Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newly Gluten Free
0

11 posts in this topic

Hi everyone my name is Brittani I am new to this site. I was diagnosed with Celiac about 5 or 6 years ago I was like 16 at the time. Idecided that I didnt seem to have any symptoms or issues (more like iv had them so long I didnt really realize i had them) so I didnt really need to follow a gluten free diet. Well for the last year I have been having reacurring ear infections so I would go to the walk in clinic and get an antibiotic, finally the Dr. said I needed to go see a specialist so I did. The specialist couldnt find any ear infection or problems with my ears in general. He did however find signs of allergys so we discussed them and I told him I had been diagnosed with Celiac but didnt follow the diet. So he told me I really needed to start following it because its probably the root to all my issues...

 

So I finally gathered togeather all my determination and threw out all foods in my house containing gluten and dairy (my husband is not thrilled but very supportive). I have been gluten and lactose free for a little over 24 hours and to be honest I feel worse! My stomach is gurgeling, I have diarrhea, and a headache. Is this normal for the beginning and how long does it usually take to get felling better?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, it is normal. Your body is going through a with drawl period from both of those items. It will take a while for it to adjust.

 

Recovery time on the diet varies from person to person. Some feel better within a few weeks, others a few months.

0

Share this post


Link to post
Share on other sites

Hi Brittani,

I hope your ear will stay pain free soon.

Diana

0

Share this post


Link to post
Share on other sites

Avoid processed foods as much as possible, and eat fresh, whole foods cooked from scratch as much as possible.  You also may be intolerant to oats as a small percentage of celiacs are.  Other common cross reactions are dairy (see that you are already avoiding that for now) and soy proteins such as soy flours. 

 

You can't undo years of celiac damage in 24 hours.  It is an auto immune disease and damaged tissues will take time to heal from the assault of the antibodies you've made to your own tissues -  IF you stay really gluten free. 

0

Share this post


Link to post
Share on other sites

Glad that you finally made the decision to take the jump. It's also good that your husband is supportive. It will be hard for both of you but definately worth it. One of the first things that you need to do is get rid of or segregate all of your plastic storage containers. Get yourself glass dishes. Stainless steel cookware is also important. Anything that scratches will become your enemy.

Your husband will make mistakes. Be lenient with him. My first big mistake happened not long after my wife took the plunge (she has celiac, not me). I had been out hunting all day. The day turned out well and I came home excited. She had spent the entire day making a big pot of spaghetti sauce and when I got home it was simmering on the stove. Without thinking, I grabbed a piece of "poison bread" and dipped it in the sauce. I had just ruined that entire pot. Mistakes will happen. Good luck.

0

Share this post


Link to post
Share on other sites




Glad that you finally made the decision to take the jump. It's also good that your husband is supportive. It will be hard for both of you but definately worth it. One of the first things that you need to do is get rid of or segregate all of your plastic storage containers. Get yourself glass dishes. Stainless steel cookware is also important. Anything that scratches will become your enemy.

Your husband will make mistakes. Be lenient with him. My first big mistake happened not long after my wife took the plunge (she has celiac, not me). I had been out hunting all day. The day turned out well and I came home excited. She had spent

Hi everyone my name is Brittani I am new to this site. I was diagnosed with Celiac about 5 or 6 years ago I was like 16 at the time. Idecided that I didnt seem to have any symptoms or issues (more like iv had them so long I didnt really realize i had them) so I didnt really need to follow a gluten free diet. Well for the last year I have been having reacurring ear infections so I would go to the walk in clinic and get an antibiotic, finally the Dr. said I needed to go see a specialist so I did. The specialist couldnt find any ear infection or problems with my ears in general. He did however find signs of allergys so we discussed them and I told him I had been diagnosed with Celiac but didnt follow the diet. So he told me I really needed to start following it because its probably the root to all my issues...

 

So I finally gathered togeather all my determination and threw out all foods in my house containing gluten and dairy (my husband is not thrilled but very supportive). I have been gluten and lactose free for a little over 24 hours and to be honest I feel worse! My stomach is gurgeling, I have diarrhea, and a headache. Is this normal for the beginning and how long does it usually take to get felling better?

