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Nightshade Intolerance


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#1 Felidae

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Posted 10 October 2005 - 11:46 AM

I have been gluten-free since June and I just figured out that potatoes are making me very sick. Does anyone know why we get other food intolerances after going gluten-free? Also, can some people eat other members of the nightshade family? I have been too scared to eat tomatoes, peppers, etc. because the potato reaction is very painful and lasts a long time.
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Tapioca intolerant
First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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#2 elisabet

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Posted 10 October 2005 - 11:52 AM

I have been gluten-free since June and I just figured out that potatoes are making me very sick.  Does anyone know why we get other food intolerances after going gluten-free?  Also, can some people eat other members of the nightshade family?  I have been too scared to eat tomatoes, peppers, etc. because the potato reaction is very painful and lasts a long time.

<{POST_SNAPBACK}>


Yes,we also find out that our son have had allergic reactions to potatoes,tomatoes and peppers.Do you get a delayed reaction or you can feel it at once?
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#3 Felidae

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Posted 10 October 2005 - 12:06 PM

I have stomach pain within a couple of hours of eating potatoes. I only figured this out because I got very sick after eating breakfast, and I had been writing down everything I was eating for the past two weeks. I checked the ingredients of the waffles, and potato starch was the second ingredient. So I linked potatoes as the culprit of past two weeks.
  • 0
Tapioca intolerant
First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

#4 skbird

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Posted 10 October 2005 - 01:16 PM

Wow, I'm always excited to see someone mention this because I don't know anyone with this problem, except me. I can't eat any nightshades and have been off of them for 6 years. I used to get so sick from eating rattatouie (tomatoes, peppers and eggplant) that it was unreal. I don't get sick right away, usually, but have within two hours. Usually it's more like 12 hours and very painful in my stomach/gut and have migraines. Lasts a couple of days.

I have done research and found it seems to be a toxic reaction, not an allergy, at least in my case. The symptoms are very much like the food poisoning people get after eating potatoes with green skin on them. The active ingredient that seems to be the culprit is solanine. But I'm not certain it's the only problem alkaloid in these foods.

I figured this out for me before finding out about gluten and the symptoms for me are similar. I cannot tolerate even small amounts, like paprika on deviled eggs. I have gotten sick from smelling peppers cooking. I have also gotten sick after touching a cutting board with pepper juice on it (from a friend who was cutting them up for a party) - I washed it in hot soapy water and then made the mistake of wiping my face with my newly-washed hand, which made my skin burn and then made me sick for two days.

Best I can tell, some people don't make the enzymes to break down these alkaloids which in turn cause a poisonous or toxic reaction. This has not gotten any better for me since going gluten free, either.

It's a bummer because so many gluten free baking products contain potato... Sigh.

Anyway, you're not alone or crazy to have these reactions. I have since found that kava kava is a nightshade - would give me headaches every time I took it, finally looked it up and yep, a nightshade. Also noticed I can instinctively spot nightshade family plants out in the open and fear them, like Jimson Weed and even Petunia! And tomatillos are also nightshade.

Here's an interesting link about nightshade-free food products in the UK:
Nomato
Article about nightshades

Also a good page about nightshade intolerance, though it focuses on arthritis:
From Allergy Magazine

Hope some of this is helpful to you...

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#5 skbird

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Posted 10 October 2005 - 01:18 PM

One more thought - a decent coping strategy I have discovered is as soon as I eat something with nightshades in it, if I figure it out (usually pretty obvious) I take 8-10 activated charcoal tablets and drink lots of water. My doctor suggested this and it does seem to help. Still get sick sometimes but not as bad as I have.

Good thing to keep on hand.

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#6 elisabet

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Posted 10 October 2005 - 01:30 PM

One more thought - a decent coping strategy I have discovered is as soon as I eat something with nightshades in it, if I figure it out (usually pretty obvious) I take 8-10 activated charcoal tablets and drink lots of water. My doctor suggested this and it does seem to help. Still get sick sometimes but not as bad as I have.

Good thing to keep on hand.

Stephanie

<{POST_SNAPBACK}>

Stephanie,Thanks for sharing this information.What is charcoal tablets?
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#7 skbird

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Posted 10 October 2005 - 01:38 PM

I find them at the health food store. The brand I have gotten is Nature's Way. They are gelatin capsules filled with some kind of charcoal. What the charcoal does is cling to toxins and other things (even nutrients so you don't want to take them all the time) in your stomach/digestive system. They kind of buffer what you've eaten. The label says to take 2 as a dose but my doc said try 8-10 for an effective dose. They have helped me out of a couple of jams. I used to carry a bottle with me everywhere but I hardly eat out anymore so I don't worry as much about it.

Here's a link:
Nature's Way Activated Charcoal, on drugstore.com

Glad to be of help.

