Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Both Kids With Celiacs
0

9 posts in this topic

I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many people find they have difficulties with dairy after going gluten-free so that could be the issue. It could be cross contamination as well.  What about mayo or butter containers? Have those all been replaced?  

 

How long have they been gluten-free?
 

 

As for trusting "gluten free" labels, that term is not regulated in the US so anyone can say they are gluten-free but don't need to actually test for it.  Some companies are better about it than others.

0

Share this post


Link to post
Share on other sites

You need to read the Newbie 101 thread, plus as many other threads here as possible. There are many places that gluten can hide and even though it's hard to believe at first, just the tinyest bit of gluten can cause damage.

 

Also, be aware that if the kids have it, both you and your husband should be tested. There is a very good chance that they inherited it from one of you.

 

Ask lots of questions. We're here to help. :)

0

Share this post


Link to post
Share on other sites

I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

I agree about the Newbie 101 thread!  My celiac disease was symptom free other than having thryoiditis and anemia.  No intestinal issues at all until I glutened out prior to my getting scoped.  My husband has been gluten-free for 12 years, so with my recent diagnosis, I made my house as gluten-free as possible!   It's much easier on all of us (a 12 yr. old daughter) and since your children are so young, there will be less chance of them consuming gluten.  If you and your husband want to eat gluten (then do it on your date night), but chances are one of you may have celiac disease and your health might improve as well.  

 

I'd give up the dairy for now until there's some healing.  Or your son could be like me and just be allergic to milk proteins.  

 

Good luck!

0

Share this post


Link to post
Share on other sites

They have been gluten free for about 6 weeks, my daughter a week before my son. 

 

We were all tested and my husband and I tested negative!?

 

I will go to the newbie 101, thank you.

 

I try some lactose free ice cream with him and see if that helps.

 

Many thanks to all!

0

Share this post


Link to post
Share on other sites




It's pretty early in the game so it really could be anything. It does take some time for things to be 100% better.  I would just keep an eye on things like condiments, shared counters and stuff like that as well.

It can be overwhelming at first for sure so be gentile with yourself! It's a big adjustment for sure.  A new toaster was 100% the right things to do.  If you aren't going to make the whole house gluten-free, it may be to your advantage to make at least one counter gluten-free. That was what we did before we went virtually gluten-free (DH and  I have a snack cabinet that we have some crackers and stuff in but we don't have bread or anything anymore).  If you can spare the area it really did free up my comfort zone when I was doing meal prep.

 

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. I strongly suspect that it was from HIS side of the family as they have many many of the S&S of Celiac but of course if he won't get tested, no one on that side will. 

 

We're here to help if we can.  Hopefully you will figure out what's up and everyone will be feeling well ASAP!

0

Share this post


Link to post
Share on other sites

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. 

:lol:

 

If the kids continue to have stomach issues while consuming lactose free dairy, you might even want to drop all dairy for a few months. It won't hurt them it will just be a habit to break.

 

And I agree that there is a good chance of cc in your home unless you are very careful. Old sugar containers that may have been double dipped with wheat flour, baking soda or powder, some spices, cocoa, jam, peanut butter, condiments, cutting boards, spatulas should all be double checked for possibility of cc. Gluten can lurk in unexpected spots.  :ph34r: Don't forget to check ingredients on stuff like condiments, soy sauce, worchestershire sauce and others.

 

The classic symptoms of celiac disease that your daughter has seem to often clear up first. The more atypical symptoms like that of your son tend to linger in many people - I am still having problems with some of it almost a year later - so he may be forced to endure his symptoms a bit longer unfortunately (this is from my own observations). Hopeful his youth will act in his favour and he'll have a speedy recovery.

 

Welcome to the board.

0

Share this post


Link to post
Share on other sites

Thank you everyone!

 

We have moved the gluten-free foods to one cupboard so the kids know that all of this is gluten-free, enjoy.  My husband's Pringles and Pretzel stash is in a higher cupboard they can not reach.  That stuff is only brought out when they are not home or asleep - we'd feel guilty chowing gluten in front of them.

 

Today I purchased new spatulas, wooden spoons, colander, cutting board, tupperware, pizza cutter and rolling pin.  Do I have to replace my cookie sheets and baking pans, metal and VERY used?  Will baking with Parchment paper work so the food does not touch the sheet?  The wheat flour is gone and I did dump the sugar.  My condiments are all of the squeezable variety, which they do not like anyhow.  Ranch dressing they do like and now Annie's cowgirl ranch is only available.

 

What I need is a fantastic sandwich bread.  I've attempted "gluten-free on a Shoestring" sandwich bread recipe but it hasn't turned out great yet.  My son was a diehard PB&J kid.  Any recommendations?

0

Share this post


Link to post
Share on other sites

Udi's is the best we can find but even then, they prefer it as toast.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,619
  • Topics

  • Posts

    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined