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Generally Much Better But New Symptoms Appearing
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I'm almost 5 months gluten-free and doing generally much better in terms of energy, intestinal problems (bar bad days here and there), mental clearness etc. However I am very surprised to see appearing new symptoms which seem to be typycally celiac and I did not have before. Such as: irregularity of my menstrual cycle and, most notably, the appearing of small pruriginous pustoles on my back, torso, buttocks, shoulders and back of knees. It is nothing major, just mildly annoying; it happens, recedes for a few days, then appears again. It looks very much like DH but I never had this before. Why should it appear when I'm gluten-free and doing generally better? Any advice? So frustrating...

thanks all!

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It means that you think you're gluten-free, but you're not.  You're gluten-light.  Look for sources of contamination you might be missing.  I tend to get hit with barley because labelling laws ignore it.  Check BBQ sauces, cereals, and chocolates for malt. 

 

Along that line, my fiance picked up two containers of dry roasted peanuts from the same manufacturer, and noticed that the larger container (even through it was the same brand, flavor, etc) had wheat starch in it, while the smaller did not.  Read every label, every time.  Lipton started putting barley in their French Onion soup mix, and I figured it out the hard way. :/

 

Also, do you eat out?  It doesn't matter how careful you are and how particularly people handle your food, restaurants will get you sometimes.  If someone handles a sandwich and then handles your food without changing their gloves, that can be enough.  The amount needed to have a reaction is smaller than is visible to the naked eye. 

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thank you. I am as careful as possible - I believe!. I do read labels carefully but of course there may be gluten in products where it is not specified. And it does happen that I have to eat out or at a friend's house. I try to stick to grilled fish or meat and potatoes. I must say, I spent two weeks travelling in London and Prague and I ate out practically every night and I didn't have a problem. I got back to Rome (where I live) and got sick almost immediately with no apparent reason (cramps, big D, flu like symptoms, the works. Unless it really was stomach flu...)

 

Keep trying, right?

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Yep, keep trying! :D

 

It is possible to develop new food intolerances Aleusey.  However, since your symptoms appeared suddenly after returning from a trip, I think it makes sense to consider either hidden cross-contaminatoin or possibly a bug or flu.  Or leftover symptoms from food on the trip that didn't really get going until your return.  After a few weeks it will probably be clearer though.  You could go back to basics food-wise for a week and see it it helps.

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Oh I have, thank you. I'm OK now. One of the benefits of feeling generally better is that I deal better with "bad" days. I mean I'm able to think now "it will pass"...

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Good to hear Alesusy.  Feeling better is great! :)

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    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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