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Am I Hypocondriac ?
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9 posts in this topic

Hello all,

 

I've been strugling with extreme anxiety since 1 year now and tried 3 different antidepressants and none of them worked for me. I am convinced that my condition is related to a celiac disease but i don't have low iron nor anemia so i was wondering, is it possible to have a celiac disease but no defiency in iron and other vitamins ?

My doc said i'm not celiac but he didn't even prescribe me the right bloodwork, just the vitamins like iron. vitamin D, hemoglobin etc...

 

I'm sorry if my english is bad but i'm a french frog eater =)

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Welcome to the board.

 

I had celiac for at least 30 years before it was diagnosed and I did not, at time of diagnosis, have any anemia or low nurtrient levels - in fact my B12 was high- but I do supplement a lot, and I have a diet fairly high in beef and pork. It is possible to have normal nutrient levels and no anemia in an undiagnosed celiac, but it is the minority.

 

The blood tests  you need are:

 

ttg IgA and ttg IgG

DGP IgG and DGP IgA

EMA IgA

total serum IgA (a control test)

AGA IgA and AGA IgG (older test)

 

Hypothyroidism (Hashimoto's) and possibly hyperthyroidsim (Graves) are other autoimmune disordesr that often results in symptoms of depression and anxiety. If you google the symptoms, and you think they fit, the tests you would want for that are:

TPO Ab (should be very low)

TSH (should be near a 1)

Free T4 and free T3 (should be in the 50-75% range of your lab's normal reference range)

TSI

 

Good luck.  :)

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Well actually i have a vitamin D defiency but i think that's because i don't go out often (the sun bring us vitamin D if i'm right). By the way i already got tested for hypothyroidism and everything is ok. I'm gonna see my doc tomorrow and i hope he'll prescribe me a blood test for celiac disease. And honestly i wish they find out i'm celiac, thus it would be the answer to all my symptoms. However thank you so much for your reply, i'll keep you updated :)

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Welcome Froggy!

 

Add these to the list of tests nvsmom posted:

 

Vitamins B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc

 

Complete Metabolic Panel

 

Complete Blood Count

 

Good luck at the doctor -- take a written list of all symptoms and questions you have along with the tests you need to have run.  I find it comforting to have it in my hand to remind me of everything I wanted to talk about -- often our doctors rush us a bit - so being prepared really helps!

 

Hang in there :)

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Make sure they test your thyroid antibodies, which is the TPO test, it is not your "standard" thyroid tests.  I had my TSH tested all the time because I showed signs of thyroid issues and my mother, grandmother and even my son had thyroid disease.  All those tests were always normal, but my TPO was way off, unfortunately for me I was covered in DH (didn't know it at the time) and it took an allergist to find the hoshimoto's thyroid disease and the celiac. 

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I saw the doc today and he refused to give me the prescription for the bloodwork, i'm really pissed off. I'm just gonna go gluten free for 1-2 months and see how things are going. :(

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   :blink:   -_-   :(

 

So sorry...this boggles my mind -- each and every time I hear that a doctor refused to order simple blood tests....they should all be fired.

 

Make sure you read the "Newbie 101" thread and let us know if you have any questions :)

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Go to a different doctor!!

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(HUGS) I would try another doctor too... any doctor.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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