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Confused And Need Help With Sons Symptoms
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My son is 21 months old. He has been unofficially diagnosed with Celiac Disease based on symptoms. He has been gluten free for 8 months. The one symptom that has not gone away is constipation. He goes 4-5 days between bm and when he goes it's painful for him. I cannot stand to see him like this anymore. He takes a tsp of miralax everyday. I have tried increasing the miralax, but then he gets diarrhea. I would like to figure out what is causing his problems instead of just treating the symptom.  He is allergic to dairy and peanuts. He also had an IgG blood test run when he was 8 months old. It came back positive for dairy, peanuts, eggs, strawberries, banana, and brewers yeast. After having the skin test done the allergist said we did not need to avoid anything but the dairy and nuts. His GI also said that the IgG testing does not mean anything and he can eat those foods. I am now wondering if we should avoid those foods. I have been keeping a food diary off and on for the last year, but I can't figure this out. I don't know what to do for him anymore. I need help figuring this out.

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Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I
gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

 

 

 

 

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Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I

gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

Ugh!  My nice chart imported from Excel didn't take.  But I think you'll get the idea.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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