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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

5 Yr Old Son Still Has High Ttg After 3 Yrs On gluten-free Diet...any Ideas?
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4 posts in this topic

My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

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My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

unless you lock up the gluten containing food.....take the house gluten free.

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Hello!

 

So your son is 6? 

 

Does he attend school? -- Are they careful in the classroom and at the lunch table?

 

Does he visit friends or family regularly?  -- again - how careful?

 

How many gluten eaters are in your home?  Does everyone wash their hands after handing gluten items?

 

Something is keeping the antibodies producing -- you need to find it. 

 

Has he had other positive antibodies?  EMA? DGP?

 

Has he had recent nutrient testing?

 

Hang in there -- you can figure this out :)

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My son is going on 4 years on gluten-free diet after being very sick and being diagnosed at 2 yrs. He's been on the diet now for that entire time but is antibody test came back the last three years over 90. We do have gluten food in the house, but really pay attention to cross contamination.

 

Doctors aren't sure...anyone go through this and have any other ideas of why this can happen?

Thanks,

Scott

 

Other autoimmune diseases can keep tTg high so unless your doctor has repeated all of the Celiac tests in the panel, there is no way of knowing if he is being cc'd or if it's from another AI disease.  tTg should never be used alone for monitoring adherence to the gluten-free diet.  If your son's DGP or the AGA IgA is negative (low) then he is not being cc'd and should be tested for other AI diseases.  Thyroid disease is one of them and is very common with Celiac Disease.

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