Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Generally Much Better But New Symptoms Appearing
0

6 posts in this topic

I'm almost 5 months gluten-free and doing generally much better in terms of energy, intestinal problems (bar bad days here and there), mental clearness etc. However I am very surprised to see appearing new symptoms which seem to be typycally celiac and I did not have before. Such as: irregularity of my menstrual cycle and, most notably, the appearing of small pruriginous pustoles on my back, torso, buttocks, shoulders and back of knees. It is nothing major, just mildly annoying; it happens, recedes for a few days, then appears again. It looks very much like DH but I never had this before. Why should it appear when I'm gluten-free and doing generally better? Any advice? So frustrating...

thanks all!

0

Share this post


Link to post
Share on other sites


Ads by Google:

It means that you think you're gluten-free, but you're not.  You're gluten-light.  Look for sources of contamination you might be missing.  I tend to get hit with barley because labelling laws ignore it.  Check BBQ sauces, cereals, and chocolates for malt. 

 

Along that line, my fiance picked up two containers of dry roasted peanuts from the same manufacturer, and noticed that the larger container (even through it was the same brand, flavor, etc) had wheat starch in it, while the smaller did not.  Read every label, every time.  Lipton started putting barley in their French Onion soup mix, and I figured it out the hard way. :/

 

Also, do you eat out?  It doesn't matter how careful you are and how particularly people handle your food, restaurants will get you sometimes.  If someone handles a sandwich and then handles your food without changing their gloves, that can be enough.  The amount needed to have a reaction is smaller than is visible to the naked eye. 

0

Share this post


Link to post
Share on other sites

thank you. I am as careful as possible - I believe!. I do read labels carefully but of course there may be gluten in products where it is not specified. And it does happen that I have to eat out or at a friend's house. I try to stick to grilled fish or meat and potatoes. I must say, I spent two weeks travelling in London and Prague and I ate out practically every night and I didn't have a problem. I got back to Rome (where I live) and got sick almost immediately with no apparent reason (cramps, big D, flu like symptoms, the works. Unless it really was stomach flu...)

 

Keep trying, right?

0

Share this post


Link to post
Share on other sites

Yep, keep trying! :D

 

It is possible to develop new food intolerances Aleusey.  However, since your symptoms appeared suddenly after returning from a trip, I think it makes sense to consider either hidden cross-contaminatoin or possibly a bug or flu.  Or leftover symptoms from food on the trip that didn't really get going until your return.  After a few weeks it will probably be clearer though.  You could go back to basics food-wise for a week and see it it helps.

0

Share this post


Link to post
Share on other sites

Oh I have, thank you. I'm OK now. One of the benefits of feeling generally better is that I deal better with "bad" days. I mean I'm able to think now "it will pass"...

0

Share this post


Link to post
Share on other sites




Good to hear Alesusy.  Feeling better is great! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,778
  • Topics

  • Posts

    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,699
    • Most Online
      3,093

    Newest Member
    kkreuz
    Joined