Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Joint Pain / Bone Inflammation
0

8 posts in this topic

I have been eating gluten free for 8 days to try to figure out if being gluten free could help with the joint pain and bone inflammation I have in the front and back of my pelvis.  My PCP told me that a diet change would not help and that I should just go to a doctor she has recommended and get cortisone injections.....which I will do anything to avoid.

 

My brother is gluten intolerant (never did medical testing) and gets acid reflux and SEVERE joint pain all over if he eats any bit of gluten.  He has always told me to try going gluten free to see if it helps me with my acid reflux and migraine headaches but I never took his advice until now.  I also just started taking anti-anxiety medication at the beginning of this year and read that anxiety could be a symptom of gluten intolerance.

 

Here's my questions:

     1)  How long should I wait until I stop taking my acid reflux medication as a test to see if the gluten free diet has elimated the acid reflux?  Normally if I miss one dose I notice it so it wouldn't take more than a day or two to find out.....I just wasn't sure how long the gluten will be hanging around in my body.

 

     2)  Can gluten intolerance cause actual bone inflammation or hardening of the joints?  These are the things that are showing up on my most recent x-ray.

 

Thanks,

    Wendy

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

hi,

 

i can only answer one of your questions- about acid reflux. this was the only thing the docs found when i had my celiac tests. theres nothing wrong but reflux- heres 2 prescriptions for it. i just thought im not getting into taking medicines for this and that!!! - i went gluten and dairy free the next day (with a few mistakes). ive only had one problem with reflux since,when i ate strawberry smoothie.

 

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

 

gluten can cause joint pain- its one of my symptoms. sometimes you find you have to give up somthing else as well- in my case it was dairy, and nightshade vegetables(potatoes,tomatoes,peppers and aubergines) and my newest one soya!

 

hope you have some success in sorting out your problems, welcome to the forum. im sure others will have more answers for you.

0

Share this post


Link to post
Share on other sites

If you don't get results I would do a full elimination diet with a strict food journal. Going gluten free isn't enough for me to keep my joint pain/arthritis at bay. I have many more intolerances to deal with but I am slowly introducing more and more into my diet (over time) and it is going very well. It all depends on how much damage you have going on (I'm guessing).  Fresh tomatoes are the worst offender for my joints.

0

Share this post


Link to post
Share on other sites

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

I've been taking omeprazole for more years than I can remember.  If I don't take my daily dose I will have heartburn or acid reflux during that 24 hour period.  So my theory is that if I stop taking it once the gluten is out of my system that I should know pretty quickly if the diet change has helped....but I'm definetely not an expert!

 

I also think that the food log is a great idea that I'm going to try.  If I can get off of my prescription medications just from changing my diet I'm all for it.

0

Share this post


Link to post
Share on other sites

The gluten goes out of your system pretty much right away; it's the autoantibodies your body has made to fight it that take a little longer to clear.  Even so, as jhol says, the only way to know is to try it. ;)

 

I had arthritic bony protrusions on my fingers when I first quit eating gluten.  My joints have remodeled over the years since, and no more little knobby bits now :D  and they move freely.  Still a little bit chubby though :rolleyes:  along with my toes.

0

Share this post


Link to post
Share on other sites




I am newly gluten free (first of 2013) and found out by doing the JJVirgin elimination diet.  (the perils of watching PBS during the holidays... found her there) I have been on Celebrex for 4 years for arthitis in my hands and hips.  It was to the point that I was limping and was impacting my activities.  Guess what?  Now that I'm gluten free, I stopped taking the Celebrex and I'm absolutely fine!  If I get "glutened" my joints get a bit achy....

 

Hope that helps...

0

Share this post


Link to post
Share on other sites

The gastroenterologist I saw last week said there is no link between Celiac and fibromyalgia  (joint pain, body pain etc)

 

I don' t agree with him.

Sigh... why did I waste my time seeing that doctor.

 

Sassbo, that is encouraging. I believe it's all food related.

0

Share this post


Link to post
Share on other sites

Hi stormy wren, I'm afraid I don't know enough to help with your questions, but just wanted to say that long term use of acid reflux medication can interfere with vit B12 absorbtion, which can lead to a deficiency. You might want to check that out.

Jo

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,583
  • Topics

  • Posts

    • The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests.  Not all celiacs test positive to the common Screening TTG.   The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching all celiacs.  Here is a link to the University of Chicago's celiac website.  When I was diagnosed three years ago, this site recommended just the TTg (as did the American GI Association).  Now they have expanded the list of celiac tests.   http://www.cureceliacdisease.org/screening/ Luckily, my GI must have just attended a GI conference and he ordered the complete panel for me.  ($400). It paid off.  Only my DGP IGA was positive and the rest of the blood panel (including the popular TTG test) was negative.  My biopsies revealed some severe intestinal damage.  My new health provider only allows PCP/GP doctors to only order the TTG.  So, if I want the follow-up testing to see if I have improved or had a gluten exposure, I must go to my New GI.  Yep, it is all about the money!   Keep eating gluten and make sure your  GI takes four to six samples during the endoscopy.  Maintain copies of all your results.   Your symptoms?  Yes, there are over 300 celiac disease symptoms.  celiac disease does not just affect the gut, but mis-informed and those who do not keep up with the latest in medical, do not seem to know that!   Do not give up!  
    • It's great to hear from you, Nightsky.  Glad to also hear of your steady progress.  Living gluten free is definitely a learning process, and even the baby steps are times to celebrate.  Wish you all the luck in the world as you continue to heal for the glutenization.  
    • Hi Nicky, When you first go gluten-free your symptoms often do change.  Feeling better or worse is possible.  The healing process is a major change in our gut and that means a big change in the gut flora is likely,  which can cause symptoms by itself.  Additionally the immune system doesn't stop making antibodies on a dime.  the immune system keeps working  to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed.  That includes a full celiac disease panel and an endoscopy with biopsy samples.  It's much easier to complete testing while still a gluten eater than it is to stop gluten and go  back on it for testing later.
    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined