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Gluten Free But No Improvements
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8 posts in this topic

Dear all,

I was diagnosed with celiac disease two months ago (Marsh IIIa) and I immediately started a gluten free diet, but so far I haven't seen any improvements, still copying with diarrhea and abdominal pain. My GI told me that diarrhea is supposed to be the first symptom to improve/disappear but I am still experiencing frequent BM especially in the morning. My other major issue is the abdominal pain especially after meals. I was wondering how long will it take to see any improvements and if there's something I can do to soothe the pain sometimes it is excruciating.

Thanx

 

Maurizio

 

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2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

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Remove all dairy to test.     ;)

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Remove all dairy to test.     ;)

 

 

That's a good idea.  But first, we need to find out if he even has a good understanding of eating gluten-free.  Many people who are new to Celiac don't realize, or haven't thought about, the odd places they might be getting gluten.  Like the shared toaster or PB jar.  If he has all of these down, then eliminating dairy would be a good next step.  I'm waiting for him to answer before throwing out a lot of "maybe causes".

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Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

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Maurizio,   there's wheat and gluten in deli meats and hot dogs.

not all of them!  :)  

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2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

Yes I have been very carefull I cook my own meal at home ...mostly I am eating boiled rise, lots of meat and fish and fruits and vegetables and yes I definitely need ti check my meds

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Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

Not many, at all, in the US. But still read labels

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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