I too am new to the gluten free diet and my best suggestion is to research research research! This website has help a lot, hearing others experiences. From what I understand it takes 6-8 weeks to really start seeing results, I felt some better after the first week but this last week (week number 5) has been hard I've been going through what I think is gluten with drawl or maybe detox but I've had headaches been super tired and emotional. Just hang in there and know it will get better, it gets darkest before dawn!

0

Share this post


Link to post
Share on other sites

Welcome!

Not only do I no longer get recurring ear infections - my hearing in my once nearly deaf problematic ear has improved since about a year or so gluten-free. It tested recently at only 20% loss - at celiac dx it was 75-80% loss of hearing.

I did have one nasty ear infection a few months ago but it resolved without antibiotic - in my 30s I found that my ear infections reaolved in about the same time frame with or without antibiotic. However, I did go to the doctor and got a Rx just in case the ear became worse....thankfully I didn't have to use them.

Make sure you read the "newbie 101" thread and let us know if you have any more ?s :)

0

Share this post


Link to post
Share on other sites

My name is Lisa and I'm new to this site.  I was diagnosed with Celiac 1 week ago.  Needless to say, this has been a living hell!  I have been have digestive issues for 20 plus years and now finally have an answer.  We are weeding out all wheat in the house with my 10 years old being the "Drill Sargent"!  I feel like crap, have no energy, can't think straight, running to the bathroom 24 hours a day, and no sleep.  PLEASE tell me this will get better!!!

 

I feel fine when I eat, but when the food moves through my small bowl, the pain is a 8 or 9!!  It is just unreal.  I get the pain under control and then it's off to bed where I get up 10 times an hour to go to the bathroom.  Is it just me?

 

Any help or understanding would be greatly appreciated!!

0

Share this post


Link to post
Share on other sites

I know exactly where your coming from. The pain is probably from damage, still to simple food for a little bit, fruit, veggies, baked potato.... Stay hydrated drink even if your not thirsty. Drink ginger tea with fresh ginger root, lemon and honey, the ginger helps to heal, and helps with upset tummy issues. Rest as much as possible, be super careful not to get any gluten the longer you go without it the faster you'll get better and it will! Every one is very supportive on here so keep coming back! Hope it passes quickly for you!!

0

Share this post


Link to post
Share on other sites

I'm new here too and still figuring this all out, too...so I just wanted to offer up a supportive ((HUG)).  I hope you feel better soon!! And like Brandiwine said, read read read.  This website is so helpful, and the people in the forum are amazing.  Hang in there, it WILL get better!!

0

Share this post


Link to post
Share on other sites

My name is Lisa and I'm new to this site.  I was diagnosed with Celiac 1 week ago.  Needless to say, this has been a living hell!  I have been have digestive issues for 20 plus years and now finally have an answer.  We are weeding out all wheat in the house with my 10 years old being the "Drill Sargent"!  I feel like crap, have no energy, can't think straight, running to the bathroom 24 hours a day, and no sleep.  PLEASE tell me this will get better!!!

 

I feel fine when I eat, but when the food moves through my small bowl, the pain is a 8 or 9!!  It is just unreal.  I get the pain under control and then it's off to bed where I get up 10 times an hour to go to the bathroom.  Is it just me?

 

Any help or understanding would be greatly appreciated!!

 

Hi SunnyFL (Lisa),

 

Do you have a lot of bloating / gas in your gut after eating?  If your gut is inflamed and irritated, blowing it up like a balloon can make it painful.  Bacteria in our guts makes gas and that causes bloating.  If you can reduce that it may help.  Bacteria in our gut feed on the foods we eat.  If we eat a lot of carbs and sugars they have a great old time and make lots of gas.  This is a bigger problem when starting out on the gluten-free diet.  Cutting out sugar and carbs can help.  Also taking probiotics and digestive enzymes can help.  After a while your gut heals and the bacteria tend to stabilize.  But during the healing process it can be tricky.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,689
    • Most Online
      3,093

    Newest Member
    Kelly Calcagno
    Joined