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Numbness On Head And Face (Dizziness)

numbness dizziness jelly legs

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#1 English Chris

 
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Posted 09 May 2013 - 01:04 PM

I was diagnosed with Coeliac three months ago, as well as having the usual symptoms the most alarming is face numbing, a feeling of pressure in my head, dizziness and jelly legs, I wonder if anyone else has experienced this ?– I think this must be when Gluten gets into my system by accident. Over this bank holiday weekend my girlfriend and I ate out quite alot. All my meals were gluten free, but perhaps the chips were cooked in oil that had also cooked battered fish – the McDonalds was scrambled eggs, bacon and hash browns, then to top this off I had the ‘gluten free pizza’ at Pizza Hut. On Tuesday I woke with my head all over the place, I misjudged putting the kettle back on the holder, then driving to work my condition worsened to the point I diverted to hospital and went to A&E, I honestly felt I was having a stroke, perhaps some of it was an anxiety attack? After examination the doctor released me but suggested I should get tested for MS. Yesterday I saw my GP and he has referred me for a scan. Today I was with my girlfriend and my symptoms returned again I was so concerned I went back to A&E – again I was released but told not to drive until the scan had been completed. I’m just wondering if I am on my own with this, or has anyone else experienced this and how did they get over it? Many thanks in advance.. 


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#2 shadowicewolf

 
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Posted 09 May 2013 - 01:12 PM

Sounds like you got cc'd pretty bad. I wouldn't eat at fast food places even though they have 'gluten free' items. Too much risk...

Some experience nerological symptoms when cc'd by gluten.
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#3 ravenwoodglass

 
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Posted 09 May 2013 - 03:18 PM

I agree with the previous poster. Sounds like you may have gluten ataxia which can cause symptoms much like MS. Gluten ataxia can cause brain lesions similiar to the lesions you would see with MS. So if you do have a scan make sure they also do a spinal tap if they think you do have MS. The lesions are similiar but you won't find the debris in the spinal fluid that you would with MS.

 

I know it is hard to not eat at restaurants but for some of us the risk is just too much in most places. I have had fairly good luck with PF Changs and Outback Steakhouse off their gluten free menus but wouldn't eat anything at Mcdonalds or Pizza Hut.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Deaminated Marcus

 
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Posted 09 May 2013 - 04:43 PM

I always had dizzy spells as a kid.

My urologist said to drink more water for kidney stones and coincidentally that helped with my dizzy spells.

I read dehydration is part of Celiac and that is a piece of my Celiac puzzle.

 

It could have been the eggs. 

Keep a food diary.

 

Good luck with the tests.


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#5 English Chris

 
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Posted 10 May 2013 - 12:00 AM

Thank you all very much for your comments. I have a feeling it was the 'Gluten Free' Pizza that was contaminated. This morning I woke up feeling panicked again, this time I went for a run to burn off the adrenalin - it helped enormously. Still feeling dizzy and unsettled, but not panicked. 


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#6 Deaminated Marcus

 
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Posted 10 May 2013 - 08:48 AM

Sometimes dizzyness can be caused by a problem in your ears.

Then when you get dizzy, it can make the person feel panicky.

Maybe see an ear specialist?

 

Another cause is the blood pressure takes time to adjust when you get up suddenly.

 

Or a heart problem.

You could ask to wear a portable ECG heart monitor where you press a record button when it happens.

 

Then the other cause is dehydration.

 

 

(I've had dizzy spells all my life especially if I stand too long immobile)


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