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Both Kids With Celiacs
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I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

 

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Many people find they have difficulties with dairy after going gluten-free so that could be the issue. It could be cross contamination as well.  What about mayo or butter containers? Have those all been replaced?  

 

How long have they been gluten-free?
 

 

As for trusting "gluten free" labels, that term is not regulated in the US so anyone can say they are gluten-free but don't need to actually test for it.  Some companies are better about it than others.

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You need to read the Newbie 101 thread, plus as many other threads here as possible. There are many places that gluten can hide and even though it's hard to believe at first, just the tinyest bit of gluten can cause damage.

 

Also, be aware that if the kids have it, both you and your husband should be tested. There is a very good chance that they inherited it from one of you.

 

Ask lots of questions. We're here to help. :)

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I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

I agree about the Newbie 101 thread!  My celiac disease was symptom free other than having thryoiditis and anemia.  No intestinal issues at all until I glutened out prior to my getting scoped.  My husband has been gluten-free for 12 years, so with my recent diagnosis, I made my house as gluten-free as possible!   It's much easier on all of us (a 12 yr. old daughter) and since your children are so young, there will be less chance of them consuming gluten.  If you and your husband want to eat gluten (then do it on your date night), but chances are one of you may have celiac disease and your health might improve as well.  

 

I'd give up the dairy for now until there's some healing.  Or your son could be like me and just be allergic to milk proteins.  

 

Good luck!

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They have been gluten free for about 6 weeks, my daughter a week before my son. 

 

We were all tested and my husband and I tested negative!?

 

I will go to the newbie 101, thank you.

 

I try some lactose free ice cream with him and see if that helps.

 

Many thanks to all!

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It's pretty early in the game so it really could be anything. It does take some time for things to be 100% better.  I would just keep an eye on things like condiments, shared counters and stuff like that as well.

It can be overwhelming at first for sure so be gentile with yourself! It's a big adjustment for sure.  A new toaster was 100% the right things to do.  If you aren't going to make the whole house gluten-free, it may be to your advantage to make at least one counter gluten-free. That was what we did before we went virtually gluten-free (DH and  I have a snack cabinet that we have some crackers and stuff in but we don't have bread or anything anymore).  If you can spare the area it really did free up my comfort zone when I was doing meal prep.

 

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. I strongly suspect that it was from HIS side of the family as they have many many of the S&S of Celiac but of course if he won't get tested, no one on that side will. 

 

We're here to help if we can.  Hopefully you will figure out what's up and everyone will be feeling well ASAP!

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Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. 

:lol:

 

If the kids continue to have stomach issues while consuming lactose free dairy, you might even want to drop all dairy for a few months. It won't hurt them it will just be a habit to break.

 

And I agree that there is a good chance of cc in your home unless you are very careful. Old sugar containers that may have been double dipped with wheat flour, baking soda or powder, some spices, cocoa, jam, peanut butter, condiments, cutting boards, spatulas should all be double checked for possibility of cc. Gluten can lurk in unexpected spots.  :ph34r: Don't forget to check ingredients on stuff like condiments, soy sauce, worchestershire sauce and others.

 

The classic symptoms of celiac disease that your daughter has seem to often clear up first. The more atypical symptoms like that of your son tend to linger in many people - I am still having problems with some of it almost a year later - so he may be forced to endure his symptoms a bit longer unfortunately (this is from my own observations). Hopeful his youth will act in his favour and he'll have a speedy recovery.

 

Welcome to the board.

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Thank you everyone!

 

We have moved the gluten-free foods to one cupboard so the kids know that all of this is gluten-free, enjoy.  My husband's Pringles and Pretzel stash is in a higher cupboard they can not reach.  That stuff is only brought out when they are not home or asleep - we'd feel guilty chowing gluten in front of them.

 

Today I purchased new spatulas, wooden spoons, colander, cutting board, tupperware, pizza cutter and rolling pin.  Do I have to replace my cookie sheets and baking pans, metal and VERY used?  Will baking with Parchment paper work so the food does not touch the sheet?  The wheat flour is gone and I did dump the sugar.  My condiments are all of the squeezable variety, which they do not like anyhow.  Ranch dressing they do like and now Annie's cowgirl ranch is only available.

 

What I need is a fantastic sandwich bread.  I've attempted "gluten-free on a Shoestring" sandwich bread recipe but it hasn't turned out great yet.  My son was a diehard PB&J kid.  Any recommendations?

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Udi's is the best we can find but even then, they prefer it as toast.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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