:) Happy Belated First Birthday Colleen :)

 

I'm too stubborn for the stinking chair  :unsure:

-- at least I was at age 45 and 47 :huh:

-- might be fun in a few years :P

 

-- we can race them to the dinning/party room for L2T's scrumptious dinners ;)

 

Yes, happy birthday!

 

And I think we should all get chairs. We can mod them and have a little race track next to the walking path so we don't mow anyone down on our way to eat. First one there has to set the table, last one has to clear.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#24 IrishHeart

 
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Posted 18 April 2013 - 09:14 AM

.....and mine will have pink bike streamers and an old fashioned horn that goes "ARUGala, ARUGala!"' B) that's how I wanna roll.

 

 

gotta say it....the development where I am going to live in FLORIDA has the flat, level ground we need to do this sort of racing around on wheels....just sayin...but if'n we have to go to the cooler temps come Spring and summer for our peeps with heat intolerance and allergies, we'd better start mapping out some spots.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#25 mushroom

 
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Posted 18 April 2013 - 01:12 PM

..but if'n we have to go to the cooler temps come Spring and summer for our peeps with heat intolerance and allergies, we'd better start mapping out some spots.

 

Mendocino coast in CA is pretty kewl.  But I don't know anybody there :(


  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#26 IrishHeart

 
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Posted 18 April 2013 - 01:28 PM

Mendocino coast in CA is pretty kewl.  But I don't know anybody there :(

 

 

but, we've got a resident Cali scout on our team  :)


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#27 IrishHeart

 
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Posted 18 April 2013 - 01:35 PM

Maybe the brain fog just lifted this morning?

 

" You're out of the woods

  You're out of the dark 

 You're out of the night. 

 Step into the sun,

step into the light ...."

 

:)

 

 

Nuttin' like that fog lifting for good.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#28 GF Lover

 
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Posted 18 April 2013 - 02:56 PM

I'm going into the light....

 

Oh,  I will need to strap some parasols onto my chair as I am terrified of the sun.  And, no offense Irish, I would like California since the humidity is lower, just saying...


  • 0

HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

turkey-hiding.gif


#29 IrishHeart

 
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Posted 18 April 2013 - 02:58 PM

None taken, my sweet. But if you come to my house, I'll keep you cool. I promise. 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#30 GF Lover

 
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Posted 18 April 2013 - 03:07 PM

I will be on your doorstep next February and I can't wait..


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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

turkey-hiding.gif





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