Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Endometriosis = Autoimmune ?

3 posts in this topic

I saw my Primary care doc today.

We were discussing how many autoimmune diseases  I have  and possible  new ones :unsure:   .  ( With humor intended )She calls me her " little autoimmune nightmare " :P .

During our conversation endometriosis came up. I had endometriosis ( then  a total hysterectomy ) 30+ years ago.

. She says to me " They( that mystical they  :rolleyes: ) " They now believe that endometriosis may be autoimmune ". 

Really <_<

Has any one been told this or does anyone have any research  , studys that support this concept ?


For me personally  it is a non issue( other than adding a number to an ever growing list )  but I have 2 daughters that have dealt with endometriosis and I have 2 granddaughters ( they are my concern)  


Share this post

Link to post
Share on other sites

Ads by Google:

I've been hearing it the other way...that they used to say its AI and now it's not. I always thought it was - all of the earlier reading I'd done at the time (10 years ago) said it was AI.

I don't know...but they do say many with endo are AI, regardless.


Share this post

Link to post
Share on other sites

I have found some studys that say endometriosis is AI and has a clear link to other AI diseases . They are a bit dated( 2008 or so) as you said. I have not been able to find anything more  recent .


One study found the presence of antibodies to endometrial stroma in 60 percent of patients with endometriosis. Researchers propose that these anti-endometrial antibodies might be partially responsible for failure of implantation leading to infertility.

The observations made by researchers at National Jewish Hospital along with the demonstration of endometrial antibodies in patients with endometriosis confirm the autoimmune nature of endometriosis.( this study was done in 2008 )


I am still looking for something more recent .


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ok, that was my understanding of it too after some reading, but the fact that the result was under "celiac reflex panel" is what confused me.    I do have some unspecified autoimmune activity going on in my body. My inflammation levels are very high, my complement testing has come back off, and nobody really knows why. A total high Iga isn't a surprise in this case if it doesn't actually hab anything to do with gluten. Going gluten free made my inflammation markers rise rather than go down, so I'm inclined to believe I'm mostly okay with gluten, aside from some digestive issues that I believe are simply from the wheat not being fermented. Sourdough causes me no issue,  but soft white bread destroys me for example. Anyways, It's all very confusing and I wish I knew what the heck was going on with my body. 
    • maybe check exactly which blood tests you had done as well if the dermatologist doesn't know much about celiac its possible they didn't run enough
    • i think chips would vary from place to place depending on the ingredients where you go
    • Hey Everyone! Been celiac for 6 years, and it's my first time on a forum.  I assume my story is the same as most of yours: I was really sick and skinny and bloated, got diagnosed with celiac, went gluten-free and felt amazing, then slowly, but surely, the symptoms and elevated antibodies returned, no matter how OCD I am about avoiding cc. Basically I have what they call Non-Responsive Celiac disease.  I'm wondering, is there something ELSE that I can do? Clearly the gluten-free diet isn't enough anymore. I know I'm not alone in this experience. And I know doctors don't have any advice besides the gluten-free diet (and the new celiac drug that is apparently in phase III)). But do you guys know of any other tricks?  I went on anti-anxiety SSRIs for a bit to help with my anxiety problems, and that really helped my celiac. But now that I've sort of developed a tolerance to my low dose, the symptoms have returned. Anyone else try this? Or low doses or steroids/anti-inflammatory drugs?  I'm really sick of feeling sick. I even tried the Fasano (Gluten Contamination Elimination Diet) for 3 months, but it didn't really work. Any suggestions or tips would be much appreciated! Or even the names of doctors who have helped you!  
    • 60% of celiacs with dh test negative on the celiac blood work. Fact. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member