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Need Dr In Chattanooga Tn,atlanta Ga Area
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I have celiac an hashimoto's disease. Need to find a doctor who will help with my thyroid. Cannot take regular thyroid meds due to lactose in them and can't find a doctor who will listen.

This is my first post and I need help. I feel like my life is over. I have been sick for 4 yrs and have been to every specialist and physician in the area. Everyone says I am crazy. I finally was diagnosed with celiac and hashimotos but I can not take the medicine. I am EXTREMELY sensitive to ALL medicines and must take small dosages but every doctor says that I am over reacting. I know my body. I am so frustrated. I lay in bed with no energy, constant mental cloudiness, body aches, and if I take the thyroid meds my heart rate accelerates, have severe mood swings, tingling all over and hot, and it hurts my stomach. I CANNOT have dairy but no one will send my script to a compounding pharmacy. Please help

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my SUPER AWESOME GI DOC recently moved to the atlanta area.  i do not know exactly where, because atlanta is so abounding, but her name is Dr. Ruth Montalvo.  unless you need an endo, then i am clueless.  good luck  :)

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I have celiac an hashimoto's disease. Need to find a doctor who will help with my thyroid. Cannot take regular thyroid meds due to lactose in them and can't find a doctor who will listen.

This is my first post and I need help. I feel like my life is over. I have been sick for 4 yrs and have been to every specialist and physician in the area. Everyone says I am crazy. I finally was diagnosed with celiac and hashimotos but I can not take the medicine. I am EXTREMELY sensitive to ALL medicines and must take small dosages but every doctor says that I am over reacting. I know my body. I am so frustrated. I lay in bed with no energy, constant mental cloudiness, body aches, and if I take the thyroid meds my heart rate accelerates, have severe mood swings, tingling all over and hot, and it hurts my stomach. I CANNOT have dairy but no one will send my script to a compounding pharmacy. Please help

Sorry to hear about your issues.  The good news is that you've been diagnosed with Celiac Disease and Hashimoto's.  Me too!  You didn't say which thyroid med you are on, but I've always been on Armour Thyroid.  It doesn't contain any milk products (lactose).  I stick it under my tongue to speed up the process, so that I can have that morning coffee or tea!  My compounding pharmacy can make thyroid replacements too, but the Armour is working.  What may not be working for you is insurance.  So, I pay cash!  It's actually cheaper than paying for my co-pay.  Shop around.  I use Costco Pharmacy.  I have other allergies so I understand about reacting to meds.  Have landed in the hospital a few times.  Docs know to start out small and build up.  

 

It's hard to differentiate symptoms from thyroid and Celiac (at least for me).  Although I have been diagnosed with Hashi's since 1997, I didn't have any major problems (other than small dosage increases) until menopause.  For almost a year, my thyroid has been wacked out.  I've been both hyper and hypo, swinging back and forth on a daily or weekly basis .  I have been hypo for the last five months (better than hyper) but with the recent celiac disease diagnosis, my doc and I are slowly trying to get my dosage right without pushing me to the hyper side.  My TSH this week is still a little too high (4.5), but I'll take it for now.  I think it will lower as my gut heals (and it is healing just not as fast as I'd like).  

 

Pay cash.  Maybe your doctor doesn't know about Armour or maybe your insurance won't cover it and he doesn't prescribe something that won't be covered. 

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I see Dr. Harry Delcher.  He is a board-certified endocrinologist in Atlanta (Sandy Springs area) who has gone "off the grid" so to speak.  He is known for using natural methods including Armour for thyroid.  Just a warning - he does not accept insurance, but he will give you an itemized bill with all the codes so that you can submit for reimbursement if you like.  New patient consult is $320, follow-ups are of course cheaper.  He works with a nutritionist and they sell all the supplements and such in their office.

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I'm a Chattanooga girl. I wish I could help. I mean I really really wish I could give you an answer. Only thing I can help with is Access Family Pharmacy does compounding. 4062 Hixson Pike (423)-877-3568. They might even be able to help.

 

My mom had a great GI Doc but he is semi-retired and doesn't take any new patients. (He never tested her for Celiac either) The Doctor who realized I had it I no longer go to because he was also my mom's MD and he took her off her diabetes meds and her Potassium both of which resulted in complications. And even after he said he thought I had Celiac he never tested me and never suggested my mom try going gluten-free.  Mom is now going to a D.O. who is a family friend. I haven't been to a Dr in 2 years, really don't want to either. The mess my mom has gone through recently I'd rather just not go back ever. (Yes I realize that is probably unrealistic) Afraid I'm more likely to give you a list of Dr's not to go to!  

 

If there is anyway having a local friend can help I am here. 

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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