I've been struggling with GI symptoms for almost two years now. I've been to the hospital a few times because the pain gets so bad. Not a single doctor has been able to figure out the issue. My main symptoms include a very full-feeling large intestine (ALWAYS felt in the lower right side, originally thought to be appendicitis but the pain is anywhere from the appendix area to just under the rib cage), a mix of constipation and diarrhea (but mostly constipation), a loss of energy (wanting to go to bed at around 9:30 every night), and lately a very bad pain in my entire gut (the only time the pain is not in the lower right area) that starts in the middle of the night and wakes me up, most of time radiating to my back (feels like bloating or a very inflamed intestine). When I feel constipated, I still go every day, it's just that most times I don't feel the relief that I so badly need sometimes, like it didn't get everything out. There's also a LOT of intestinal movement in the lower right of my gut when I lay down at night. Lots of gurgling and sometimes I can even feel things are moving around. A lot of times this relieves a lot of pressure but sometimes it makes it worse. It's also important to note that I'm 26, 5'8" and weigh only 110lbs (I've always been thin). Another thing to note is that I constantly feel like this. Eating something in particular doesn't seem to help one way or another. I've kept a food log but it kind of turned out useless since I feel the same every day (except just getting progressively worse).
I'm currently waiting for my blood test results when I was tested for celiac, but previous tests have proven nothing. About two and a half years ago, before I started having these symptoms, I had an endoscopy for some other completely separate issue and a biopsy was taken at that time just to test for celiac just because I was so thin. It came back negative. If I didn't have any symptoms then, wouldn't that test still come back positive? I didn't think celiac was something that could just come out of nowhere, even if I was already biopsied.
I've also had a colonoscopy and the doctor found absolutely nothing wrong. Would celiac show up on a colonoscopy?
I've had blood work in the past (not specifically for celiac) and it comes back fine without any vitamin deficiencies.
I'd really appreciate some help with this, as my doctors are literally giving up at this point (it was a struggle to even get him to do a blood test for celiac). I'm assuming this celiac test will come back negative, like everything always does, but does anybody here think this could still be celiac?
Edited by yanathin, 08 May 2013 - 12:44 PM.