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5 Yr Old Son Still Has High Ttg After 3 Yrs On gluten-free Diet...any Ideas?
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My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

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My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

unless you lock up the gluten containing food.....take the house gluten free.

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Hello!

 

So your son is 6? 

 

Does he attend school? -- Are they careful in the classroom and at the lunch table?

 

Does he visit friends or family regularly?  -- again - how careful?

 

How many gluten eaters are in your home?  Does everyone wash their hands after handing gluten items?

 

Something is keeping the antibodies producing -- you need to find it. 

 

Has he had other positive antibodies?  EMA? DGP?

 

Has he had recent nutrient testing?

 

Hang in there -- you can figure this out :)

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My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

 

Other autoimmune diseases can keep tTg high so unless your doctor has repeated all of the Celiac tests in the panel, there is no way of knowing if he is being cc'd or if it's from another AI disease.  tTg should never be used alone for monitoring adherence to the gluten-free diet.  If your son's DGP or the AGA IgA is negative (low) then he is not being cc'd and should be tested for other AI diseases.  Thyroid disease is one of them and is very common with Celiac Disease.

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    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
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