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31 replies to this topic

#31 Gemini

 
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Posted 03 May 2013 - 08:29 PM

TSH isn't the most reliable. Many thyroid patients (and authors) are of the opinion that many doctors have lost the ability to treat thyroid patients by their symptoms since the almighty TSH was created. I agree with that based on my own experiences.

I posted that the TSH should be near a 1, and you are totally right that I did not word that well. I tend to slip into broad,sweeping statements like that when I am getting lazier with my responses. I should have written: Many hypothyroidism patients tend to feel their best when their TSH is close to a 1... I don't believe I have ever read that the same rule applies to euthyroid (normal) patients.

As for endocrinologists, I live in an area where they really only see patients with diabetes so thyroid patients just use their family doctors for the most part. Most of these doctors are discouraged from prescribing natural thyroid or T3. Many have to find a naturopath to give them that. It is a broken system (IMHO).

 

IrishHeart had some excellent advice and I agree that TSH is not the same for everyone.  But, then again, I think that TSH should be included in the diagnosis process for thyroid disease, along with the rest of the panel but not relevant when re-testing once on medication. Geez.......I keep mine suppressed because once it starts to rise just a little, symptoms return.  I think the last testing I had, earlier this spring, it was around .01....yes, you read that right.  My T3 and T4 are in good range, mid to upper and that's when I feel good with no symptoms.  Like Celiac for me, when things aren't right, I pop with in your face symptoms.  Makes it easy for me to keep track of things.

 

Thyroid can be a bit of a trick to stabilize because other hormone glands all work with it in a loop and they need to all play together well. Not so easy.......


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#32 IrishHeart

 
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Posted 04 May 2013 - 04:49 AM

As for endocrinologists, I live in an area where they really only see patients with diabetes so thyroid patients just use their family doctors for the most part. Most of these doctors are discouraged from prescribing natural thyroid or T3. Many have to find a naturopath to give them that. It is a broken system (IMHO).

 

It's the same here, N. and I agree about the "broken system" part! 

 and I was going from high to low.  It happens with Hashi's but luckily, it happened only once to me. Once was enough.

 

Do not take any T3 that is bought over the counter.  You really need to be having blood levels checked and get a good starting dose from a doctor. The trouble is finding a doctor, I know!  Be patient because you are newly gluten free and things can be wonky until your gut heals and things settle out. I hope you can find someone that may be able to help you better......I know how frustrating that can be.

 

same here. That swing thing was the worst. And, agree on the getting a baseline for a starting dose. Many people on here report having to adjust their meds (and those are meds of all kinds) after going gluten-free.

 

 

Thyroid can be a bit of a trick to stabilize because other hormone glands all work with it in a loop and they need to all play together well. Not so easy.......

 

which is why you need someone who understands how all the hormone glands work together  (which is supposed to be the ever-popular endocrinologist)

 

maddening, isn't it?  <_<


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