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Pins And Needles And Celiac


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#1 KerryLad

 
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Posted 18 April 2013 - 11:51 AM

just wondering if anyone gets pins and needles in hand or face when they eat wheat or aything? i have them now 3 weeks and afraid they wont stop cause they are cracking me up :( its my intestines are def at me and stinging down there and hurting a small bit whenver i eat i feel sick after it and sting alot my blood results came back negitive from celiac but i reallt think its that making me sick any idea how many people get pins and needles from it ?


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#2 Lisa

 
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Posted 18 April 2013 - 05:16 PM

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.


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#3 KerryLad

 
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Posted 19 April 2013 - 12:18 AM

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

got full bloods done and all came back ok vitamins levels etc tyroid perfect all good like... and i know its intestines and stomach like and its cracking my up my hands are getting sore and my left wrist is very sore :(


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#4 ravenwoodglass

 
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Posted 19 April 2013 - 03:24 AM

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 KerryLad

 
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Posted 19 April 2013 - 03:29 AM

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

ya all my b vitmain levels are good taken b12 the last 2 weeks as well like everything is good with my bloods and thats what bugging me celiac test came back clear negitive.. i have being eating chicken wraps latelly thinking there was no wheat in them and there is no wonder im not healing :(


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#6 GF Lover

 
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Posted 19 April 2013 - 03:48 AM

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 


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#7 KerryLad

 
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Posted 19 April 2013 - 04:24 AM

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

im new to it and trying to understand it and trust me im taken it serious would not be here otherwise or for the fun of it im suffering like and trying to figurre and get answers like 


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