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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long For Symptons To Go Away After Starting gluten-free Diet
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4 posts in this topic

I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

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Try not to eat processed food for a while if you can. As far as eating goes just pretend it's 1930 and you should be ok. I even suggest using lard or butter rather than modern oils, everything was better in the old days

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That steroid shot, and if it was a steroid cream...

May be why you tested negative on Celiac tests. Steroids are a contradiction to testing...they are used to send celiac into remission.

I haven't ever seen a firm timeline on steroid use and testing problems...if you use them within 3 months of testing? Maybe it's 1...who knows.

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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

hi there i have the exact same things and feelings as u i was on stomach tablets for acid stopped them 6 days ago to see my my stomach would break up my food more... i started getting stinging in the intestines and find it very hard to pass as my poo is rock hard and big i have pins and needles in my hands the last 6 weeks i started a gluten free diet 8 days now have a feeling im letting gluten in some way buy im very strict on my diet very plain diet gluten free bread with ham dinner i have chicken or salmon and breakfast i have porrage wheat and gluten free oat free organic stiff im on my oins and needes go from my hands to my lips and up my arms goes to my legs as well any ideas?? im 8 days clean of wheat now 

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    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
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      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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