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Hormones, Specifically Menstruation
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So I'm *hoping* that my whenever-bleeding is a result of my hormones getting back on track...I missed about 2 periods a year and would get them every 40+ days before, albeit on a fairly regular schedule, before being gluten-free..

However, the past 3 months I've had spotting between periods, and now it seems the spotting is bleeding (no pun intended) into my next period on a 28 day schedule...

I haven't seen a doctor yet, but my pap tests and examinations in the past have never showed up anything.

 

Does anyone, man or woman, have stories about their hormones going out of whack at some point being gluten-free, and and eventually settling into normality?

I have recently restricted my diet more to avoid most grains or things that might have cc from processing, so even though I've been gluten-free for almost a year, I may have only recently been gluten-free enough for my hormones to change back to normal...if there is a normal!

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Progesterone, or lack of it, caused spotting for me. Natural progesterone, no rx needed, 2x a day (morning/night) fixed it. Took a few months. Then, I went down to using it 1x a day for the last two weeks of my cycle.

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My cycles have been all messed up. I'll have it one month normal then the next month i don't have it but i have all the symptoms. Next month i have two periods. I've read celiac messes with your cycles so i just try to deal with it. Just one more inconvenience of having issues with gluten. Haha

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It's pretty common for your hormones to get messed up. How old are you?

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Yes, it happens.  The joys of womanhood and gluten issues.

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I'd been on birth control (sprintec) before my worst symptoms started. For 2 years I had stomach problems (diarreah, severe bloating and painful gas, malnutrition reflected in my fingernails, foggy mind, etc), and then I broked out in hives. I was diagnosed with chronic urticaria, and this combined with my other symptoms led me to start a gluten-free diet (my doctors are a little slow on the uptake, so I'm hoping they'll catch up eventually...).

 

So, once I started the diet I got dramatically better. I had to start weening of the 150mg of hydroxyzine, 45mg of Prednisone, and Cholcrys that I'd been taking for the hives. When I started this medication, I went off the birth control because I was worried that all of these things combined would cause some major mood problems. My period was pretty stable for that month, but then once I started the Gluten Free diet I did have period issues. I've had bleeding (not like, period type blood, but as if I was actually bleeding) that would come about every 2-3 weeks. I'm not sure if this is from coming off the birth control or the diet change or both, but that's been my experience so far. I've been gluten free for about a month, off the birth control for I guess 7 weeks?

 

I hope that helps!

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Very hot topic for me. I'm almost 5 months gluten-free at this point and my periods are totally out of whack. They started in November, my last month before diagnosis, with a couple of 14-day cycles and one episode of long spotting before the period. Then I went gluten-free after DX and it got back on track. Last month, though, I had a 35 day cycle and this month I'm at the 33rd day and still waiting. Now, I'm almost 48 yrs old and it might be ascribed to menopause and it's a possibility but I have no other symptoms (hot flashes etc) and most of all, my gyno told me a couple of months back that I am full of estrogenes. So what is going on? I just don't know... maybe menopause and gluten are interacting. Also, I'm having other celiac symptoms that I never had before (rashes etc)... nothing major but annoying.,,

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I'm 30, taking no medications, only tried birth control for a month. I fe;t awful on them and didn't exactly relish the idea of cycling through different ones every 3 months to figure out which pill I should take, so I stopped. Since that incident I'd been bloated ever since...which I suppose I should be thankful for because without the bloat I may never have figured out the celiac diagnosis :-p

 

My period seems to have come and gone now, we'll see if bleeding happens again at some point.

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47 years old, have been going through stomach issues for the past 2 months, and have now reached day 59 of my cycle.  2 tests say it is not pregnancy.  Therefore, it is all from what is going on inside of me, as I said a few weeks ago, the joys of womanhood and gluten issues.  About once a year I go through a 49 day cycle usually around my anniversary, now I realize that is when we celebrate 2 birthdays and an anniversary all within 2 weeks, major bad foods for me in that time frame, so that explains that.  I do think 59 is a new record for me.  Yes, it could be menopause, I would love for it to be, but with everything else going on inside of me, I know its not.  Just to let you all know you are not alone.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
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