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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Both Kids With Celiacs
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9 posts in this topic

I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

 

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Many people find they have difficulties with dairy after going gluten-free so that could be the issue. It could be cross contamination as well.  What about mayo or butter containers? Have those all been replaced?  

 

How long have they been gluten-free?
 

 

As for trusting "gluten free" labels, that term is not regulated in the US so anyone can say they are gluten-free but don't need to actually test for it.  Some companies are better about it than others.

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You need to read the Newbie 101 thread, plus as many other threads here as possible. There are many places that gluten can hide and even though it's hard to believe at first, just the tinyest bit of gluten can cause damage.

 

Also, be aware that if the kids have it, both you and your husband should be tested. There is a very good chance that they inherited it from one of you.

 

Ask lots of questions. We're here to help. :)

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I have 2 children and very new to this.  My daughter was diagnosed with Celiacs after a very long bout with fatigue, stomach aches, urgency to go to the bathroom, and anemia.  As she tested positive (blood and endo). My son had the bloodwork done and he had very high levels, so it's assumed he has it as well.  He was experiencing differnt symptoms of headaches, joint/muscle pain, constipation and stomaches.  They are 6 and 7.

 

My son is still complining of headaches and muscle pain..and both have belly discomfort a few times a week.  I did get a new toaster, very carefully about cross contamination but have not replaced pots/pans/plastic kitchen wear.  Do you think I have hidden gluten in my kitchen?

 

Seems ice cream is bothing my son as well, but the labels do not contain gluten ingrediants, can I trust foods/labels that are not gluten-free certified?  Can Lactose cause stomach aches?

 

All input in welcome and appreciated.  Thank you

I agree about the Newbie 101 thread!  My celiac disease was symptom free other than having thryoiditis and anemia.  No intestinal issues at all until I glutened out prior to my getting scoped.  My husband has been gluten-free for 12 years, so with my recent diagnosis, I made my house as gluten-free as possible!   It's much easier on all of us (a 12 yr. old daughter) and since your children are so young, there will be less chance of them consuming gluten.  If you and your husband want to eat gluten (then do it on your date night), but chances are one of you may have celiac disease and your health might improve as well.  

 

I'd give up the dairy for now until there's some healing.  Or your son could be like me and just be allergic to milk proteins.  

 

Good luck!

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They have been gluten free for about 6 weeks, my daughter a week before my son. 

 

We were all tested and my husband and I tested negative!?

 

I will go to the newbie 101, thank you.

 

I try some lactose free ice cream with him and see if that helps.

 

Many thanks to all!

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It's pretty early in the game so it really could be anything. It does take some time for things to be 100% better.  I would just keep an eye on things like condiments, shared counters and stuff like that as well.

It can be overwhelming at first for sure so be gentile with yourself! It's a big adjustment for sure.  A new toaster was 100% the right things to do.  If you aren't going to make the whole house gluten-free, it may be to your advantage to make at least one counter gluten-free. That was what we did before we went virtually gluten-free (DH and  I have a snack cabinet that we have some crackers and stuff in but we don't have bread or anything anymore).  If you can spare the area it really did free up my comfort zone when I was doing meal prep.

 

Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. I strongly suspect that it was from HIS side of the family as they have many many of the S&S of Celiac but of course if he won't get tested, no one on that side will. 

 

We're here to help if we can.  Hopefully you will figure out what's up and everyone will be feeling well ASAP!

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Glad you and your DH were tested. It's been almost 3 years here and my DH has not gotten tested cause he's an idiot. 

:lol:

 

If the kids continue to have stomach issues while consuming lactose free dairy, you might even want to drop all dairy for a few months. It won't hurt them it will just be a habit to break.

 

And I agree that there is a good chance of cc in your home unless you are very careful. Old sugar containers that may have been double dipped with wheat flour, baking soda or powder, some spices, cocoa, jam, peanut butter, condiments, cutting boards, spatulas should all be double checked for possibility of cc. Gluten can lurk in unexpected spots.  :ph34r: Don't forget to check ingredients on stuff like condiments, soy sauce, worchestershire sauce and others.

 

The classic symptoms of celiac disease that your daughter has seem to often clear up first. The more atypical symptoms like that of your son tend to linger in many people - I am still having problems with some of it almost a year later - so he may be forced to endure his symptoms a bit longer unfortunately (this is from my own observations). Hopeful his youth will act in his favour and he'll have a speedy recovery.

 

Welcome to the board.

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Thank you everyone!

 

We have moved the gluten-free foods to one cupboard so the kids know that all of this is gluten-free, enjoy.  My husband's Pringles and Pretzel stash is in a higher cupboard they can not reach.  That stuff is only brought out when they are not home or asleep - we'd feel guilty chowing gluten in front of them.

 

Today I purchased new spatulas, wooden spoons, colander, cutting board, tupperware, pizza cutter and rolling pin.  Do I have to replace my cookie sheets and baking pans, metal and VERY used?  Will baking with Parchment paper work so the food does not touch the sheet?  The wheat flour is gone and I did dump the sugar.  My condiments are all of the squeezable variety, which they do not like anyhow.  Ranch dressing they do like and now Annie's cowgirl ranch is only available.

 

What I need is a fantastic sandwich bread.  I've attempted "gluten-free on a Shoestring" sandwich bread recipe but it hasn't turned out great yet.  My son was a diehard PB&J kid.  Any recommendations?

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Udi's is the best we can find but even then, they prefer it as toast.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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