Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Eosinophilic Esophagitis (Eoe)

4 posts in this topic

Good morning all!  It's been a long time since I've posted here.  I was diagnosed as Celiac at the end of 2007 and have since taken control of my disease and eating in a way that makes me very proud.  I host holidays like Thanksgiving, Christmas & Easter that are 100% gluten free and neither me or my family ever feels deprived.


But following up a month or so of recurring stomach pain, I made an appointment to see my gastro for the first time in a couple of years.  The pain was an upper abdominal burning sensation that would come and go and at some points was quite severe.  Of course, my gastro appointment was 3 weeks out, so I saw my primary care in the meantime.  He prescribed Nexium (shocker), drew some blood and sent me for an ultrasound which turned up nothing.  I had already put myself on a fairly bland diet to keep the acid to a minimum, was taking a 2 week course of Prilosec OTC, cut out drinking and limited my coffee/caffeine.


Fast forward to gastro appointment - he notes that in my bloodwork, my Eosinophils were high (the number was 12 and the high end of the range is typically 5-7), which he said indicates that I've most likely got some food allergies. He then flips through my chart and says that in my last endoscopy they found evidence of Eosinophilic Esophagitis (PS, I was never told about this finding... I did not get a copy of the report because the endo was just a follow up on my Celiac diagnosis... and at the procedure, he said there was no further evidence of Celiac disease present).


So now I had an endoscopy on Monday, 4/29 and he said there is clear evidence of EoE.  I had been sent for a "basic food allergy panel" blood test, but now I have no idea what the next steps are.  I'm 35, going on 36 in July.  Are there any other adults out there who have been diagnosed with EoE as adults?  I'm now eliminating things from my diet, but I feel very scattered.  What are the best ways to identify your EoE trigger foods?  This is much harder than Celiac because it's not just gluten and the trigger is now just a big mystery.


I found an allergist nearby that lists EoE as one of her specialties, so I will be reaching out for an appointment there.


I'm just very frustrated and looking to see if there is anyone that has dealt with this as an adult (most of what I read about EoE refers to very young children).  And also, my eosinophils were only a 12, which does not seem very high.  I wonder if that can indicate that my triggers may only be a couple of items.


Thanks for listening and for any help you can provide!


Share this post

Link to post
Share on other sites

Ads by Google:



Hi again - surprised that I didn't hear from anyone else dealing with EoE and Celiac Disease.  I got my Basic Food Allergy panel results back on Friday and it was kind of a shocking punch in the gut (no pun intended).


The RAST testing shows that I'm having IgE responses to:


Corn - Class 2

Eggs, Soy, and Peanut - Class 3


And now my journey begins again - through food labels and frustration and grocery store woes!


Share this post

Link to post
Share on other sites

Are there natural alternatives to Prilosec?


Share this post

Link to post
Share on other sites



I am a mom who has a daughter with Celiac and EE.


Early steps of EE diagnoses are to prescribe a modified steroid inhaler.  (modified to makes the droplets to swallow, not inhale.  It would be best to avoid this if you can, it can also cause a thrush infection.) 


We had to do an elimination diet to identify "triggers".  Gluten free, all top 8 allergens, and peas were avoided.  There was another endoscopy with biopsy to determine there was healing avoiding these allergens.  Then a challenge was done one at a time.  Watching for eosinophil reaction that once activated can cause damage for 12 days.


At least have some clear cut foods to avoid! 


You can try some foods that are the least likely to cause reaction during you elimination diet.  Slurpees, popsicles, cucumbers, lettuce, or other frozen foods do seem to soothe some of the irritation.


There are other adults who might PM you with advice.  There is a known connection between Celiac and EE.  In some cases gluten is the "trigger" for EE.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
    • What GEE EFF said!  Look for incubators, some business schools and even community colleges will have classes  about starting your own business & info about financing one.   There is a lot more to a business then just making and selling and getting someone else to buy the food  Taxes - paying and collecting in different cities or tax zones, health department codes, liability insurance (vehicular and general business ), renting a health dept approved kitchen,  a small business lawyer to help you "become a real company", permits, "booth fees", etc.  You can probably avoid some of it right now, just selling at a local farmer's market.   add- You might check with your state.  Some states have funds or low interest loans.  It helps if you are a "minority".  
    • i've researched a little about the genes i have you can find out if they are assosciated with other illnesses/autoimmune diseases. but i don't think knowing the details of every gene is going to help diagnose you any futher than just knowing you have the gene becuse either way it just means you have an increased chance.  if you're iga deficient did you have ttg igg as well?
    • I don't know if there are any grants specifically for gluten-free products Ennis.  But the SBA in USA deals with small business startups and may have information to help you.   There may be small business incubators in your area also.  Sometimes they are associated with university business schools and the SBA.  Marketing a product commercially and labeling it gluten-free is a possible issue though.  There are now FDA rules on labeling products gluten-free.  So you need to study those before getting to far into it.
    • Hi, WinterSong. What a lovely screen name! I don't know if what I have to share will be at all useful to you, but I often get areas of what is known as seborrheic dermatitis on my face and neck. They are common in front of my ears and around the chin - as well as in the folds near the nose and at the base of the neck. These patches are rougher than my normal skin, which is rather light and sensitive. These patches can appear whitish or pinkish in tone. I can get little flaky areas around my brows or even eyelashes that look almost like dandruff also. I seem to get these when I am eating more sugar than usual (i generally eat no to very little sugar) or when I have let up on my water drinking or am experiencing undue stress. The most effective method (for me) to address these patches is a combination of drinking lots of water and washing the areas with (believe it or not) dandruff shampoo; I was told to make a thick application of it and leave it on the areas for one to three minutes before rinsing thoroughly. It usually takes several applications over several days, but so far the protocol has cleared these patches, every time. I am recognizing and treating them sooner now. Your general physician or dermatologist could likely diagnose your trouble and suggest treatment for you, based on the diagnosis. Seborrheic dermatitis is fairly common and doctors may have other specific treatments as well when that is the diagnosis. I use good skincare products (gluten-free!) and find that ensuring that my skin is clean and well-hydrated, morning and evening, also helps avoid or treat flareups, which can be bothersome. I hope this information will be helpful to you in some way, WinterSong. Best to you! Mireille
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member