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Gluten Challenge = Symptoms Ive Never Had?


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#1 taynichaf

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Posted 04 May 2013 - 12:21 PM

Or maybe I never noticed?? But I'm starting to get sores on my gums that are turning into ulcers.. Is this a gluten intolerant thing? Or does it indicate lactose intolerance?


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Gluten Free 06-02-2013

Dairy Free 06-09-2013


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#2 IrishHeart

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Posted 04 May 2013 - 01:35 PM

Some people do get mouth sores or ulcers and have issues with their gums from gluten (I surely did)

and it is possible that a gluten challenge has sparked these symptoms.

 

How long were you gluten free before the challenge? How long have you been back at it and when is your test?


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 taynichaf

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Posted 04 May 2013 - 01:50 PM

Some people do get mouth sores or ulcers and have issues with their gums from gluten (I surely did)

and it is possible that a gluten challenge has sparked these symptoms.

 

How long were you gluten free before the challenge? How long have you been back at it and when is your test?

I dont know for sure how long I was gluten free... I only found I had a gluten problem by doing a low carb/high fat diet for two weeks, and then I ate a bunch of gluten followed by random stomach pains for like a week. So i started research, and then would try gluten free for a week and then eat again and I've done that for awhile. Also, Since the begining of the year I started eating very clean and healthy, natural foods, and this is when my depression symptoms started to get better.

 

I have been eating a lot of gluten for almost 2 weeks now... Im mainly eating unhealthy stuff that i havent had in so long too. And im gaining crazy weight! Never really hungry, but i keep eating because im never satisfied.. and my breathing is fraking terrible lately! I have to sit down for a long time just to catch my breath... and im an 18 year old girl! I shouldnt be having these problems!


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Gluten Free 06-02-2013

Dairy Free 06-09-2013


#4 GottaSki

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Posted 04 May 2013 - 03:45 PM

I dont know for sure how long I was gluten free... I only found I had a gluten problem by doing a low carb/high fat diet for two weeks, and then I ate a bunch of gluten followed by random stomach pains for like a week. So i started research, and then would try gluten free for a week and then eat again and I've done that for awhile. Also, Since the begining of the year I started eating very clean and healthy, natural foods, and this is when my depression symptoms started to get better.

 

I have been eating a lot of gluten for almost 2 weeks now... Im mainly eating unhealthy stuff that i havent had in so long too. And im gaining crazy weight! Never really hungry, but i keep eating because im never satisfied.. and my breathing is fraking terrible lately! I have to sit down for a long time just to catch my breath... and im an 18 year old girl! I shouldnt be having these problems!

 

Well it certainly sounds like you have an issue with gluten -- how long are you going to eat gluten for the challenge?  Is this a challenge to have celiac antibody testing done?  If so, make sure you have the complete panel along with key nutrient testing.

 

For now...there is no need to overdo the gluten -- if you were improving after removing gluten -- I would not overdo -- a slice or two of glutenous bread per day is sufficient according to the top celiac research centers -- I also suggest eating it late in the day so that your symptoms may be limited to night hours rather than taking you out for the whole day.

 

Hang in there and let us know if you have more questions :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 ravenwoodglass

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Posted 05 May 2013 - 05:23 AM

It sounds like you are one of us who is being effected neurologically. Celiac can impact brain function and be a direct contributor to problems like depression. Antidepressants often don't help and can at times make things worse. Don't let your doctor push you onto them if the diet itself relieves those symptoms. Celiac can also cause inflammation which can contribute to asthma. I had asthma for years and was on both singulair and an inhalor. Both of which I haven't needed since diagnosis. If breathing problems get severe do contact your doctor and let the doctor know you are doing a challenge for testing. Writing down your symptoms that have resolved when you were gluten free and the ones that have appeared during the challenge can be helpful.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 Deaminated Marcus

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Posted 06 May 2013 - 01:26 PM

May 6 - 2013


Hi taynichaf

I don't have mouth ulcers but I did read it is related to Celiac.
It could be caused because you are not getting enough or not
absorbing enough vitamin B due to the damage to the small intestine's villi.

Are you a vegetarian?

While some people supplement with just a B12, I think it's best to use a supplement with all the B vitamins.

You can always cut the B supplement in half.

Vitamin C is also important for gums.
You can get it from a pill or eat an orange or a grapefruit per day.

You could also get a multi vitamin to cover all the bases.

This is just a band aid solution till you find the true cause of your health problems.
The irony is that bread has vitamin B. But as you can see it's not working for you.

................................................................................................

You asked if lactose intolerance can cause the oral ulcers.
The main symptom of lactose intolerance is bloating and diareah.
Undigested sugar causes diareah.
So I don't think lactose intolerance can cause mouth ulcers.
If you find an article, let us know.

However, "Bovine Beta Casein Enteropathy" (from dairy) also
causes small intestinal villi damage so that could be a culprit.

http://glutenfreewor...illous-atrophy/

You could try dairy free for week to see if that helps but you should be on the dairy prior endoscopy.
If milk causes bloating and diareah then try hard cheeze.
Hard cheeze doesn't have lactose. (read the nutrition label see if it says zero sugar).

................................................................................................

About your breathing difficulties...

That is not good and you are right to be worried.
You are a non smoker right?

I'm having that too and it started last summer while I was gluten free.
I did see a lung specialist and I got a puffer.
I get a vapour feeling. Do you have that?
I had it last Sunday after a big meal too so I suspect it's caused by bloating which sounds like your case.

As I said above, dairy causes bloating in some people.
Did you try going dairy free for a while?
You could use some almond (milk) breverage instead.
Just don't go overboard with it as a regular drink.
I just drink water.

My PCP is sending me to have a heart monitor test to see if my breathing difficulties are due to a heart problem.

I hope your doctor finds out what is causing your breathing difficulties.

You should also go see an allergist for the arm scratch test.
It is important to find out which IgE mediated allergies can be
causing your breathing difficulties before going on drugs.

.........................................................................................

For the gluten challenge just eat 2 white bread slices and 2 brown bread slices per day (up to 6 slices).
Don't eat cakes, cookies and donuts as they are loaded with added sugar.
Pizza has a lot of fatty cheeze and meats on it.

Eat fruits and vegetables or salads, meats-fish-eggs.

...........................................................................................

It's important to find out what is the cause of your problems before assuming it's Celiac or gluten.

It could be a combination of things.

............................................................................................

PS: read this web page to see if it's what you have:

http://www.uhs.nhs.u...hnsdisease.aspx

...........................................................................................

Sorry for the long post, my aspergers causes me to be thorough.

Good luck and keep us posted, Marcus



 


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#7 kareng

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Posted 06 May 2013 - 02:06 PM

May 6 - 2013



For the gluten challenge just eat 2 white bread slices and 2 brown bread slices per day (up to 6 slices).
Don't eat cakes, cookies and donuts as they are loaded with added sugar.
Pizza has a lot of fatty cheeze and meats on it.
Eat fruits and vegetables or salads, meats-fish-eggs.


I'm just going to try to clear this part up:

http://www.curecelia...luten-challenge

"What is a gluten challenge?
A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.
Prior to blood testing we recommend 12 weeks of eating gluten.
Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.
In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy."
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