Hi everyone! I am new here. I have 3 children all with allergies and health issues but my youngest is the reason that has me searching for answers. It is being said that she might have celiac's and celiac's was mentioned with my middle child as well. i will give a brief (as brief as possible) description of what is going on and would appreciate any support/input you all may have. I am a bit overwhelmed and confused as to what is going on and what to do next.
Ok.. me.. I have always had tummy troubles. Had my gallbladder removed at 21 yrs old. My gallbladder was actually fine but the ducts connected to it were scarred shut. He said he had never seen this before but knew that was the cause of all my pain and vomiting. After i have felt better but do have low energy, irritable stomach and have developed morphia schlerederma (sp?). My hormones are always out of wake. menstral cycle is out of wack, loss of hair, skin issues, and fibroids.
Oldest child...son 6 yrs old.... he has allergies (casin, egg white, egg yoke confirmed by skin prick test.. environmental believe yet not confirmed). He also has Asthma like symptoms that seem to be brought on by seasonal allergies. he is tall and good healthy weight. Only really issue he has had is he always gets sick and he has had his tonsils and adenoids removed.
Middle child... daughter 4 yrs old... She has had issues since 2 months old. Started with reflux which seemed controlled with medicine. Then, at a year she began having hives. Allergy testing proved food and environmental allergies. (corn, carrot, egg white, egg yoke, barley, rice, peanuts, ALL seafood and numerous tree's). I was told at this point that she may need celiac's testing if she developed another gluten allergy. No other allergy testing has been done as of now. Since then she was relativly healthy. Had lots of issue's with bloating, green nasty poop's until about a 1 and a half ago... when it turned to constipation. And last June she began having red blood in her urine randomly with no other signs and no uti's. She is going to a kidney specialist in may. Constipation is somewhat controlled with Miralax daily and all food allergies have been food challenged and said to be fine for her to eat. weight and height has always been high and stayed there. Like in the 90% or off the chart for both height and 70% and above weight her entire life. She is tall and skinny.
NOW... this is where it gets crazy! Youngest child. She is 19 months now. She was born on her due date. She was a healthy size (8lbs 1 oz and 19.5 in) but did have hearing issues. She was ebf til 9mo's when foods were introduced staying away from top allergen's. And she still nurses 1-3x per day. More often only 1x at bedtime. OK.. so... at 2 wks she had a seizure. At that same time her breast became hugely swollen and produced milk when squeezed. No reason found for the seizure. No virus, no fever, no nothing. about a month after congestion started. It was terrible. Caused her to heave and work to vomit the mucus out. Even turning blue attempting to get it out. She did this for months. She was admitted to suction it out and relieve her. No virus, no fever, no reasoning given again. Her growth %'s stayed between 50-70 thru all this but at 9 months when the foods were introduced she dropped to 20% for both height and weight. She is constantly sick. It was believed to be allergies. Allergy testing proved wheat, rice and corn.Removed from diet but issues persist At a year the breasts still had not shrunk down and it was found that her fhs (estrogen) was high, she has a cyst on her ovary and infact has breast buds of a 9 yr old. She is in puberty. Now at 19 months, she is in the 9th% for weight and 6th% for height. she has begun having tan/white clay like poop's and they are looking into celiac's for her. She was on a "pretty much" gluten-free diet due to the allergies but is now on a strict gluten-free diet. I am still nursing and going gluten-free but gluten-free is hard to find around her so while i am doing my best i am not perfect. She also still has not proved to have hearing in one ear and her eye sight is slow but still on the normal curve.
I am not sure what to make of all this. If it is all associated with celiac's? Could it be? My doctor's are saying no.. that 2 things are going on.. seizure induced puberty and celiac's. I have someone who is a celiac insisting all this is celiac's and that she is reacting to the little amount of gluten in my breast milk. She is saying the seizure was the "trigger" for the celiac's. Is that possible. I know you all are not doctors. I am just trying to wrap my head around all this. Sorry it was so long. I am just not sure what is connected and what isn't? Please.. any help.. info... support... anything really. A bit overwhelmed by all the health issues and doctors.