Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

5 Yr Old Son Still Has High Ttg After 3 Yrs On gluten-free Diet...any Ideas?
0

4 posts in this topic

My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

0

Share this post


Link to post
Share on other sites


Ads by Google:

My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

unless you lock up the gluten containing food.....take the house gluten free.

0

Share this post


Link to post
Share on other sites

Hello!

 

So your son is 6? 

 

Does he attend school? -- Are they careful in the classroom and at the lunch table?

 

Does he visit friends or family regularly?  -- again - how careful?

 

How many gluten eaters are in your home?  Does everyone wash their hands after handing gluten items?

 

Something is keeping the antibodies producing -- you need to find it. 

 

Has he had other positive antibodies?  EMA? DGP?

 

Has he had recent nutrient testing?

 

Hang in there -- you can figure this out :)

0

Share this post


Link to post
Share on other sites

My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

 

Other autoimmune diseases can keep tTg high so unless your doctor has repeated all of the Celiac tests in the panel, there is no way of knowing if he is being cc'd or if it's from another AI disease.  tTg should never be used alone for monitoring adherence to the gluten-free diet.  If your son's DGP or the AGA IgA is negative (low) then he is not being cc'd and should be tested for other AI diseases.  Thyroid disease is one of them and is very common with Celiac Disease.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,351
  • Topics

  • Posts

    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
    • New to forum! Appreciate all of the information.  I have Kaiser as many of you do.  My ttg is 1.18 (Kaiser <90), iga 31 (Kaiser <90). I have emailed my pcp in regards to where we go from here.  Is this a positive result or just a little above normal like Kaiser will tell me? I have had conflicting symptoms of some sort of inflammatory problem for 9 years.  I am almost convinced that this might be my answer. Can anyone give insight?
    • I eat them with no issues and know several other Celiacs that eat them with no issue.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,133
    • Most Online
      1,763

    Newest Member
    Mycaringkidsmom
    Joined