Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Awaiting Diagnosis - Think Pregnancy Triggered It?
0

9 posts in this topic

Hi,

 

I am hoping for some advice and maybe see if anyone has been in the same situation.

 

When I was pregnant with my 3rd child - I fell very ill during the last trimester.

I did not gain any weight, had extreme tiredness to the point I was in bed for two weeks (it was not just tiredness from pregnancy) drying my hair tired me out.

I was sick, then had bouts of diarreah.Severe heartburn and from the beginning of pregnancy i was slighty anemic.

I was put on tabs for heartburn and doc prescribed iron tabs - which i stopped taking as she thought these could be causing the sickness,

My daughter was born 4 weeks early which they think was triggered by placenta abrubption.

 

I was convinced that me being ill and my daughter being early was linked - but docs said that I just unfortunately had a bad time of it,

I have two other children and sailed through the pregnancys with them!!!

 

After the birth I was still getting abdominal pain and severe heartburn - so doc sent me for an endoscopy which showed I had a hiatus hernia, the consultant mentioned a wheat intolerance so took some biopsies - the results showed inflammation in my duodenum 'COMPATIABLE WITH CELIAC' which has confused my doc!! She did some blood tests which were EMA - Negative and IGA - Normal.

 

she has referred me back to the specialist to maybe have a genetic test and to discuss symptoms.

 

I do not feel half as bad as I did in pregnancy - still have heartburn and nausea. Have not been sick! Sometimes have dizziness and bouts of  constipation/ loose stools _not exactly diarreah,

 

I am hoping someone can advise me on what they think!!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

see if your doctor can give you the full blood panel for celiac.  it consists of:

 

DGP igA (newer test)

DGP igG (newer test)

ttg igA

ttg igG

EMA (you already had this one done)

total igA (you already had this one done)

 

also when you get them done, ask for a copy, and you can post the results here.

 

good luck!

0

Share this post


Link to post
Share on other sites

Pregnancy can trigger auto-immune diseases.  Pregnancy is supposed to suppress the immune system to a certain extent so the "invader cells" of the fetus are not harmed. 

 

Some Celiacs are "silent Celiacs" and do not have noticeable symptoms.  Most commonly lead to a diagnoses through anemia.  You may have been a silent Celiac by the time of your 3rd pregnancy and noticed symptoms at the end of pregnancy.  Or you are right and your immune response to the pregnancy was to "trigger" Celiac disease.  (Which you where genetically predisposed to developing).

 

If you want to do further research to validate your theory, "Celiac developed during pregnancy" , a search on fetal maternal microchimerism

0

Share this post


Link to post
Share on other sites

Welcome to the board.

 

The EMA IgA test is one of the last tests to become positive for celiacs in the course of the disease. It only appears in response to a significant amount of damage that has already been done to the intestines. It really is not the best test for early celiac detection - in fact, it can appear falsely negative in young children just because they haven't lived long enough to build up enough damage for this to be positive... This is just my understanding of the test though, I'm not a medical professional, just someone who has read a dozen books on celiac disease.  LOL

 

The DGP and the tTG tests might serve you better. Try and get your doctor to run them on bothe IgA and IgG because sometimes it only shows up in one type. AGA IgA and AGA IgG are older tests that might work for you too.

 

Remember that you have to be eating 1-4 slices of bread (or equilvalent) of gluten per day for 4-12 weeks to get an accurate test so don't go gluten-free or gluten "light" until your testing is done.

 

That being said, if you have inflammation that is "compatible with celiac", I would interpret that to mean that the biopsies show damage that is caused by celiac disease... You have intestinal damage, and along with symptoms that means celiac disease. there are some around here who had positive biopsies and negative blood work, and then there are some who had negative biopsies and positive blood tests - not everyone ends up positive in both.  When you are done testing, I would reccommend going gluten-free for life. Continuing to consume gluten when it's a problem can lead to many permanent and serious health problems(for some) down the road like cancer, other autoimmune diseases and organ damage.  It's a lot to risk for bread.  KWIM?

 

you should consider testing your children as well since there is a genetic link to autoimmune disorders. Kids will often test negative so if the show symptoms, consider removing gluten, or at the very least retesting every year or so.  My kids tested negative but they showed some symptoms so I made them gluten-free, and I'm glad I did because their health has truely improved, and i know I not doing them any damage.

 

Best wishes.  I hope you get answers soon...and congratulations on number 3.  :)

0

Share this post


Link to post
Share on other sites

Thank you for all the responses. I have an appointment on Monday to see consultant so hoping he will run further tests which have been suggested here.

Does anyone suffer with the supposed brain fog? My memory is terrible to the point where I really have to think about things I did yesterday!

0

Share this post


Link to post
Share on other sites




Are you iga deficient?

Have you been tested for Hadhimotos Thyroiditis or hypothyroidism?

0

Share this post


Link to post
Share on other sites

Hi can I ask why you have mentioned these? I haven't been tested for either I have an appoint with consultant tomo

0

Share this post


Link to post
Share on other sites

Hashimoto's (hypothyroidism) has very similar symptoms as celic disease, and it is commonly triggered by hormones. Hashi's is also linked to celiac disease. I have both myself.

Good luck with the appointment.

0

Share this post


Link to post
Share on other sites

Testing the thyroid post partum is a bit tricky.  The thyroid should go a little overactive after delivery.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,666
    • Total Posts
      921,663
  • Topics

  • Posts

    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,663
    • Most Online
      3,093

    Newest Member
    Steph0903
    Joined