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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Numbness On Head And Face (Dizziness)
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I was diagnosed with Coeliac three months ago, as well as having the usual symptoms the most alarming is face numbing, a feeling of pressure in my head, dizziness and jelly legs, I wonder if anyone else has experienced this ?– I think this must be when Gluten gets into my system by accident. Over this bank holiday weekend my girlfriend and I ate out quite alot. All my meals were gluten free, but perhaps the chips were cooked in oil that had also cooked battered fish – the McDonalds was scrambled eggs, bacon and hash browns, then to top this off I had the ‘gluten free pizza’ at Pizza Hut. On Tuesday I woke with my head all over the place, I misjudged putting the kettle back on the holder, then driving to work my condition worsened to the point I diverted to hospital and went to A&E, I honestly felt I was having a stroke, perhaps some of it was an anxiety attack? After examination the doctor released me but suggested I should get tested for MS. Yesterday I saw my GP and he has referred me for a scan. Today I was with my girlfriend and my symptoms returned again I was so concerned I went back to A&E – again I was released but told not to drive until the scan had been completed. I’m just wondering if I am on my own with this, or has anyone else experienced this and how did they get over it? Many thanks in advance.. 

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Sounds like you got cc'd pretty bad. I wouldn't eat at fast food places even though they have 'gluten free' items. Too much risk...

Some experience nerological symptoms when cc'd by gluten.

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I agree with the previous poster. Sounds like you may have gluten ataxia which can cause symptoms much like MS. Gluten ataxia can cause brain lesions similiar to the lesions you would see with MS. So if you do have a scan make sure they also do a spinal tap if they think you do have MS. The lesions are similiar but you won't find the debris in the spinal fluid that you would with MS.

 

I know it is hard to not eat at restaurants but for some of us the risk is just too much in most places. I have had fairly good luck with PF Changs and Outback Steakhouse off their gluten free menus but wouldn't eat anything at Mcdonalds or Pizza Hut.

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I always had dizzy spells as a kid.

My urologist said to drink more water for kidney stones and coincidentally that helped with my dizzy spells.

I read dehydration is part of Celiac and that is a piece of my Celiac puzzle.

 

It could have been the eggs. 

Keep a food diary.

 

Good luck with the tests.

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Thank you all very much for your comments. I have a feeling it was the 'Gluten Free' Pizza that was contaminated. This morning I woke up feeling panicked again, this time I went for a run to burn off the adrenalin - it helped enormously. Still feeling dizzy and unsettled, but not panicked. 

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Sometimes dizzyness can be caused by a problem in your ears.

Then when you get dizzy, it can make the person feel panicky.

Maybe see an ear specialist?

 

Another cause is the blood pressure takes time to adjust when you get up suddenly.

 

Or a heart problem.

You could ask to wear a portable ECG heart monitor where you press a record button when it happens.

 

Then the other cause is dehydration.

 

 

(I've had dizzy spells all my life especially if I stand too long immobile)

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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