Hi! I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.
But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there?
Hi. I have been reading your post and thinking about how my pain was around diagnosis. It was above the belly button, I think where you are describing. At the time I assumed I had a stomach ulcer. I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).
Going back to the pain, it was a burning feeling. My doctor prescribed Omeprazole but it didn't touch it. In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease. I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.
I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget.
The other thing I had that you mention was that pain between the shoulder blades. I had that - I felt almost like someone was pushing my shoulders down. So odd.
I get palpitations when I am anemic.
I hope you get some answers soon. It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.
Oh, one last thing.....
You'll feel better. Hey, you have a tub? Want to join the polar bear club in the privacy of your own home? Fill that thing with cold water & dump a 5 or 10 lb bag of ice in there. I'm serious.
I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!
Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.
Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!!
You've convinced me there is more than ample reason to strongly suspect it's dh.
Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy.
BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born.
A dx of dh IS a dx of celiac disease & no further testing is needed.
Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.