Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Battling No Food
0

54 posts in this topic

The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Why wouldn't there be some eggs or cheese or fruit in the fridge? Popcorn, nuts or potato chips in the cabinet? Frozen fries or veggies or ice cream in the fridge? Even when I ate gluten, not everything in the fridge had gluten in it. If you have to eat gluten free, you should make sure you have things you can eat in the house.

This sounds like you set yourself up so that you have to eat gluten.

3

Share this post


Link to post
Share on other sites

I just realized - your not new to this. You have been a member for 4 years. i was assuming you were new and didn't really know about food that have gluten and ones that don't.

So my question back is - why are you eating gluten on purpose after 4 years?

1

Share this post


Link to post
Share on other sites

The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

My next decision would be to make a resolution to plan more.

 

You can freeze cooked rice in Sandwich bags and have cans of black or red beans in the pantry.  If you make gluten-free pasta, it's just as easy to make a whole bag of it as it is to make a small portion, then freeze single portion sizes.  Same with soups or chili or practically anything.  

 

Then you have to ask yourself a day or 2 in advance what you are going to eat the next couple of days, and move stuff from the freezer to the refrigerator.  

 

The staples I always keep are cheese, milk, tomato sauce, salsa, rice cakes,  corn or rice chips, peanut butter, eggs, various canned beans, frozen and canned fish,  romaine lettuce and root vegetables.

 

Even if you don't feel inspired to make something delicious, you can have something in your refrigerator or pantry to eat safely and avoid hunger pains.

 

Good luck, wish you well.

2

Share this post


Link to post
Share on other sites

This is difficult for me to answer since this would never happen in my house. 

 

My fridge would not "be full of gluten" (and that was true even before I was diagnosed)

 

You can't be healthy if you starve yourself all day long (celiac or not), it is not wise to deprive your body of nourishment that way.

 

I am thinking you really did not expect us to tell you anything except plan ahead, get some healthy food in your house (vegetables, fruit, yogurt and maybe some peanut butter and G F Crackers) so you do not find yourself opening the fridge door and seeing what you deem "nothing" to eat.

 

Granted, you may very wll  live with "gluten eaters", but even still, you should have your own food supply.

 

If you were an uninformed newbie, I'd give you more empathy and write out a detailed shopping list and "hold your hand" so to speak, but you're not new to this, hon

and frankly, it's time for you to stop putting yourself in this position. okay?.

 

 

I hope you will make a shopping list, go get some good things to eat, stop starving all day long and take better care of yourself. Best wishes!

2

Share this post


Link to post
Share on other sites




I realized one day that gluten might be a problem. The same day I identified what I had without gluten. Within a few days the rewards of gluten-free was so great that I removed it from my home, so as not to be tempted or forget. I live alone but if someone else were here I would expect them not to selfishly sabotage my health. No matter who else is around, I take responsibility to maintain my own healthy environment. 

What else is going on, that makes you feel such lack of control over your own life?

2

Share this post


Link to post
Share on other sites

Due to my massive weight loss after going gluten free several of my friends went to Doctors to see if they could find the answers to their weight problems. 2 good friends discovered they are Celiacs went gluten-free and are now much much happier and healthier. One of my very best friends discovered outside of being over weight she is in perfect health. She now excepts that she is over weight because she eats too much. Despite the fact she has low self esteem due to being over weight she has decided it's not worth giving up the food to lose weight. It sounds like you feel it's not worth giving up the food to heal. If you are constantly eating gluten your body can't heal. You are the only one who can save yourself! When I was diagnosed I was weaker than my 71 year old mother. Now I have more energy than my 24 year old co-worker. My depression is gone (unless I accidently injest gluten like I did earlier this week). My life is worth living and it's worth fighting for. Only you can decide to fight!  

 

If you want to fight you will fight and the people on this forum will help you.  

0

Share this post


Link to post
Share on other sites

I believe this is a hypothetical question, and one that I've ocassionally wondered about.

If in a disaster/desert island/prisoner situation you had no access to safe food, and your only options were to either starve or eat gluten and suffer, which would you do?

 

I'd probably hold out as long as I could, but if there were no other options (hypothetically), I probably would eventually give in and suffer the consequences. I might feel like I'm dying, but it would probably keep me going until safe food could be found.

 

More realistically though, it does mean that we really have to plan ahead. Safe gluten free "emergency/disaster" supplies, always having something in our bag just in case, etc etc.

 

If does make me think about people who have little food access or control over their food, for example homeless people or others relying on donations, prisoners, etc. There's probably a lot of people out there who have Celiac/Gluten Intolerance and don't know it, and are suffering even more by eating whatever they are offered or can get their hands on.

 

Anyway, I do believe this was a hypothetical. Correct me if I'm wrong, but it is something to remember that for some just surviving is more important than their long-term health, and that's a pretty sad thing. (I could rant on about food security, but we'll stop there)

 

Now to check on the gluten-free emergency food stocks...

Peg

0

Share this post


Link to post
Share on other sites

The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

1) Find a 24 convenience store that sells nuts and bananas or apples.

2) Knock on a neighbor's door and see if they have a piece of fruit you can eat.

3) Don't eat, get up early the next day, and go shopping to fix the ridiculous state of food in the house.

 

Ok, #3 is a little snarky, but also meant a lot seriously.  If there is literally *NOTHING* in your house that doesn't have gluten in it, you have a very poor diet (and poor emergency planning skills)..  (Oooo... Come on people, flame me!  This is totally flame worthy!  I'll stand by it, but it's ripe for the bashing. :) )  Why do I say this?  Because fruit and vegetables do not contain gluten.  Because dairy (milk, yogurt, cheese, ice cream, etc.) do not contain gluten.  Because beans do not contain gluten.  Because rice does not contain gluten.  Because fats (oils, butters) do not contain gluten.  Because nuts and dried do not contain gluten.  (And many of these items (canned beans, canned vegetables, nuts, rice, canned meats) are useful "emergency" foods to have on hand in the case of a natural disaster.)  If *EVERY* food in your house contains gluten, you simply don't have a healthy variety of nutritious foods around you, which - many studies back this up - almost certainly means your diet as a whole does not have a healthy variety of nutritious foods.

 

I don't actually mean to sound like a "w"itch about this.  And it's not actually personal, though I'm responding to your (OP's) post.  It's a pet peeve of mine that people choose to bring unhealthy foods into their house and choose NOT to bring healthy foods into their house.  It's your responsibility (unless you are under ... let's say 15), to have some choices.  (Of course, there is the obvious exception for, as stated by PP, being homeless, destitute to the point where you have no food, and so on.  But, you have food in your house, and I don't recall you being a pre-teen, so that doesn't apply in this situation.)

 

Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

3

Share this post


Link to post
Share on other sites

1) Find a 24 convenience store that sells nuts and bananas or apples.

2) Knock on a neighbor's door and see if they have a piece of fruit you can eat.

3) Don't eat, get up early the next day, and go shopping to fix the ridiculous state of food in the house.

 

Ok, #3 is a little snarky, but also meant a lot seriously.  If there is literally *NOTHING* in your house that doesn't have gluten in it, you have a very poor diet (and poor emergency planning skills)..  (Oooo... Come on people, flame me!  This is totally flame worthy!  I'll stand by it, but it's ripe for the bashing. :) )  Why do I say this?  Because fruit and vegetables do not contain gluten.  Because dairy (milk, yogurt, cheese, ice cream, etc.) do not contain gluten.  Because beans do not contain gluten.  Because rice does not contain gluten.  Because fats (oils, butters) do not contain gluten.  Because nuts and dried do not contain gluten.  (And many of these items (canned beans, canned vegetables, nuts, rice, canned meats) are useful "emergency" foods to have on hand in the case of a natural disaster.)  If *EVERY* food in your house contains gluten, you simply don't have a healthy variety of nutritious foods around you, which - many studies back this up - almost certainly means your diet as a whole does not have a healthy variety of nutritious foods.

 

I don't actually mean to sound like a "w"itch about this.  And it's not actually personal, though I'm responding to your (OP's) post.  It's a pet peeve of mine that people choose to bring unhealthy foods into their house and choose NOT to bring healthy foods into their house.  It's your responsibility (unless you are under ... let's say 15), to have some choices.  (Of course, there is the obvious exception for, as stated by PP, being homeless, destitute to the point where you have no food, and so on.  But, you have food in your house, and I don't recall you being a pre-teen, so that doesn't apply in this situation.)

 

Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

That's what I was trying to say. Thank you! And the fact that he said this happens to him often tells me he isn't asking a hypothetical question.

0

Share this post


Link to post
Share on other sites

 

 

Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

 

Amen!!!

 

 

That's what I was trying to say. Thank you! And the fact that he said this happens to him often tells me he isn't asking a hypothetical question.

 

I think that is pretty much what we are all saying.... and I agree with you completely on the second point. 

 

as I said, even if the OP shares a home with others, there HAS TO BE SOMETHING in that fridge without gluten in it.... fruits, vegs, cheese.

1

Share this post


Link to post
Share on other sites

When it is late at night and I want a snack and everything is either more effort I am willing to put forth or doesn't sound good, I have a glass of milk. It is always safe, satisfies my hunger and will get me through til morning when I feel like making something. Unless I were in a life and death situation, I will go hungry 100% of the time before I will eat something that isn't safe for me. It is a simple matter of choice. Do you or do you not care about being healthy?

1

Share this post


Link to post
Share on other sites

Amen!!!

 

 

 

I think that is pretty much what we are all saying.... and I agree with you completely on the second point. 

 

as I said, even if the OP shares a home with others, there HAS TO BE SOMETHING in that fridge without gluten in it.... fruits, vegs, cheese.

Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

0

Share this post


Link to post
Share on other sites

Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

 

Having been a member here since 2009, there has been sufficient time to learn how to stock a pantry and refrigerator, how to eat and how to be healthy. There is only a certain amount of coddling that can be done when a celiac is intentionally ingesting gluten before what they need is a wake up call and/or swift kick in the pants to help them realize they need to stop and they only person who can save them from themselves is them.

 

After more than 3 years if there is literally not a single fruit, vegetable, meat or dairy product in the house there are far bigger problems with his diet than gluten. That isn't a judgement or slamming anyone, that is the flat out honest truth that needs to be said before he ends up hospitalized. It is to help him. Tough love is still love.

5

Share this post


Link to post
Share on other sites

Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

 

I am always nice, supportive and non judgmental. You know this about me.

Of all the replies,at least  I gave the OP an "out"--that maybe she lives with Gluten eaters

 

and frankly, I have no idea why you have selected my post to highlight here.

 

And sometimes I honestly wonder why I continue to take the time to help when I get slammed as often as I do.

 

And the OP is not "new" and she needs to get it together fast. Everything I say is my opinion, given with compassion. She can take it or leave it. but there is no need to accuse me of being judgmental.

1

Share this post


Link to post
Share on other sites

The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

Your better tomorrow never comes because you seem to eat gluten regularly. Prayer isn't going to help. Not eating gluten will help.

However, if this is me, my next decision is to go to a gas station and buy something, or else suck it up and drink a lot of water hoping it'll keep me from being too hungry.

You can go a looooong time without eating before you get repercussions from it, much longer than a day.

You need to break this cycle you seem to have, the 'eat gluten-->feel shitty-->don't plan groceries properly or don't grocery shop at all-->eat the only food in your house which contains gluten'.

 

If you honestly feel so bad so often that you can't feed yourself properly, and all the shopping and planning that entails to be 100% gluten free, you would qualify as disabled by canadian standards and you should get help. Either government or medical or family or friends. There's nothing to be ashamed asking for help. You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

Of course I'm also kinda worried that you have a fridge full of gluten so you're obviously living in a shared house. If you have never felt better, even when you've been super, super careful for months, you are likely getting cross-contamination and your own house seems an obvious place. If whoever you're living with isn't supportive or just refuses to be as careful as they need to be (even if they act kind and caring), it's time you moved to your own place. Get welfare or try for disability if you need financial assistance.

 

You are killing yourself whenever you eat gluten. You need to do whatever it takes to stop eating it. Period.

 

Also, if no one has reached a point in their lives when no, they don't care about their health a good chunk of the time, the only thing that matters is the here and now and you're hungry so you're going to goddamned well eat something, you don't get it. Tough love doesn't change drug-addicts, alcoholics, gamblers, pretty much any other addiction, so I don't know why people keep thinking it's necessary or even helpful. Furthermore, if you have depression or social anxiety etc, 'tough love' is going to hurt far more than it helps, as you fall farther away from society and loved ones.

2

Share this post


Link to post
Share on other sites

 You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

 

You are assuming an awful lot about this situation without having all the facts.

 

Let's get back to the original post.

 

A question was posed and people answered.

 

Let the OP decide what to do with it.

2

Share this post


Link to post
Share on other sites

Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

The OP has been a member for over four years, but is still eating gluten on a regular basis. There is a problem, but I don't see it being in the people responding. The OP asked a question, and got answers that were honest, even if they weren't what they wanted. UnhappyCoeliac needs to stop eating gluten. Now. Forever. Period. Too bad if that wasn't what they wanted to hear.
1

Share this post


Link to post
Share on other sites

I'm kind of puzzled that you are still going thru this after so many years. That being said, I have totally been in your position. I was starving, my friends had nothing to offer but pizza, and I didn't have money to go to a store nor did I have a ride home. I had packed food but had finished it hours ago. Now, I learned to pack extra food than I need, any time I step outside the house. Even if I'm only driving a short distance away, I think "well, my car could break down and the tow truck guy could take forever!" Plan for the worst, hope for the best. Some of my friends felt bad the last time I had nothing to eat. They said they will take me to the grocery store so I can buy stuff to leave in their cupboard. I noticed you said you don't eat a lot, bad Idea, just eat right before you leave for the day.

1

Share this post


Link to post
Share on other sites

 You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

 

You are assuming an awful lot about this situation without having all the facts.

 

 

 

The OP's name is Unhappycoeliac. They themselves report failing at accomplishing a necessary part of their life, grocery shopping regularly. At least I am offering suggestions besides 'don't eat gluten dumbass'.

0

Share this post


Link to post
Share on other sites

The OP's name is Unhappycoeliac. They themselves report failing at accomplishing a necessary part of their life, grocery shopping regularly. At least I am offering suggestions besides 'don't eat gluten dumbass'.

 

If you read the many suggestions offered, you will see that no one says "don't eat gluten dumbass".

 

 

Eating something substantial during the day so you are not hungry, making a grocery shopping list, embracing the diagnosis--these were suggested, 

 

Whatever the reason may be for her username, it hardly means she has a "serious mental health" issue.

 

And her lack of preparation could be for any number of reasons. As I pointed out, she may have housemates who are gluten eaters--and to her,

all of their food is available and tempting--but she is overlooking the fruits, veggies and other foods she could be eating.

 

This is all about the choices we make to be healthy and the OP may need a shift in her thinking. 

1

Share this post


Link to post
Share on other sites

How about you tell me why you, personally, would get into the situation that the OP gets into, and furthermore, chooses to eat the gluten instead of not eat the gluten. And then think about why you'd continually do such a thing. The answer "I would never do that" isn't allowed. Place yourself in a state of mind and social context where that would be what YOU would do, no matter how ridiculous or unlikely it would be. Now tell me that getting outside help wouldn't be one of the best things to help you, or that you would be in a perfectly healthy mental state.

 

"As I pointed out, she may have housemates who are gluten eaters--and to her, all of their food is available and tempting--but she is overlooking the fruits, veggies and other foods she could be eating."

 

And this is just as assumptive as what I said, if not moreso. But I'm not bashing you for saying that, unlike you who so quickly pointed out that perhaps I am wrong.

In any case, I'm not even contradicting that, I am saying that someone who is that weak-willed as to have their roommates affect them so, is someone who I would say could benefit greatly from outside, professional help, or from avoiding the temptation as much as possible, via something like moving out. You wouldn't suggest to an alcoholic to live with people who drank at every meal and simply tell them to choose orange juice without vodka and expect it to work.

 

I don't see how it is anything but crystal clear that the OP has willpower problems that need to be addressed. As has been pointed out, 4 years is a very long time to still be succumbing to this.

 

To anyone who is confused or angered by the OP's actions, then you obviously don't understand them and so your advice probably isn't going to be the type that will work for them.

0

Share this post


Link to post
Share on other sites

yowzah!  how about we take a ride on the relaxi taxi lolz - i liked what someone else said:  OVER pack (or over-supply) food where ever and whatever you think you need, bring extra.  maybe get a buddy to help remind OP to keep supplies at hand.   

 

i know as soon as i leave my house, i am starving to death - but my hubs reminds me i should bring a supply of snacks/etc.  

 

peanut butter and jelly on gluten-free bread are my go-to's alot of times.  easy and cheap  :)  

1

Share this post


Link to post
Share on other sites

Having been a member here since 2009, there has been sufficient time to learn how to stock a pantry and refrigerator, how to eat and how to be healthy. There is only a certain amount of coddling that can be done when a celiac is intentionally ingesting gluten before what they need is a wake up call and/or swift kick in the pants to help them realize they need to stop and they only person who can save them from themselves is them.

 

After more than 3 years if there is literally not a single fruit, vegetable, meat or dairy product in the house there are far bigger problems with his diet than gluten. That isn't a judgement or slamming anyone, that is the flat out honest truth that needs to be said before he ends up hospitalized. It is to help him. Tough love is still love.

  Great post, Addy!  I couldn't have said it better than this.  This what I love about this forum.....there are still people out there who know the difference between the time to help out and molly-coddle someone new or the time for tough love.  That seems to be lost on the "everyone's a victim" crowd.  Time for the OP to get control of their life. 

0

Share this post


Link to post
Share on other sites

yowzah!  how about we take a ride on the relaxi taxi lolz - i liked what someone else said:  OVER pack (or over-supply) food where ever and whatever you think you need, bring extra.  maybe get a buddy to help remind OP to keep supplies at hand.   

 

i know as soon as i leave my house, i am starving to death - but my hubs reminds me i should bring a supply of snacks/etc.  

 

peanut butter and jelly on gluten-free bread are my go-to's alot of times.  easy and cheap   :)

The relaxi taxi???????  Oh, my...that's a good one!   :lol:

 

One of my personal emergency food favorites?  Peanut butter and fluff sandwich......YUM!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,515
  • Topics

  • Posts

    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • Celiac.com: Gluten-free options increasing to meet demand
      “Over the last 10 years there's been an explosion of gluten-free products,” said Shelley Case, a registered dietitian specializing in celiac disease and ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined