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What Other Communities/forums Are You A Part Of?


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14 replies to this topic

#1 JoshKelly

 
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Posted 03 May 2013 - 04:27 AM

Hey folks:

 

Looking for more gluten-free and celiac disease places to try out around the web. What other gluten-free-related forums or online communities are you a part of?

 

Do you recommend them to a newbie? At all? Why or why not?

 

 

Some of the communities I've come across:

 

Gluten Free Gigi

Gluten Dude

Gluten Free Club (Paid Membership)

 

...but I can't really review any of them because I have barely gotten to know them


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#2 notme!

 
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Posted 03 May 2013 - 07:39 AM

hi joshua,

i mostly use other websites regarding celiac/gluten free when i am trying to cook/look for recipes.  lolz and usually when i google something it comes back to this forum as one of the results of search. i'm sure there are other good ones out there, and as celiac becomes more 'mainstream', there will be even more options :)  i guess i just like the people here.  not to mention they save my sanity on a regular basis!  

 

 


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

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have a nice day :)

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#3 IrishHeart

 
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Posted 03 May 2013 - 08:35 AM

I visit quite a few blogs for nutritional info, recipes, articles  and it's no secret that I am a frequent contributor to the Gluten Dude site. He makes me laugh and he discusses topics (often irreverently humorous) that may not be discussed here and it's just a different perspective about living as a celiac. 

 

....but mainly,  this is my "home"  :D The majority of the peeps on this site are supportive, loving, celiac-savvy and crazy fun. And there is more medical information and links to reputable websites to be found here than any other place, IMHO. We try to provide up-to-date and current info and encouragement from the pre-diagnosis phase through healing and recovery and beyond.

 

Tons of information all under "one roof" so to speak.

 

C.com was instrumental in saving my life. That's the truth.

 

And a big welcome to you,  Josh! 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 nvsmom

 
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Posted 03 May 2013 - 09:15 AM

I honestly haven't used any others, I found this one and stayed.  :D  I am a member of other forums for other health issues I have but they are not (unfortunately) as helpful or supportive in their areas as this site is for celiacs.  IMHO.

 

I think I'll look at the sites you mentioned though. :)


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#5 dilettantesteph

 
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Posted 04 May 2013 - 06:37 AM

This one was my first.  I used to check out two others that are no longer in existence.  One of them has moved to braintalk. communities.  It used to be Gluten Free and Beyond.  Those guys are really good at reporting on the latest literature.  That's something that really interests me with my science background.  I'm a little lazy at doing searches and I love it that someone does it for me.  I help out at another one that broke off from this one.  It caters more to super sensitive celiacs, and started before there was a super sensitive section here.  Since I am involved with it as a moderator, I am not allowed to promote it according to the board rules.  I like Jane Anderson at about.com for information and the latest literature as well.  There are countless smaller sites with recipes and coping strategies.  Isn't the internet wonderful?!


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#6 JoshKelly

 
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Posted 04 May 2013 - 07:26 AM

You guys rock! Thanks for the info. Maybe that's why more people aren't coming in here and mentioning the online project they're working on is that it is strictly against board rules...? Can you not even say the name if you are working on it...? hrrmmmm....

 

I also just came across another crazy one... I don't know if its still active but this Chiropractor seems to be selling a program where you eliminate all grains as a Gluten Free Healing thing. It seems pretty bogus to me but they have over 2000 registered members on the forum and over 40,000 facebook likes. I think its called Gluten Free Society... Anyone know anything about this guy?

 

While we're at it, anyone have a good list of gluten-free magazines and Newsletters?

 

I know about...

Gluten Free Living Magazine

Journal of Gluten Sensitivity

Gluten Free Gigi's Monthly Newsletter

 

What else? 


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#7 1desperateladysaved

 
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Posted 04 May 2013 - 08:04 AM

I like to get help from a certain website that focuses in on super sensitive.  I can't print the name as the forum zaps it.

 

Diana.


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#8 Lisa

 
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Posted 04 May 2013 - 08:48 AM

  I can't print the name as the forum zaps it.

 

Diana.

<snicker> :P


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Lisa

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#9 GFinDC

 
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Posted 04 May 2013 - 04:56 PM

"Living Without" is another magazine.

 

Delphi forums has a celiac disease group.  You probably need to  create  free Delphi forum account to view it.

http://forums.delphiforums.com

 

Psych Central's Chronic conditions section has some celiac threads.  It is not dedicated to celiac tho.

http://forums.psychc...ac-disease.html

 

Medhelp  celiac section.  Seldom look at this one as it is the pits for moderation.

http://www.medhelp.o...isease/show/226

 

I don't look at any of these forums on a regular basis.  Celiac com is the best one around for celiac information IHMO.

 

There are lots more of them.  I think the major celiac support organizations have forums also, but I seldom look at them.

 

 

 

 

 

 


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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#10 IrishHeart

 
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Posted 04 May 2013 - 05:13 PM

 

 

I also just came across another crazy one... I don't know if its still active but this Chiropractor seems to be selling a program where you eliminate all grains as a Gluten Free Healing thing. It seems pretty bogus to me but they have over 2000 registered members on the forum and over 40,000 facebook likes. I think its called Gluten Free Society... Anyone know anything about this guy?

 

 

I would not bother.

 

Living Without magazine is very good. 


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#11 pretty in paleo

 
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Posted 04 May 2013 - 08:15 PM

I would not bother.

 

Living Without magazine is very good. 

I am on a grain free diet and feeling quite good! There might be something to that.


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#12 srall

 
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Posted 04 May 2013 - 08:39 PM

I am on a grain free diet and feeling quite good! There might be something to that.

 
 
I have seen a lot of posts poo-pooing this particular "doctor" (actually I think he's a chiro) but I have to say the only way I feel really good is grain free.   I know it's not the solution for everyone, but if someone is looking for that final "oomph" then grain free might be the solution.


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#13 IrishHeart

 
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Posted 05 May 2013 - 04:25 AM

For the record, I was not speaking negatively or otherwise about a grain free diet. It  works well for many people. 

I've been on it myself. :)

 

Josh asked our opinions about other G F sites and communities, right? Well....

.

I said "I would not bother"

 

because  honestly, I  just can't see BUYING any programs just to get info about going grain free.

 

Plenty of informative paleo sites that offer valid information and support for free out there!

 

Mark's daily apple

Elana's pantry

Robb wolf

 

are a couple that I  think are very helpful.. 


  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 srall

 
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Posted 05 May 2013 - 06:51 AM

For the record, I was not speaking negatively or otherwise about a grain free diet. It  works well for many people. 

I've been on it myself. :)

 

Josh asked our opinions about other G F sites and communities, right? Well....

.

I said "I would not bother"

 

because  honestly, I  just can't see BUYING any programs just to get info about going grain free.

 

Plenty of informative paleo sites that offer valid information and support for free out there!

 

Mark's daily apple

Elana's pantry

Robb wolf

 

are a couple that I  think are very helpful.. 

 

 

For the record, I was not speaking negatively or otherwise about a grain free diet. It  works well for many people. 

I've been on it myself. :)

 

Josh asked our opinions about other G F sites and communities, right? Well....

.

I said "I would not bother"

 

because  honestly, I  just can't see BUYING any programs just to get info about going grain free.

 

Plenty of informative paleo sites that offer valid information and support for free out there!

 

Mark's daily apple

Elana's pantry

Robb wolf

 

are a couple that I  think are very helpful.. 

 

I agree.  No need to spend  money on a program when there is so much free info available.  I just know grain free was the final chapter in my journey to feeling good...actually paleo because the sugar and wine are problematic too.  So there are also some great paleo sites when people are ready for that.  I love Whole 30 and even PaleoHacks.


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#15 Celiac Mindwarp

 
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Posted 05 May 2013 - 12:22 PM

Interesting question :)

I have looked around for the last year, and I keep going back to Gluten Dude, Whole30 (I am grain free except rice), Mark's daily apple and the university of Chicago site (for information).

Good luck :)
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
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