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Strange Rash On Neck
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I have been gluten free for about 6 weeks and recently, in the last week, I have developed this strange rash on my neck.   It's itchy as heck.  Nothing has worked to stop the itch.  It's red and blotchy and the skin almost looks like a burn scar, with bumps all over it.  It doesn't seem to be going away.  I have checked my two daily medicines, and both are reported to be gluten free.  I just called and made an appt with the local walk in for later today but was wondering if anyone has had this happen before?   The rash is all over the front of my neck, in the same location as my thyroid, which doesn't work as well as it should and I take levothyroxine.   I haven't been able to figure out anything that could be causing it.  I have been really careful to avoid CC.  Any thoughts??   Thank you in advance!

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Read the dermatitis herpetiformis section of the forum. See if rings any bells.

If you are undergoing celiac testing DO NOT use steroids for the rash. It will interfere with testing.

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I had the same thing happen to me! I've had a very mild rash on the right side of my neck that would appear and disappear over the last year. I had both my doc and naturopath look at it. Doc said allergy to something I wear naturopath said thyroid. Then five days ago after being in the sun for a short time I broke out with this same rash all over the front of my neck. First it itched insanely then after a day it started to burn and blister. I have been gluten free for the last six weeks. I follow a paleo diet, and I decided to eat a slice of carrot cake and ice cream that afternoon while sitting in the sun at a picnic. I lived with it for a few days hoping it would go away or at least calm down. I finally went to a walk in clinic yesterday and the doc gave me some steroid and antibacterial cream. Overnight it has taken away the blistering but now I am left with what looks like scales on my neck. The skin is severely dry. I am seeing my naturopath tomorrow and hoping he can help me figure out what is happening. It is very frustrating. Even though the walk in doc said the rash is unlikely from something I ate, I am still hesitant to eat anything. I'm at a loss as to what is causing it. It is not anything I am putting on or near my neck like my doc insists. I've paid close attention to all that over the last year.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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