Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Generally Much Better But New Symptoms Appearing
0

6 posts in this topic

I'm almost 5 months gluten-free and doing generally much better in terms of energy, intestinal problems (bar bad days here and there), mental clearness etc. However I am very surprised to see appearing new symptoms which seem to be typycally celiac and I did not have before. Such as: irregularity of my menstrual cycle and, most notably, the appearing of small pruriginous pustoles on my back, torso, buttocks, shoulders and back of knees. It is nothing major, just mildly annoying; it happens, recedes for a few days, then appears again. It looks very much like DH but I never had this before. Why should it appear when I'm gluten-free and doing generally better? Any advice? So frustrating...

thanks all!

0

Share this post


Link to post
Share on other sites


Ads by Google:

It means that you think you're gluten-free, but you're not.  You're gluten-light.  Look for sources of contamination you might be missing.  I tend to get hit with barley because labelling laws ignore it.  Check BBQ sauces, cereals, and chocolates for malt. 

 

Along that line, my fiance picked up two containers of dry roasted peanuts from the same manufacturer, and noticed that the larger container (even through it was the same brand, flavor, etc) had wheat starch in it, while the smaller did not.  Read every label, every time.  Lipton started putting barley in their French Onion soup mix, and I figured it out the hard way. :/

 

Also, do you eat out?  It doesn't matter how careful you are and how particularly people handle your food, restaurants will get you sometimes.  If someone handles a sandwich and then handles your food without changing their gloves, that can be enough.  The amount needed to have a reaction is smaller than is visible to the naked eye. 

0

Share this post


Link to post
Share on other sites

thank you. I am as careful as possible - I believe!. I do read labels carefully but of course there may be gluten in products where it is not specified. And it does happen that I have to eat out or at a friend's house. I try to stick to grilled fish or meat and potatoes. I must say, I spent two weeks travelling in London and Prague and I ate out practically every night and I didn't have a problem. I got back to Rome (where I live) and got sick almost immediately with no apparent reason (cramps, big D, flu like symptoms, the works. Unless it really was stomach flu...)

 

Keep trying, right?

0

Share this post


Link to post
Share on other sites

Yep, keep trying! :D

 

It is possible to develop new food intolerances Aleusey.  However, since your symptoms appeared suddenly after returning from a trip, I think it makes sense to consider either hidden cross-contaminatoin or possibly a bug or flu.  Or leftover symptoms from food on the trip that didn't really get going until your return.  After a few weeks it will probably be clearer though.  You could go back to basics food-wise for a week and see it it helps.

0

Share this post


Link to post
Share on other sites

Oh I have, thank you. I'm OK now. One of the benefits of feeling generally better is that I deal better with "bad" days. I mean I'm able to think now "it will pass"...

0

Share this post


Link to post
Share on other sites




Good to hear Alesusy.  Feeling better is great! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,146
    • Total Posts
      919,572
  • Topics

  • Posts

    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,178
    • Most Online
      1,763

    Newest Member
    Sarah.e.may9602
    Joined