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Hairdressers Anyone?
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Went to my hairdressers today and when my hair was done, my stylist sprayed it fairly liberally with hairspray (lacquer). As she doesn't normally use much I wasn't prepared and accidentally breathed in quite a bit through my mouth. Within half an hour I had really bad griping pains in my stomach which I still have this evening. I'm suspecting there was wheat or gluten in the finishing spray, as I know everything I've eaten today has been gluten and wheat free.

Has anyone else had any problems in this way. Here in UK Coeliac UK don't seem to think that cosmetics etc are anything to worry about, but I'm beginning to think we're lagging 'behind the times' over here and professionals don't seem to take it as seriously as those of you across the pond. I had a similar reaction a few weeks ago to eye drops which I found out later could cause problems with people sensitive to wheat.

I'm due for another biopsy in around a month, to check my gut is healing, and I'm concerned that I'll still have damage showing up with these couple on knock backs.

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Hi.  I'm not sure whether hair spray would contain gluten, but  nasty fumes yes.  I hate anything unnatural on my hair. I would look much younger if I would color my hair...but I have earned every one of my grey hairs.  And I'm pretty sure that eye drops would not contain gluten.  Just the nature of the product would indicate that.

 

Taking perscribed meds and suppliments can have an interaction.  Recently, a suppliment affected my eyes.  I stopped and back to normal.

 

Hope your upcoming biopsy is great! :)

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Yes, this happened to me too last time I got my hair cut. I go to a pretty large shop with many hair stylists, and their was alot of stuff being sprayed all around me. I had told him not to use anything on me, but the stuff around me must have gotten me. I am due for a hair cut, and will call if he can see me early before the others come in.

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Some of the hairsprays I had at home contained wheat based conditioners in them, so I am guessing that they would have similar ones used in the hair salon and there were definitely plant based (including wheat) in the eye drops as I checked it out. I am just worried that the little mishaps (none of which were on my control) would effect my next biopsy. (I'm crossing my fingers for this one!)

Hi.  I'm not sure whether hair spray would contain gluten, but  nasty fumes yes.  I hate anything unnatural on my hair. I would look much younger if I would color my hair...but I have earned every one of my grey hairs.  And I'm pretty sure that eye drops would not contain gluten.  Just the nature of the product would indicate that.

 

Taking perscribed meds and suppliments can have an interaction.  Recently, a suppliment affected my eyes.  I stopped and back to normal.

 

Hope your upcoming biopsy is great! :)

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Hi Julissa

I will definitely be avoiding the hairspray in future. What a good idea, going in very early to avoid the hairsprays etc. I must remember that. Thanks.

Yes, this happened to me too last time I got my hair cut. I go to a pretty large shop with many hair stylists, and their was alot of stuff being sprayed all around me. I had told him not to use anything on me, but the stuff around me must have gotten me. I am due for a hair cut, and will call if he can see me early before the others come in.

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Getting  one of the first appointments in the day is a good idea. I also bring in my own haircare products from home and have my stylist use those. Mine has no issue with that.  Hopefully this won't impact your healing too much. Let your doctor know your concerns before the next biopsy. Just tell the doctor you got accidentally glutened a couple of times. That isn't unusual in the early stages of getting used to the gluten free lifestyle.

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Thanks. Yes I will speak to consultant before my next one. I'm so annoyed with myself, as I'm so careful at home. I was taken by surprise as I don't normally have hair spray on, but I changed my hairstyle and she must have thought it needed a bit of extra hold.

Getting  one of the first appointments in the day is a good idea. I also bring in my own haircare products from home and have my stylist use those. Mine has no issue with that.  Hopefully this won't impact your healing too much. Let your doctor know your concerns before the next biopsy. Just tell the doctor you got accidentally glutened a couple of times. That isn't unusual in the early stages of getting used to the gluten free lifestyle.

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Some hairsprays DO contain gluten. As do other styling products. I've been going to the same stylist for years...and he knows to not use any unapproved products around me! Bring your own if you have to!

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Some hairsprays DO contain gluten. As do other styling products. I've been going to the same stylist for years...and he knows to not use any unapproved products around me! Bring your own if you have to!

Hi, sorry I'm only just replying, this reply ended up in my junk box :(

I was thinking of taking my own, when I actually find one that doesn't contain gluten. I had to throw a lot away as I found my favourites also contained gluten. I think I would have been okay had I not accidentally gulped in a mouthful as she was spraying my hair.

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Hi, sorry I'm only just replying, this reply ended up in my junk box :(

I was thinking of taking my own, when I actually find one that doesn't contain gluten. I had to throw a lot away as I found my favourites also contained gluten. I think I would have been okay had I not accidentally gulped in a mouthful as she was spraying my hair.

 

 

I ask her to warn me when she is going to spray anything.  Then I put  my hands, palm side in, over my mouth and nose.  Then I wash the outside of my hands well.  I don't worry about the stuff she uses at the salon.

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I went yesterday to get my hair cut. I called my guy at the salon and he said he'd go in early for me. I came in with wet hair, he cut it, and I was out before the others started working. I didn't bring products with me, I just left wet and did my own thing at home.

 

 

it was great!

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I ask her to warn me when she is going to spray anything.  Then I put  my hands, palm side in, over my mouth and nose.  Then I wash the outside of my hands well.  I don't worry about the stuff she uses at the salon.

Good plan!

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I went yesterday to get my hair cut. I called my guy at the salon and he said he'd go in early for me. I came in with wet hair, he cut it, and I was out before the others started working. I didn't bring products with me, I just left wet and did my own thing at home.

 

 

it was great!

Whatever works for you I guess. I couldn't do this as I have my hair coloured each time I go. I have premature greying due to my thyroid condition.

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flowerqueen, I used to have him do my color as well, but I won't risk it anymore since I got sick. so I do my color at home and it works for me, save alot of money too :)

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flowerqueen, I used to have him do my color as well, but I won't risk it anymore since I got sick. so I do my color at home and it works for me, save alot of money too :)

I don't think I'm brave enough to do my own hair ;-) I'm sure i'll be fine if I don't let them use hair spray.

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I have trouble with personal care products, like shampoo, makeup, etc, and I've occasionally had trouble with hairdressers, so I do not let them put product in my hair. I am also very allergic to synthetic fragrance, so I have multiple reasons for avoiding salon products.  If you're still having trouble finding new hair products, I really like Max Green Alchemy. They are gluten free and all natural, but still leave my hair really soft. I'd also keep looking for a stylist that is willing to listen to your concerns and will check any products that she uses on you. 

 

Hair stuff!

http://www.maxgreenalchemy.com/

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    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
    • I won't say I will never eat out but I can't see me eating out for the foreseeable future. Even then, I will most likely only eat at a dedicated gluten free place. I am extremely sensitive to the tiniest amount of gluten and it's just not worth the risk to me. Eating out is playing Russian Roulette as far as I'm concerned and I'm not ready to play that game yet.
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