Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

My Mom Is Getting Tested For Celiac

4 posts in this topic

She is getting tested by the same doctor that I did..he did not test the full celiac panel, plus I have been eating low gluten unintentionally.

How can I ensure my mom gets the right results??

I am still convinced I have the disease because I have unexplained anemia and other deficiencies.. Now my grandma got tested for it because she has the rashes, but she tested negative..and my family has a history of autoimmune diseases and depression.

I'm just afraid my mom won't accept that gluten causes problems for me if she tests negative. So, what are reliable tests??

Thank you!! :)


Share this post

Link to post
Share on other sites

Ads by Google:

The most commom full celiac panel is:

  • Deaminated Gliadin Peptides (DGP IgA and DGP IgG) - very sensitive and specific
  • Tissue transglutaminase antibodies (tTG IgA and tTG IgG) - the usual first test, it is sensitive but not as specific
  • Total serum Immunoglobulin A (IgA - this is a control test)
  • Anti-endomysial antibody (EMA IgA)-  very specific and sensitive to celiac but you need a lot of villi damage for it to be positive
  • Anti Gliadin antibodies (AGA IgA and AGA IgG) - older tests thought to (possibly) be positive in close to half of NCGIs (non-celiac gluten intolerance)

Anemia, rashes, and every other celiac symptom (except for damage to the villi) can also be attributed to NCGI, which is much more common - I've heard stats saying that 6 to 30% of the population has this.


Unfortunately most other AI diseases also cause these symptoms. For example, low B12 can cause anemia in hashi's lupus, MCTD and other problems besides celiac or NCGI.


If you feel better off of gluten, and can't get a positive celiac test result, you might have to embrace the NCGI label and go forward with the gluten-free diet even if you don't have family support - It's your health and your body, and you'll take better care of it than anybody.


Best wishes.


Share this post

Link to post
Share on other sites

Hmm alright, thanks.

I have many other symptoms too btw, I've looked at other possible causes and gluten intolerance seems to be the best match. it just sucks that they can't really test for NCGI.


Share this post

Link to post
Share on other sites

... it just sucks that they can't really test for NCGI.


It sure does! Hopefully they'll come up with something in the near future. NCGI has only been recognized for a couple of years so testing needs some catch up time.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
    • What GEE EFF said!  Look for incubators, some business schools and even community colleges will have classes  about starting your own business & info about financing one.   There is a lot more to a business then just making and selling and getting someone else to buy the food  Taxes - paying and collecting in different cities or tax zones, health department codes, liability insurance (vehicular and general business ), renting a health dept approved kitchen,  a small business lawyer to help you "become a real company", permits, "booth fees", etc.  You can probably avoid some of it right now, just selling at a local farmer's market.   add- You might check with your state.  Some states have funds or low interest loans.  It helps if you are a "minority".  
    • i've researched a little about the genes i have you can find out if they are assosciated with other illnesses/autoimmune diseases. but i don't think knowing the details of every gene is going to help diagnose you any futher than just knowing you have the gene becuse either way it just means you have an increased chance.  if you're iga deficient did you have ttg igg as well?
    • I don't know if there are any grants specifically for gluten-free products Ennis.  But the SBA in USA deals with small business startups and may have information to help you.   There may be small business incubators in your area also.  Sometimes they are associated with university business schools and the SBA.  Marketing a product commercially and labeling it gluten-free is a possible issue though.  There are now FDA rules on labeling products gluten-free.  So you need to study those before getting to far into it.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member