Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Free But No Improvements
0

8 posts in this topic

Dear all,

I was diagnosed with celiac disease two months ago (Marsh IIIa) and I immediately started a gluten free diet, but so far I haven't seen any improvements, still copying with diarrhea and abdominal pain. My GI told me that diarrhea is supposed to be the first symptom to improve/disappear but I am still experiencing frequent BM especially in the morning. My other major issue is the abdominal pain especially after meals. I was wondering how long will it take to see any improvements and if there's something I can do to soothe the pain sometimes it is excruciating.

Thanx

 

Maurizio

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

0

Share this post


Link to post
Share on other sites

Remove all dairy to test.     ;)

0

Share this post


Link to post
Share on other sites

Remove all dairy to test.     ;)

 

 

That's a good idea.  But first, we need to find out if he even has a good understanding of eating gluten-free.  Many people who are new to Celiac don't realize, or haven't thought about, the odd places they might be getting gluten.  Like the shared toaster or PB jar.  If he has all of these down, then eliminating dairy would be a good next step.  I'm waiting for him to answer before throwing out a lot of "maybe causes".

0

Share this post


Link to post
Share on other sites

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

0

Share this post


Link to post
Share on other sites




Maurizio,   there's wheat and gluten in deli meats and hot dogs.

not all of them!  :)  

0

Share this post


Link to post
Share on other sites

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

Yes I have been very carefull I cook my own meal at home ...mostly I am eating boiled rise, lots of meat and fish and fruits and vegetables and yes I definitely need ti check my meds

0

Share this post


Link to post
Share on other sites

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

Not many, at all, in the US. But still read labels

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,683
    • Total Posts
      921,740
  • Topics

  • Posts

    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,685
    • Most Online
      3,093

    Newest Member
    jhc
    Joined