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Who Has Done The "gluten Challenge" Before Being Tested?


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6 replies to this topic

#1 taynichaf

 
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Posted 26 April 2013 - 08:20 AM

I did one, but only for a week before my blood tests. I was in such pain the day I went to the doctors, but my tests were negative. Since he only tested like two things im going to a different doctor, but this time I want to make sure to gluten myself right, for accurate test results.

 

So who has done the challenge?? How long were you gluten free before the challenge? How long did you do the challenge? And what were your test results? (blood,endoscopy, anything else)

 

**I know I am gluten intolerant, but I want to make sure I can totally rule out celiac before I go gluten free for the rest of my life. And I like to know exactly what would be going on inside my body if I got glutened... if that makes sense...

 

 

Thank you everyone!! :)


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#2 taynichaf

 
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Posted 26 April 2013 - 08:34 AM

BTW, I'm seeing a doctor on monday, but I plan on just talking about my symptoms. I want to do the challenge for at least 6 weeks before any testing.. Im an 18 year old female.. If that mmakes a difference.


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#3 Deaminated Marcus

 
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Posted 26 April 2013 - 09:08 AM

Hi taynichaf

 

I went gluten free in October 2010 to relieve my fibromyalgia pain.

The doctor back then didn't want me to do a Celiac panel test which was bad advice.

 

The pain came back during 2011.

I thought it was gluten but I later realised it was other foods

and in January 2013 I did an IgG food intolerance test to confirm this.

 

I needed to do a Celiac blood panel because when I see specialists for medical problems and surgery they didn’t take my word for it.

And regular people thought I made it all up.

 

 

This was my Gluten challenge:

 

October 2010 to November 2012            gluten free

 

November 6 to December 6 - 2012         about 4 slices of bread / daily

December and January                          2 slices daily

February                                                

2 to 6 slices daily

March                                                    4 to 6 slices daily

up to April 18                                         10 slices daily         

 

 

 

I'm in lots of fibro pain now.

 

 

 

December 6 - 2012 I did the tTG-IgA test and it was negative.

 

April 18 - 2013 I did the Celiac panel and it was negative… darn!

 

…………………………………………………………………………………

 

The Celiac Disease Center says you should be eating gluten for 12 weeks prior to the Celiac blood panel.

http://www.curecelia...-celiac-disease

 

…………………………………………………………………………………….

 

Keep a written log of how much bread and gluten foods you are eating so that at the end of this gluten challenge you can be sure you did your best.

 

Be sure to eat a variety of gluten: white bread, brown bread, pasta.

 

 

 

You are very wise to be testing yourself now while you are young.

 

If when you are 30 or 40 and some medical problem comes along it will be important for you to know if you have Celiac or Gluten Intolerance as these are auto-immune diseases and auto-immune diseases come in groups.

 

If you test positive now, no one will be able to tell you it's all in your head.

You will be dedicated to your gluten free diet for life after this.

And you won't be wondering at 30, 40, or 50, is it the gluten?  like the rest of us who are trying to figure this out.

 

I know it's painful but you are young and if you can get a diagnosis now, positive or negative,

it will be done and over with and then you to move on with the rest of your life.

 

You are definitely doing the right thing.

I wish I had been as enlightened as you at 18 and had been tested.

 

(going off line now)

 

Marcus


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#4 taynichaf

 
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Posted 26 April 2013 - 09:33 AM

That's such a long time!! And the test was negative?! Ugh, sorryyy:(

I know this will be hard, but if I don't give myself the best possible glutening, I'll be wondering for the rest of my life. And I was scared to do the challenge before, but I understand that it's the best thing I can do right now..

thank you so much:)
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#5 ravenwoodglass

 
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Posted 26 April 2013 - 12:00 PM

Make sure your doctor does the newer DGP tests once you are finished with your challenge.

When you see your new doctor on Monday be sure to detail

 

 The symptoms you had before you went gluten free,

 How severe they were,

 How long you were gluten free and how strict you were.

 What symptoms resolved on the diet and did they resolve completely or just partially

 What happened when you challenged.

 

It might help to write things down.

Talk to the doctor about wanting to challenge again and retest. Do not hesitate to call the office and talk to a nurse if your symptoms get severe. Some can tough out the symptoms for the weeks they need to. Others become too severely ill to complete the challenge. Some doctors will advise you to stop the challenge if symptoms become too severe.

If you reacted to your first challenge you really know whether your body can tolerate gluten or not. I do hope you don't have too bad of a reaction, some just get milder symptoms so you may be lucky and be in that group.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 Deaminated Marcus

 
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Posted 26 April 2013 - 03:19 PM

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.


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#7 taynichaf

 
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Posted 26 April 2013 - 04:22 PM

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.

My doctor did an IgA test thing... and no, i don't suppose I have to tell my new doc! :)

 

Thanks guys!


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