Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Accidentally Eating Gluten For Over 3 Months
0

5 posts in this topic

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it.  I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms. 

 

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover. 

 

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

 

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse.  I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body. 

 

If anyone could offer me any advice, it would be much appreciated.  I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill. 

 

Thank you so much. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it. I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms.

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover.

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse. I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body.

If anyone could offer me any advice, it would be much appreciated. I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill.

Thank you so much.

Oh my goodness.

I'd say do whatever has traditionally made you feel better. Try to sleep on whatever schedule works - plus a power nap each day?

Eat unprocessed food (cook a chicken and pick off if it all week) and take digestive enzymes with each meal. They help me.

Drink lots of water and whatever else makes you feel better.

Just play it smart, conservative, and safe this week and sleep as much as you can.

Good luck!

0

Share this post


Link to post
Share on other sites

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it.  I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms. 

 

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover. 

 

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

 

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse.  I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body. 

 

If anyone could offer me any advice, it would be much appreciated.  I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill. 

 

Thank you so much. 

Yes, I too had this same situation.  The salad dressing I used added a gluten ingredient and I didn't notice it until one night when my husband commented.  I too had similar symptoms (which are always my gluten contamination symptoms).  I think I just stopped noticing them because after such a long time period they seemed almost normal again.

 

First, be grateful that you now know why you've been feeling poorly.  Then, as the previous response recommends, eat clean and ultra conscious for at least 72 hours.  Also, know that this happens, we are always trying our best but abstaining from gluten is an ongoing mine field.  In time, you'll recognize those symptoms quicker and quicker and "go to town" trying to uncover the culprit food.  

0

Share this post


Link to post
Share on other sites

I was eating McCains extra spicy extra crispy fries on and off for two months and gradually feeling worse and worse, and I couldn't figure out why.  I THOUGHT I had checked all labels but apparently not.  I wasn't getting severe stomach pain but it was enough to know I was doing something wrong - I was even looking into other food intolerances... I even gave up coffee (gasp) while trying to figure it out.  I don't know why they add wheat starch to fries... :rolleyes:

 

I figured it out almost a month ago, and I am getting back to normal. I am still having more migraine, fatigue and stomach pains than I was before Xmas but it is slowly improving. Hang in there, it could take a while.

0

Share this post


Link to post
Share on other sites

Thank you so much for all your support!

 

As an update I realized that I was feeling so horrid because of my suppressed immune system and I got recurrent mono, which I am still battling. 

 

I sure am happy to have at least found the culprit and have been using your suggestions with great success. 

 

May this never happen again to any of us. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined