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22Yr Old Male, 130Lbs , Possible Celiac?
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3 posts in this topic

I have been reading a lot lately on celiac and it seems that I could be a candidate for celiac disease. My gluten-free seems to also be convinced that I must have this.

 

For one, I am underweight and it is seemingly impossible to gain weight. I seemingly have many of the most common symptoms but the one that stuck out most to be is acid reflux. From what I've read this is only common in males. It is very very easy for me to get terrible acid reflux at night and it will keep me awake until I take pepto bismol or a few antacids. I will get acid reflux even when I don't eat before going to bed. 

 

The second symptom that stuck out most to be are my bowel movements. From what I understand if I have floating stools then there is a chance that I could have some kind of malabsorption. Depending on what I eat my bowel movements are sometimes quite painful. For example foods high in fat such as Mcdonalds will cause stomach pain around the abdomen and bad bowel movements. 

 

My next symptom I don't know what it could do with but I was hoping someone could help me. I have a somewhat physical job and sometimes when I am working, notably after drinking something with caffeine or eating something i get a dull pain on my lower left abdomen where my side meets my hipbone, its always on the left and always in the same spot and it isn't a pulled muscle. 

 

Anyway I was looking to see what others thought , thanks for any advice.

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This is a sample Celiac panel.   You have to be eating bread and gluten before doing this blood test.

 

Total IgA
Transglutaminase IgA tTG-IgA
Deaminated Gliadin IgA DGP-IgA
Deaminated Gliadin IgG DGP-IgG

 

 

I resolved my night time reflux when I stopped using pepper on my food.

 

Some of the symptoms you describe could be something serious so do go see a medical doctor.

Tell him-her everything you wrote in your post.

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It could very well be celiac disease or NCGI (non-celiac gluten intolerance). Marcus listed most of the blood tests that test for celiac disease, you could also request the tTG IgG, EMA IgA, and the AGA IgA or IgG (which are older tests). You must be consuming gluten I the weeks prior to testing.

If your celiac test come back negative, you could have NCGI. Unfortunately there is no test for it other than to eat gluten-free and observe if your symptoms change over the following weeks or months.

Good luck. I hope you feel better soon.

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    • Based on the information you have posted today, the most likely probable reason for your being ill is that you are getting glutened!  Here is a biggie....does your hubby brush his teeth prior to kissing you?  Seriously, it can happen, but going out to eat a lot.....that is just as bad!  
    • I got glutened last summer.  Heck, I do not even know what glutened me, but I suspect two products that my gluten-free hubby never consumed (he is my canary).  My symptoms were so different from when I was diagnosed (just had anemia then).  My GI thought I had SIBO or something else, but I asked for a celiac panel.  Yep, I had been Glutened!  Took me three months to recover and another three to regain lost weight.  Yeah, I picked up another health issue on the way (hives, rashes, swelling, itching, ab pain, vomiting, and fainting.)   I did not eat out for one year!  Only this summer, I did.  Was it worth the risk?  You bet!  Three weeks in Europe.  Fortunately,  7 days was on a cruise and Celebrity did a great job.  Italy was so celiac-savvy and I did my research and found places recommended by other celiacs in Spain, France and Poland.  If not, we bought cold food at the market and had a picnic.   I am home.  Will I eat out?  Probably not.  I have a busy Fall ahead of me (High School....football, marching band, volunteer positions, house projects, and work).  I can not afford to be sick.   Ah, I will eat out this Thanksgiving break.  My favorite restaurant is 100% gluten free in Tucson, AZ.   Maybe I will discover another gluten-free restaurant closer to home! 
    • I do est out occasionally - but not indiscriminately.  I am careful to choose places that under stand gluten free.  And places that the food is naturally gluten-free, helps, too.  Celiacs can't just eat something that should be gluten-free and hope it is.  We have to use some common sense and ask questions.  
    • You are right that the next step is an endoscopy, which still is the "gold standard" in diagnosing celiac disease.   However, for various reasons the endoscopy is not done because financial contraints  or long wait times (up to a year!), or too ill to proceed.   You have two positives.  You only need one positive to move forward.    The TTg tests  do not need to be positive for a diagnosis (which requires a positive on an antibodies test which you had and an endoscopy).  My TTg tests were negative and I only had a positive on the DGP IGA, yet biopsies revealed a Marsh Stage IIIB (moderate to severe damage. http://www.cureceliacdisease.org/screening/ Unless your PCP is a celiac expert (unlikely), I would insist on a GI consult.   Please find one who is celiac-savvy.   keep eating gluten daily until all testing is complete (biopsies done).  You never know if lab results are going to get lost.  Besides any celiac testing requires the patient to be on a gluten diet.  In the meantime, keep on researching.  Only YOU can be your best health advocate!  
    • I'm having some issues, that I didn't really even know I was having until the blood work showed them. Retracing my steps, I eat very strictly gluten free at home. I eat too much dairy (which is not only a problem for many celiacs, it is also not an anti-inflammatory). The husband and I have eaten out a lot over the last three years of my diagnosis. I guess I have not been overly cautious as I should have been, which I'm guessing could be my problems (although I am seeing the GI doctor tomorrow). So, I'm wondering if anyone here no longer eats out ever? Were you eating out and realized you were still doing yourself damage? 
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