Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cross Contamination...help!
0

8 posts in this topic

I was diagnosed in september and took until february to feel 100% again. I was never so strict about a diet during this time, at almost all my meals at home and only at at restaurnts with a dedicated gluten-free menu, made it difficult sometimes going out with freinds and while my fiance has been supportive a main point of contention between us is that I am too high strung over this whole thing. For example he thinks if you read a label and all the ingreidents are gluten-free but the label doesn't say it, still ok to eat. At restaurants just let them you have it and just trust whatever comes at me. Recently  we went away and we stayed at all inclusive hotel and i just ate at the buffett: salads, rice and whatever looked ok to me. I was fine while I was there but when I got home, my stomach was such a mess. The other thing that I did for the first time there was have vodka after reading a lot of articles saying it should technically be ok since its distilled. Like i said I dont seem to react to gluten immediately it seems like it is days later that i get sick so it feels impossible to back track and figure out exactly what went wrong.

 

I know I got a little too adventurous with a few different things at the same time (just wanted to be normal for 1 week out of my life!) but I was hoping for some help: 1) Do I always have to be so neurotic with labels, and only have it if they label it gluten-free? 2) whats the rule with natural flavors? i dont know what that means! is it ok or not? Same with food coloring. 3) I am really not that big of a drinker I actually just prefer a glass of wining if anything at all but if i do go out with my friends or at a wedding or just want a drink, what am i allowed to have? Was it a huge mistake to have vodka? 4) How strict do i need to be at restaurants? Can I have fish if I just ask for it with lemon on the grill? Or should I just not eat at the restaurants that have waiters that stare at me like I have two heads when I say I have gluten allergy?

 

Sorry I know this is a lot. I am just feeling overwhelmed right now. Trying so hard to find a balance. Thanks for any advice! really appreciated!

-michelle

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi,
 
There are many, many foods which are actually gluten-free, but do not say so on the label. Putting "gluten-free" on the label opens a company up to possible litigation if an ingredient they bought from somebody else was contaminated, and they didn't detect it because they don't test. Many food manufacturers have a policy to clearly disclose any gluten in the ingredients list. Click here for a list. I trust those companies.
 

======


While "natural flavors" can contain gluten, they very rarely actually do. The most likely source would be barley malt, and that is a relatively expensive ingredient, so it is usually explicitly declared as "malt flavor."

If there were wheat in it, in the US (and Canada) it would be required by law to be disclosed as just that, "wheat."

Shelley Case on flavorings:

It would be rare to find a "natural or artificial flavoring" containing gluten (a) because hydrolyzed wheat protein cannot be hidden under the term "flavor." and (b) barley malt extract is almost always declared as "barley malt extract" or "barley malt flavoring." For this reason, most experts do not restrict natural and artificial flavorings in the gluten-free diet.

Gluten-Free Diet - A Comprehensive Resource Guide, published 2008, page 46


Note: As of August, 2012, Canada requires ALL gluten sources to be explicitly disclosed. Some foods packaged before August 4 may still be in stores.
 

======


Food color is gluten-free. Some people react to certain dyes, most commonly red, but that is not related to celiac disease.
 

======


Any distilled alcohol is considered gluten-free. The gluten molecule is too heavy to transfer into the distillate, but some fragments may. A small minority of us react to some grain alcohols. If you are able to call a brand, Smirnoff is made exclusively from corn.
 

======


If you refuse to eat foods not labeled as "gluten-free," NEVER eat at a restaurant. If you won't eat foods made in a shared facility, NEVER eat at a restaurant. If you do decide to eat out, learn that in most cases, the wait staff don't understand gluten-free, but will understand a food allergy. The big concern is wheat, so if you describe your condition as an allergy to wheat, they will probably "get it."

0

Share this post


Link to post
Share on other sites

1. There are things that are, as a rule, naturally gluten free, such as cheese (unless its beer cheese). Learn what companies have labeling policy (such as kraft) when it comes to wheat.

 

2. Generally, there is no gluten in natural flavors. however I've heard that there might be some cases where it is in it. Food coloring wouldn't have it.

 

3. Honestly, I don't drink, so i don't know.

 

4. Very. You need to let them know you can't have this and explain it to them. Who's to say that grill wasn't used to toast some bread? Better to ask questions.

 

Edit:

 

Well it seems Peter has a better explanation then i do :lol:

 

One more piece of advice, don't let what others say get to you. More often then not, they do not and cannot understand why you would need to be so careful.

