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How Long For Symptons To Go Away After Starting gluten-free Diet
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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

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Try not to eat processed food for a while if you can. As far as eating goes just pretend it's 1930 and you should be ok. I even suggest using lard or butter rather than modern oils, everything was better in the old days

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That steroid shot, and if it was a steroid cream...

May be why you tested negative on Celiac tests. Steroids are a contradiction to testing...they are used to send celiac into remission.

I haven't ever seen a firm timeline on steroid use and testing problems...if you use them within 3 months of testing? Maybe it's 1...who knows.

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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

hi there i have the exact same things and feelings as u i was on stomach tablets for acid stopped them 6 days ago to see my my stomach would break up my food more... i started getting stinging in the intestines and find it very hard to pass as my poo is rock hard and big i have pins and needles in my hands the last 6 weeks i started a gluten free diet 8 days now have a feeling im letting gluten in some way buy im very strict on my diet very plain diet gluten free bread with ham dinner i have chicken or salmon and breakfast i have porrage wheat and gluten free oat free organic stiff im on my oins and needes go from my hands to my lips and up my arms goes to my legs as well any ideas?? im 8 days clean of wheat now 

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    • I would like to ask if anyone has eaten puffed rice from Arrowhead Mills.  My daughter, who has celiac, wants to eat it and I am looking for advice.  The only ingredient is rice, but they do not test the product so do not label it gluten free.  I called the company and they say they clean all their equipment between each product, but since they don't test it cannot label it as gluten free.  Would you allow your daughter to eat this product?
    • He might have celiac disease (or just the start of it).  He might have Non-celiac Gluten Intolerance, which is real, but there is not a test for it.  He might have other food intolerances (milk, dyes, etc.).  You have been to an allergist and he did not positive for allergies (I assume wheat was included in the panel.).  Trialing a diet is fine, even a gluten free diet, when you ruled out everything.  But you have that quirky TTG result.  I gave you the link from the MayoClinic (top notch) and their algorithm recommends further evaluation.  An allergist is not a celiac expert nor is primary care doctor.  You should get a referral to a Ped GI.  If she/he suggests a gluten-free diet, then fine.  Because if he improves then, the GI will give you a diagnosis.  By the time you see the GI, he might have ordered another round of celiac blood tests, genetic tests, or he might want to order an endoscopy.  This case is not clear and that is a bummer.   The cure is the diet.  But he will be going to school and a diagnosis will pave the way for accommodations all the way to college.  And anyone here will tell you that once you get off gluten (and that is the root cause), it is awful....horrific... to go back on it for further testing.   This is his life and yours.  You must do what is best for your family.  I wish you well and we are here to support you.  I care.  I am mom.  
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    • If I may say something right now, the suggestions, advice, and information provided to you in this forum is just that: suggestions, advice, and information.  What has been provided can be used as tools to help figure out what is going on.  Please don't go away disgruntled or too frustrated.  There have been times myself when advice and suggestions was given to me, and I was not sure what to do about all the information.  I had to think and pray on it before I could act on it because my brain was functioning enough to do something about it right away.  It was on survival mode.  Forgive me if I am wrong, but I believe this is where you are at right now.  You are not sure where to go or what to do, so your body is just doing what it can to function day in, day out.  If this assumption is correct, I GET IT!  It is not fun, neither is it easy. Don't give up.  Things will get better.  Take all of this information and go to your primary doctor to see if you both can put your heads together and figure this out.  The answer may not come right away, but be patient.  it could be everything coming at you at once that making your body go into hypersentive mode.  I don't know, because I am not in your situation.  Until you go to the doctor, do what you know to do and God will take care of the rest.  There is something that has kept me sane through this past year: It will be okay because God is in control.  He knows what is happening to you and your future is going to be.  When you have a good day, enjoy those moments.  When you have a bad day, bring back to memory those good days and see if you can do something for another person.  I have found this year that if I focus on someone else through the bad times especially things don't seem as grim. I will be praying for you.
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