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#8 Felidae

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Posted 10 October 2005 - 02:27 PM

Thanks for the info. Stephanie. I did read your past posts on this topic. It is just such a strange thing to have. I'm afraid that my doctor will think I am crazy if I mention it. I wonder how common this is and if there is any current research being done on it.
  • 0
Tapioca intolerant
First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

#9 skbird

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Posted 10 October 2005 - 03:59 PM

Then you probably read about how I ended up learning a lot from calling a poison control center though that guy was incredulous, too. And I called a gastroenterologist and they said call the allergist so I called the allergist and they said call the gastro. It's a nutty thing, and it was only when I flat out told a doctor that this is what happens that I got someone to take it as real. No doctor can explain it to me though.

One time I'd had some soup that had a pepper in it and it wasn't until it was in my mouth and I tasted it that I figured it out. I spit it out but went to my walk in clinic and said "I have a bad reaction to nightshades and I just had a pepper in my soup." They said, "what happens?" and I said I get a very painful upset stomach and a migraine, and they last up to 3 days. So he gave me the charcoal and some migraine meds (Frova, a triptan) and I took the charcoal first (would have nullified the Frova if I took at the same time) and the Frova later. I only marginally felt sick.

Incidentally, that is also how doctors finally believed I have migraines, not tension headaches. Because triptans don't work for just tension headaches, have to be migraines, or so it's been explained to me. (I do think I have since read some triptans work for some tension headaches). Anyway, about 80% of the headaches I get respond to triptans so now doctors believe they are migraines. Which is a relief because I was tired of being told I needed to relax, etc. :)

I don't know if your doc will believe you but print off some stuff from the internet and explain away. The more people make other people aware of ailments like this, the more understanding there will be.

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#10 vancems77

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Posted 13 October 2005 - 03:44 PM

Hi, I don't have the issue with nightshades but I was seeing an acupuncturist and she had me do an elimination diet which eliminated practically everything including all nightshades. So, it seems like it's known to at least nutritionists that they could be a problem, and I would trust a nutritionist a million times more than a doctor regarding food issues.
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#11 Ursa Major

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Posted 17 October 2005 - 12:50 AM

Hi, I also have a bad reaction to all nightshades. Potatoes give me terrible bowel problems (usually by the next day), tomatoes give me migraines and some bowel problems, and I'm not sure what peppers do exactly, but I have no intention of eating any to find out!
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#12 skbird

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Posted 17 October 2005 - 08:29 AM

You sound like me, Ursula! Wow, I'm sorry people have these reactions but am glad to know I'm not alone.

Take care

Stephanie
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Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#13 Mr J

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Posted 20 October 2005 - 01:41 AM

Hello, i don't have a nightshade intolerance, i tried a food elim test on that - this is fortunate as I only eat Thai food when I am with my wife - the other common food we used to enjoy was italian but thats got thrown out the window now... I tolerate the red hot chillis.

However from hanging out on another message board, I have noticed that many of the things that bother children with autism also bother the gluten intolerant. On this board there seems to be problems with nightshades, however the autism experts talk about "phenols" and "amines" instead. Nightshades are hi in phenols, so just a thought - maybe the nightshade intolerance is a phenol intolerance? There is info on what foods are hi in phenols and amines on the net, so you can search on that. I take an enzyme supplement called "No Phenol" by Houston enzymes for other reasons (good at breaking down plant fiber and yeast) - this product is designed for the phenol intolerant.
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age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#14 skbird

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Posted 20 October 2005 - 10:20 AM

Thanks for the tip, Mr. J. I am always looking for clues on this one, I'm like Nancy Drew...

I'll look it up.

Stephanie
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Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#15 skbird

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Posted 20 October 2005 - 10:26 AM

OK, this is quick and dirty, but found this list and while I have troubles to varying degrees with some of these, they are not similar to my nightshade reaction so I think for me phenols are not the culprit:

Here is a short list of high phenol foods, which you would want to eliminate or at least reduce to prevent overload, is food dyes, tomatoes, apples, peanuts, bananas, oranges, cocoa, red grapes, colored fruits, and milk.

Here is the Feingold list of highly phenolic/high salicylate foods: Avoid anything -- food, toiletries, cleaning supplies, art supplies -- that has any of the following ingredients: Synthetic/artificial colors and flavors [for example, FD&C colors, vanillin], BHA, BHT, TBHQ, [all the preceding are made from or related to petroleum], Natural Flavoring (may contain salicylate), Natural Coloring (may contain salicylate), Aspirin and products containing aspirin or salicylic acid, Salicylates, Almonds, Apples, Apricots, Berries (all), Cherries, Chili powder, Cider & cider vinegar (apples), Cloves, Coffee, Cucumbers & pickles, Currants, Grapes & raisins, Nectarines, Oranges, Paprika, Peaches, Peppers (bell & chili), Plums, Prunes, Tangerines, Tea, Tomatoes, Wine & wine vinegar (grapes), Oil of wintergreen (methyl salicylate). Other items to consider are perfumes and fragrances, nitrites and nitrates, monosodium glutamate [MSG], Hydrolized Vegetable Protein [may contain MSG], sulfites/sulfiting agents, benzoates, and corn syrup [made from hydrogen sulfide + corn starch and many other added chemicals].


I do have some issues with most of these, actually, but not to the same extent. So phenols may be a problem for me, but don't explain the nightshade reaction. Interesting, though!

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11


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