0

Share this post


Link to post
Share on other sites

Just to add to the above: if you eat at a buffet, you should expect lots of cc. People balance the bread on the edge of the plate and it falls in the " safe" fruit salad. They pick it up and you have no way of knowing the crumbs that lurk there. Sometimes a serving spoon is missing and someone may use the spoon from the couscous ( gluten) to scoop some rice. You don't know how the food was prepared in the kitchen either, unless you ask. They could have blanched veggies in the hot pasta water when in a hurry.

If you are going to eat at buffets and restaurants without checking on how food is made, you certainly don't need to worry if your grocery purchases say gluten-free on them.

0

Share this post


Link to post
Share on other sites

Just my two cents, since everyone has already had such wonderful things to share, keep in mind that the FDA has released no official standard in the US for what gluten free means. Which to us means that those words on a package means pretty much nothing. Just because those words are on a package, doesn't mean you don't have to read the ingredients. Some companies define it differently than others, some test to 20 ppm and label things gluten free that are from shared lines. Others label things gluten free only if they are from gluten free facilities. It isn't about the label, it is about knowing the company you are buying from.

 

And, if you are going to be neurotic about something, be neurotic about learning how to order food in a restaurant. All fries are naturally gluten free, but that doesn't mean that all, or even most restaurants serve gluten free fries since many use the same fryers for both fries and breaded items. Some, as pointed out, may grill bread and meat on the same grill. Some won't. Is the gluten free pasta cooked in common pasta water? A sure sign that you should probably just leave and not even order a salad. Do they know that if they accidentally put croutons on the salad that picking them off could make you deathly ill? You need a new one, dressing on the side. Is there soy sauce with wheat in something that no one has considered?  There are just so many things to cover about restaurants, but it is just all little things. Be neurotic about it! And don't say gluten allergy. While you can say that you eat gluten free which they will understand, explain it as a wheat allergy. That will often get them to take it far more seriously than you being one of those "fad dieters."

0

Share this post


Link to post
Share on other sites




Thank you all so much for the advice!! It has been very helpful hearing from other who understand whats its like. I guess more than anything I was loosing will power to keep up with all of this. But feeling a little bit better and in control. Thanks again!

0

Share this post


Link to post
Share on other sites

Hi there

Can I add something? I do eat in restaurants, and not only gluten-free certified places (however there are lots in Italy where I live). When I do go to a 'normal' restaurant, I tell them that I am celiac and ask them what I can have on the menu. The answer tells you a lot. The waiter telling you "not the fries because we share the frier for everything" or "this, but with no soy sauce because that will not be ok" or "you can have the risotto, we'll use a separate pan" without prompting, is a sign the restaurant can (usually) be trusted or that you are minimizing the risk. Blank stares? Bad news: better change place. In a couple of cases, when I was with friends and couldn't leave without looking a spoilsport and was hungry enough to eat (but I've learned to go around with gluten-free snacks) I resorted to explaining exactly what I need and ordering the simplest possible thing, usually a grilled steak with roast potatoes. In Japanese or Chinese places I stress "No soy sauce, no marinated foods" which means sometimes plain boiled rice and nothing else, but better than fasting. You are NOT eliminating the risk, but you are trying to contain it.

 

But never, ever, ever eat something just because it looks OK to you or without specifying to the cook or to someone who looks responsible enough that you are allergic or whatever sounds best and that your stuff needs to be cooked separately or at least, far away from flour and breadcrumbs. (This pretty much eliminates buffet food apart from fresh fruits (uncut) and possibly roast meat and fish, since if it's sliced or served in front of you and there is no bread around, chances are that it's safe) I've been there - and been sick. As someone else said, you have no idea of what happened in the kitchen.

 

A word on alcohol. My gut is very sensitive after just 5 months gluten-free. I can't have red wine, I don't trust liquors, even if they're supposed to be gluten-free. However it seems I can tolerate moderate quantities (a glass) of champagne or sparkly wine or white wine. Take it easy, and if you don't want to say "no thanks", say yes and take a few small sips.

0

Share this post


Link to post
Share on other sites

And something else: if you have to trust an unknown restaurant try going for a small family run place rather than a massive operation. They usually take the time to listen and understand (they need the clients).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,380
    • Total Posts
      917,562
  • Topics

  • Posts

    • Newbie: mother to coeliac kids
      If uncooked, he might have difficulty digesting them because eating ANYTHING with a Marsh Stage 4 gut is bound to hurt.    If pickled, he might be reacting to any of the ingrediants even though they could be gluten free.   Often, celiacs develop several food intolerances.  Lactose intolerance is the most common.   I'd recommend keeping a food diary and well-cooked stews, soups for a few days or weeks until his symptoms improve.   Good Luck!  
    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,519
    • Most Online
      1,763

    Newest Member
    lesleeann
    Joined