Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.
I'm so confused about my daughter's diagnosis. I hope somebody can help. My 4 year old daughter has a swollen belly, stomachaches, and lots of gas. She does not have diarrhea or delayed growth. Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac. She was weak positive for TTG (IGA) and strong positive for DGP (IGG)
TTG (IGA) 8 (0-3 neg, 4-10 weak positive, greater than 10 positive)
TTG (IGG) 2
DGP (IGG) 47 (0-19 negative, 20-30 weak positive, greater than 30 positive)
Last week, she had her endoscopy. The doctor found inflammation and little holes or bumps on her duodenum. He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back.
The biopsy showed no signs of celiac disease. He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage. He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again. My questions are:
1.) If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right? Could it be a wheat allergy or gluten sensitivity? What else could it be and how do they test for it? Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?
2.) How likely are false positives for TTG and DGP? I've heard they are pretty sensitive and specific. Does getting two positives make false positives less likely?
3.) What have you done in this situation? I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc. But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.
Thanks in advance for your help. I'm so overwhelmed and confused. I hope someone has some insight and experience that will help clear things up for me.
Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.
So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called 'Phrik Thai' for future reference.
I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.