Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pins And Needles And Celiac
0

7 posts in this topic

just wondering if anyone gets pins and needles in hand or face when they eat wheat or aything? i have them now 3 weeks and afraid they wont stop cause they are cracking me up :( its my intestines are def at me and stinging down there and hurting a small bit whenver i eat i feel sick after it and sting alot my blood results came back negitive from celiac but i reallt think its that making me sick any idea how many people get pins and needles from it ?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

0

Share this post


Link to post
Share on other sites

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

got full bloods done and all came back ok vitamins levels etc tyroid perfect all good like... and i know its intestines and stomach like and its cracking my up my hands are getting sore and my left wrist is very sore :(

0

Share this post


Link to post
Share on other sites

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

0

Share this post


Link to post
Share on other sites

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

ya all my b vitmain levels are good taken b12 the last 2 weeks as well like everything is good with my bloods and thats what bugging me celiac test came back clear negitive.. i have being eating chicken wraps latelly thinking there was no wheat in them and there is no wonder im not healing :(

0

Share this post


Link to post
Share on other sites




Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

0

Share this post


Link to post
Share on other sites

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

im new to it and trying to understand it and trust me im taken it serious would not be here otherwise or for the fun of it im suffering like and trying to figurre and get answers like 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,123
    • Total Posts
      919,495
  • Topics

  • Posts

    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined