Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does It Sound Like I Could Have Celiac?
0

4 posts in this topic

I am going to my doctor as soon as he is back off holiday but I would like to know if this could possibly be Celiac, if anyone can help?

 

Every now and again I would always seem to get an upset stomach. All my life I've suffered from constipation, only going once a week, twice if lucky lol. I also have chronic fatigue, find it hard to concentrate/suffer from brain fog. A few weeks ago things started to get really bad, I bloated so much and had stomach pains, cramps, gas, lack of appetite and feeling full quickly when eating, I also felt pressure in the middle of my stomach a while after eating. The bloating never stayed constant, it went down a while and came back. About a week passed and the bloating and other symptoms stayed although my appetite increased slightly. The symptoms were the same up until this week were I have felt all the same symptoms other than lack of appetite, this time I've been feeling so hungry I eat more than ever. I went on a diet in November and was losing 4lbs a week and then gaining 2lbs or so. The only thing that has changed is that I am eating more pasta, noodles and wholemeal bread than ever before. I only ever have a small amount of milk in a coffee as the slightest bit too much starts to make me feel nauseous and I don't eat other dairy products either. I also had a sharp pain last week on my left side near my belly button, it feels slightly tender now but I havn't had the same feeling since. Also I have dry skin mainly on arms and scratches don't seem to heal I end up with scars from small things. Also really easily irritated lately and my family have noticed it too.

 

None of my immediate family seem to have these problems other than me, there has also not been anyone in the family diagnosed with Celiac.

 

Thanks for any help.

Edited by sammy01
0

Share this post


Link to post
Share on other sites


Ads by Google:

It sounds like you have something autoimmune going on to me - your symptoms sound so very much like mine did (except that I had more joint problems) and unfortuantely I have a few AI issues. I'll comment on your symptoms as they related to mine; I'm not a medical professional so I can only add what I've learned based on what I've researched because of my own experiences.

 

A few weeks ago things started to get really bad, I bloated so much and had stomach pains, cramps, gas, lack of appetite and feeling full quickly when eating, I also felt pressure in the middle of my stomach a while after eating. The bloating never stayed constant, it went down a while and came back.

These are pretty classic celiac or non-celiac gluten intolerance NCGI) symptoms.  That pregnant look that almost makes you want to double over is a pretty common symptom around here. It usually isn't constant (not many AI disease symptoms are) but will come and go over hours or days; it can appear minutes after a "glutening" or a day or so. In some people it creeps up over time, and in others it appears pretty suddenly over a matter of days.

 

Celiacs are quite often lactose intolerant. This sometimes passes after months or years gluten-free. I personally get almost the same GI symptoms when I consume milk products as when I eat wheat, it's not as bad when it is baked into something. You might want to switch to a rice, almond or coconut milk. We like coconut milk in our house and I usually use the chocolate flavoured "milk" in my coffees as a morning treat.

 

I would advise you to get tested based on those symptoms alone.

 

I too waslike you with the weight loss. If I made an effort to eat less grains and cut calories, I could easily lose 3-7 lbs a week in the early weeks of weight loss. On the flip side, I can easily gain weight if I eat sugar, or feel poorly. Over easter I had too much sugar, and prior to that i was accidentally glutening myself, and I gained 10 lbs in 2 months without eating excessive amounts... just extra sugar. I don't know if this is specifically celiac related or not.

 

I also have hypothyroidism (Hashimoto's) which has similar symptoms to celiac, and is found more frequently amoung celiacs than the regualr population. You might want to get that checked out too as it could account for your dry skin, slow healing, brain fog, fatigue, and constipation. Hypothyroidism slows your metabolism by up to 10-15% so everything moves a bit slower. These could also be celiac symptoms - there's a lot of overlap there.

 

If you get tested for celiac, these are the tests you could request:

  • Deaminated Gliadin Peptides (DGP IgA and DGP IgG)
  • Tissue transglutaminase antibodies (tTG IgA and tTG IgG)
  • Total serum Immunoglobulin A (IgA - this is a control test)
  • Anti-endomysial antibody (EMA IgA)
  • Anti Gliadin antibodies (AGA IgA and AGA IgG - older tests)

 

The first three tests would be the best for detecting early celiac disease. The EMA is a very specific test but you need a lot of small intestinal villi damage for it to be positive. make sure you are eating daily gluten for 6 weeks (or even more) prior to testing. you could also have an endoscopic biopsy done.

 

If you want to look into hypothyroidism, these are helpful tests:

  • TPO Ab - should be very low
  • TSH - should be near a 1
  • Free T4 and Free T3 - should be in the upper 50-75% range of your lab's normal reference range

 

Get copies of all of your tests. Doctors are not perfect (or sometimes even good at) at interpretting lab results and you'll want to recheck you results to be safe. For example, for years I accepted that my thyroid was fine based on my normal (or almost normal) lab results (TSH's of 4-6.5) in spite of my hypo symptoms... My doctors were clueless when it came to subclinical hypothyroidism and I was trusting so I accepted that it must just be aging (in my 20's - pshaw). I regret my trust in them now, because of my trust my 20's were not nearly as healthy as they could have been and I can't get that time back.

 

Anyway, welcome to the site. Ask lots of questions, there are some really knowledgable people around here.  And best wishes.

0

Share this post


Link to post
Share on other sites

Thank you for the great info. I'm definitely going to bring it up as a possibility and perhaps a lactose intolerance test too. I had a blood test for hypothyroidism once by a doctor filling in for him, when he came back he told me the test results just showed I was anemic.

0

Share this post


Link to post
Share on other sites

You might want to find out waht that thyroid test was - I was always told I was normal but when i got my medical records because my doctor left, i discovered that I wasn't always normal, or I barely was within range. I've heard many stories about celiacs who had slightly abnormal tests glossed over too... it's discouraging.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,653
    • Total Posts
      918,480
  • Topics

  • Posts

    • Newly diagnosed and totally overwhelmed
      Hi!  I know I'll never forget the day I was told after an endo- and colonoscopy that I indeed had celiac disease.  I immediately went to a Trader Joe's grocery store and bought some gluten-free things to eat. about a month later I had a Total meltdown in my car outside a grocery store---feeling So Sorry for myself!   I cried and said I'll Never to able to eat what I want to again! that was 10 years ago and gluten-free foods have come a long way.... I love having a gluten-free everything bagel and delicious gluten-free 'Oreo cookies'----neither of which there were 10years ago. Everyone who has responded so far have Great Tips!  The best news is that your Diet will cure you!  I do not know of any other condition where this is true!! BTW---some of your friends and family Will understand and will make sure you aren't hung out to dry foodwise........and others just won't/can't understand and will think that just avoiding bread is enough..... Be kind, but don't risk your health to be nice to someone who forgot or doesn't understand. keep reading!  Keep trying different gluten-free foods to find what you like!   Best wishes!!  
    • Milling vs buying gluten-free flour
      It has never even been turned on. As I recall, it is capable of milling oats as well as popcorn. I don't know about coconut or other nuts but I can find out.
    • Milling vs buying gluten-free flour
      The very first question is.... Was that Retsel grain mill used for gluten before your diagnosis? If the answer is yes then the 2nd question is can it be COMPLETELY DISASSEMBLED and cleaned in every single nook & cranny? If the answer to that is no, then you can't use that grain mill because you will be continually cross contaminating yourself.  3rd question: Will that mill do things like coconut? The grains that are oily. Some mills won't. Better check that out. I got a NutriMill & it can not do oily grains or things like coconut. No oats as they're oily, same for nuts. Rice flour it does a great job on & gets it as fine as I can buy it.
    • Food tolerance issues post-diagnosis
      Boy, you've sure had a rough time of it! My heart goes out to you! I love your positive attitude about coping until your villi heal more. THAT is your greatest ally in this journey. Okay, now to your problems...... Your gut is still damaged. You aren't healed yet - you know that as you've stated it. It can be really wonky for the first 6 months to a year. It's like being on a roller coaster ride & you can have good days & sucko days & good weeks & weeks that are the absolute pits. My advice would be to ditch all the processed gluten free foods. You'll heal faster & have less problems eating "whole foods" --- fresh or frozen fruits & veggies, meats & dairy as long as you can tolerate it. Forget the corn flakes & rice krispies. They may be gluten free but it's still processed food & therefore full of all kinds of chemicals & preservatives & stuff you don't need. We always tell people to spend at least the 1st 6 months avoiding the processed foods. Time enough to get into those after you heal right? How about for breakfast you have a couple eggs, either fried or pan scrambled. Some fruit -- bananas, pears, whatever floats your boat, a glass of milk, some yogurt. You may need to have well cooked foods for a while & that means mushy veggies as well as fruit. From the sound of the extent of damage you had I would say that's where you ought to be at this point. You don't want to make things any harder on your gut than necessary for the time being. You do have one great big thing in your favor & that's your age. You're young & will by all rights heal up much faster than us old geezers who weren't diagnosed until our 50's, 60's & 70's after a lifetime of damage. Please read our Newbie 101 & follow the links contained within the threads. This will give you a ton of valuable information. Just click on it:  
    • Biopsy confirmed?
      Okay, this makes more sense now. Was the celiac test in 2014 part of the checking to find out what was wrong with you which resulted in the Barrets dx?  NO, a colonoscopy will not diagnose celiac disease at all. The biopsies for celiac disease are taken in the small intestine not the colon. You need to get your records, both past & present. If you could post them here then we'd have a much better idea of what's going on and be more able to tell you what you might be looking at. When we say you might not have been given the right celiac blood panel, we mean the FULL, CURRENT panel and not just a primary screening. The screening is good but it does miss celiacs. We have members who tested negative on all but the DgP portions so when one has a situation like yours, you need to cover all the bases & have the complete panel done. Here it is: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG   If you post your results on the blood work make sure to post the reference ranges listed because different labs have different ranges. It would be imperative to know if the doc took biopsies for celiac when he was doing the endoscopy. How many & where exactly from? Some docs just rely on visual & that's not good enough to dx celiac disease. Biopsies are the only way.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,745
    • Most Online
      1,763

    Newest Member
    komac
    Joined