Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Free But No Improvements
0

8 posts in this topic

Dear all,

I was diagnosed with celiac disease two months ago (Marsh IIIa) and I immediately started a gluten free diet, but so far I haven't seen any improvements, still copying with diarrhea and abdominal pain. My GI told me that diarrhea is supposed to be the first symptom to improve/disappear but I am still experiencing frequent BM especially in the morning. My other major issue is the abdominal pain especially after meals. I was wondering how long will it take to see any improvements and if there's something I can do to soothe the pain sometimes it is excruciating.

Thanx

 

Maurizio

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

0

Share this post


Link to post
Share on other sites

Remove all dairy to test.     ;)

0

Share this post


Link to post
Share on other sites

Remove all dairy to test.     ;)

 

 

That's a good idea.  But first, we need to find out if he even has a good understanding of eating gluten-free.  Many people who are new to Celiac don't realize, or haven't thought about, the odd places they might be getting gluten.  Like the shared toaster or PB jar.  If he has all of these down, then eliminating dairy would be a good next step.  I'm waiting for him to answer before throwing out a lot of "maybe causes".

0

Share this post


Link to post
Share on other sites

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

0

Share this post


Link to post
Share on other sites




Maurizio,   there's wheat and gluten in deli meats and hot dogs.

not all of them!  :)  

0

Share this post


Link to post
Share on other sites

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/page-2#entry851855

Yes I have been very carefull I cook my own meal at home ...mostly I am eating boiled rise, lots of meat and fish and fruits and vegetables and yes I definitely need ti check my meds

0

Share this post


Link to post
Share on other sites

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

Not many, at all, in the US. But still read labels

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,375
    • Total Posts
      920,572
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,451
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined