Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Please Help - Glutening

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I had been doing so well but unfortunately, something got me.  I am going through the GI stuff, joint pain, etc.  What lingers is the DH and low grade fevers.  I will run one for several weeks after a glutening.  Does anyone else get this and is it because of inflammation or just from having an autoimmune disease?  I have a friend with lupus and one with MS and they both run these fevers.  I asked my gastro and he didn't know.  He just told me to take Tylenol.  Go eat gluten free and take Tylenol.....Boy, do I wish it were that easy!!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


josh052980 Enthusiast
josh052980
Posted

How long have you been gluten-free?? In the early days I'd get a slight fever if I got glutened, but it seems to have stopped. I've been gluten free for a little over 2 years now. I found taking an Advil and a hot shower seemed to knock it back for me. I still get the joint pain part, but the low grade fever thing seems to have stopped a while ago.

Link to comment
Share on other sites
GFreeMO Proficient
GFreeMO
  • Author
Posted

Thanks Josh,  I've only been at this since January.  I was previously gluten free for about a year and a half and then a doc convinced me that it was all IBS.  I ate gluten for a few months all along thinking it was only IBS.  Went to another doc and had high liver enzymes which led me to the gastro and the official diagnosis.  - I guess I just have a lot of healing to do. The fevers just really wipe me out.

Link to comment
Share on other sites
josh052980 Enthusiast
josh052980
Posted

It hits us all different. Just keep at it and don't get discouraged; you're gonna get glutened here and there. You just have to find what gets your through it. For me it's what I told you, with some rest and relaxation thrown in and caffeine to give me the energy to get through it. If you need support, we're all here for you!

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

Oh MO!  What did you get into, Young Lady!  :wacko:

 

I have no wisdom, just want to say "I hope you feel better soon!"

 

Open Original Shared Link

Link to comment
Share on other sites
gatita Enthusiast
gatita
Posted

Awww, so sorry you have to go through this.....

 

I got glutened recently again too, it's no freaking fun!!! I had the fevers last fall but they seem to have gone after nine months gluten-free. I hope. So hopefully yours will subside soon. Gotta love the 'just take a Tylenol' advice. My GI's is 'just take an Immodium'!

Link to comment
Share on other sites
Ciel121 Apprentice
Ciel121
Posted

   Wow, I thought I was the only one who got the low grade fever. I've been gluten-free for 4 years, but for me it depends on how much gluten I ingest. I once went to a "gluten-free" restaurant--clearly that was a lie. I got the most excruciating pain. The migraine was so bad I wanted to go to the emergency room, pain was unbearable, of course bloating and nausea and the fever. I'm so scared to eat anything now because I know I'll be in so much pain. Sorry to hear that you're going through that. But I'm so amazed that being glutened can cause a fever. I wonder why. How is that connected with Lupus or MS? Hmmm...I have an appointment at the Celiac Center at Columbia University in June. I will be sure to ask these questions and will post when I know.

  Stay safe. Double check ingredients and cross-contamination. :-D

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cavernio Enthusiast
cavernio
Posted

So I've been avoiding grain oils for fear of cc, and I've not been eating chips.  (Actually, not doign great after eating chips is part of the reason I'm doing this.) I found chips that are cooked in avocado oil. Of course I bought them! Afterall, even if they're not labelled gluten-free, they only have salt, potatoes, and avocado, all foods I eat quite a lot of.

Bah, of course I got sleepy and cold. I practically burned myself having a hot shower so long I made myself get out before the water started to get cold...it clicked for me that I had screwed up somehow, could easily be gluten cc on the chips as they also make flavoured ones, or maybe I just don't do well with deep fried things, some by-product of it or something.

 

Anyways, the long, near-scalding showers I go hand-in-hand with the flu-like feeling. Makes sense to me though. When you have a flu or bad cold, your immune system is also acting up. And I know there's been research showing that, for colds at least, the people who seem to have the most symptoms also show a more active immune system for the duration. So the idea is that it's not actually the virus that's making you feel so awful, but your immune system trying to get rid of it.

Link to comment
Share on other sites
pricklypear1971 Community Regular
pricklypear1971
Posted

I have had a fever now and then when "something" was going on.

I've even noticed I get a fever from allergy attacks (before I figure out its allergies, not a flu, during allergy season).

I take a Tylenol, it helps. I eat and drink whatever sounds good (gluten-free, of course).

I also get DH outbreaks when I have a true virus. Ironically, that's how I figure out if it was a virus or allergies. Sad, but true.

Link to comment
Share on other sites
Juanitahoy Rookie
Juanitahoy
Posted

Although I have not monitored it, I also get really cold when I am glutened. I also have an autoimmune condition (or two...). I have fibromyalgia and have been suffering from autoimmune hives since early December. Interesting... Next time I am unfortunate enough to be glutened I will take my temp.

I hope you feel better soon. So tired of "just take a Tylenol" type reactions. With my doc it's "take as much pepto and gas x as you need". Too bad I can't pour it over the DH I get on my face!! Ugh!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,071
    • Most Online (within 30 mins)
      7,748
    Jannette
    Newest Member
    Jannette
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...