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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hormones, Specifically Menstruation
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9 posts in this topic

So I'm *hoping* that my whenever-bleeding is a result of my hormones getting back on track...I missed about 2 periods a year and would get them every 40+ days before, albeit on a fairly regular schedule, before being gluten-free..

However, the past 3 months I've had spotting between periods, and now it seems the spotting is bleeding (no pun intended) into my next period on a 28 day schedule...

I haven't seen a doctor yet, but my pap tests and examinations in the past have never showed up anything.

 

Does anyone, man or woman, have stories about their hormones going out of whack at some point being gluten-free, and and eventually settling into normality?

I have recently restricted my diet more to avoid most grains or things that might have cc from processing, so even though I've been gluten-free for almost a year, I may have only recently been gluten-free enough for my hormones to change back to normal...if there is a normal!

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Progesterone, or lack of it, caused spotting for me. Natural progesterone, no rx needed, 2x a day (morning/night) fixed it. Took a few months. Then, I went down to using it 1x a day for the last two weeks of my cycle.

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My cycles have been all messed up. I'll have it one month normal then the next month i don't have it but i have all the symptoms. Next month i have two periods. I've read celiac messes with your cycles so i just try to deal with it. Just one more inconvenience of having issues with gluten. Haha

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It's pretty common for your hormones to get messed up. How old are you?

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Yes, it happens.  The joys of womanhood and gluten issues.

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I'd been on birth control (sprintec) before my worst symptoms started. For 2 years I had stomach problems (diarreah, severe bloating and painful gas, malnutrition reflected in my fingernails, foggy mind, etc), and then I broked out in hives. I was diagnosed with chronic urticaria, and this combined with my other symptoms led me to start a gluten-free diet (my doctors are a little slow on the uptake, so I'm hoping they'll catch up eventually...).

 

So, once I started the diet I got dramatically better. I had to start weening of the 150mg of hydroxyzine, 45mg of Prednisone, and Cholcrys that I'd been taking for the hives. When I started this medication, I went off the birth control because I was worried that all of these things combined would cause some major mood problems. My period was pretty stable for that month, but then once I started the Gluten Free diet I did have period issues. I've had bleeding (not like, period type blood, but as if I was actually bleeding) that would come about every 2-3 weeks. I'm not sure if this is from coming off the birth control or the diet change or both, but that's been my experience so far. I've been gluten free for about a month, off the birth control for I guess 7 weeks?

 

I hope that helps!

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Very hot topic for me. I'm almost 5 months gluten-free at this point and my periods are totally out of whack. They started in November, my last month before diagnosis, with a couple of 14-day cycles and one episode of long spotting before the period. Then I went gluten-free after DX and it got back on track. Last month, though, I had a 35 day cycle and this month I'm at the 33rd day and still waiting. Now, I'm almost 48 yrs old and it might be ascribed to menopause and it's a possibility but I have no other symptoms (hot flashes etc) and most of all, my gyno told me a couple of months back that I am full of estrogenes. So what is going on? I just don't know... maybe menopause and gluten are interacting. Also, I'm having other celiac symptoms that I never had before (rashes etc)... nothing major but annoying.,,

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I'm 30, taking no medications, only tried birth control for a month. I fe;t awful on them and didn't exactly relish the idea of cycling through different ones every 3 months to figure out which pill I should take, so I stopped. Since that incident I'd been bloated ever since...which I suppose I should be thankful for because without the bloat I may never have figured out the celiac diagnosis :-p

 

My period seems to have come and gone now, we'll see if bleeding happens again at some point.

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47 years old, have been going through stomach issues for the past 2 months, and have now reached day 59 of my cycle.  2 tests say it is not pregnancy.  Therefore, it is all from what is going on inside of me, as I said a few weeks ago, the joys of womanhood and gluten issues.  About once a year I go through a 49 day cycle usually around my anniversary, now I realize that is when we celebrate 2 birthdays and an anniversary all within 2 weeks, major bad foods for me in that time frame, so that explains that.  I do think 59 is a new record for me.  Yes, it could be menopause, I would love for it to be, but with everything else going on inside of me, I know its not.  Just to let you all know you are not alone.

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