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Battling No Food
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The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

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Why wouldn't there be some eggs or cheese or fruit in the fridge? Popcorn, nuts or potato chips in the cabinet? Frozen fries or veggies or ice cream in the fridge? Even when I ate gluten, not everything in the fridge had gluten in it. If you have to eat gluten free, you should make sure you have things you can eat in the house.

This sounds like you set yourself up so that you have to eat gluten.

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I just realized - your not new to this. You have been a member for 4 years. i was assuming you were new and didn't really know about food that have gluten and ones that don't.

So my question back is - why are you eating gluten on purpose after 4 years?

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The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

My next decision would be to make a resolution to plan more.

 

You can freeze cooked rice in Sandwich bags and have cans of black or red beans in the pantry.  If you make gluten-free pasta, it's just as easy to make a whole bag of it as it is to make a small portion, then freeze single portion sizes.  Same with soups or chili or practically anything.  

 

Then you have to ask yourself a day or 2 in advance what you are going to eat the next couple of days, and move stuff from the freezer to the refrigerator.  

 

The staples I always keep are cheese, milk, tomato sauce, salsa, rice cakes,  corn or rice chips, peanut butter, eggs, various canned beans, frozen and canned fish,  romaine lettuce and root vegetables.

 

Even if you don't feel inspired to make something delicious, you can have something in your refrigerator or pantry to eat safely and avoid hunger pains.

 

Good luck, wish you well.

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This is difficult for me to answer since this would never happen in my house. 

 

My fridge would not "be full of gluten" (and that was true even before I was diagnosed)

 

You can't be healthy if you starve yourself all day long (celiac or not), it is not wise to deprive your body of nourishment that way.

 

I am thinking you really did not expect us to tell you anything except plan ahead, get some healthy food in your house (vegetables, fruit, yogurt and maybe some peanut butter and G F Crackers) so you do not find yourself opening the fridge door and seeing what you deem "nothing" to eat.

 

Granted, you may very wll  live with "gluten eaters", but even still, you should have your own food supply.

 

If you were an uninformed newbie, I'd give you more empathy and write out a detailed shopping list and "hold your hand" so to speak, but you're not new to this, hon

and frankly, it's time for you to stop putting yourself in this position. okay?.

 

 

I hope you will make a shopping list, go get some good things to eat, stop starving all day long and take better care of yourself. Best wishes!

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I realized one day that gluten might be a problem. The same day I identified what I had without gluten. Within a few days the rewards of gluten-free was so great that I removed it from my home, so as not to be tempted or forget. I live alone but if someone else were here I would expect them not to selfishly sabotage my health. No matter who else is around, I take responsibility to maintain my own healthy environment. 

What else is going on, that makes you feel such lack of control over your own life?

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Due to my massive weight loss after going gluten free several of my friends went to Doctors to see if they could find the answers to their weight problems. 2 good friends discovered they are Celiacs went gluten-free and are now much much happier and healthier. One of my very best friends discovered outside of being over weight she is in perfect health. She now excepts that she is over weight because she eats too much. Despite the fact she has low self esteem due to being over weight she has decided it's not worth giving up the food to lose weight. It sounds like you feel it's not worth giving up the food to heal. If you are constantly eating gluten your body can't heal. You are the only one who can save yourself! When I was diagnosed I was weaker than my 71 year old mother. Now I have more energy than my 24 year old co-worker. My depression is gone (unless I accidently injest gluten like I did earlier this week). My life is worth living and it's worth fighting for. Only you can decide to fight!  

 

If you want to fight you will fight and the people on this forum will help you.  

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I believe this is a hypothetical question, and one that I've ocassionally wondered about.

If in a disaster/desert island/prisoner situation you had no access to safe food, and your only options were to either starve or eat gluten and suffer, which would you do?

 

I'd probably hold out as long as I could, but if there were no other options (hypothetically), I probably would eventually give in and suffer the consequences. I might feel like I'm dying, but it would probably keep me going until safe food could be found.

 

More realistically though, it does mean that we really have to plan ahead. Safe gluten free "emergency/disaster" supplies, always having something in our bag just in case, etc etc.

 

If does make me think about people who have little food access or control over their food, for example homeless people or others relying on donations, prisoners, etc. There's probably a lot of people out there who have Celiac/Gluten Intolerance and don't know it, and are suffering even more by eating whatever they are offered or can get their hands on.

 

Anyway, I do believe this was a hypothetical. Correct me if I'm wrong, but it is something to remember that for some just surviving is more important than their long-term health, and that's a pretty sad thing. (I could rant on about food security, but we'll stop there)

 

Now to check on the gluten-free emergency food stocks...

Peg

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The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

1) Find a 24 convenience store that sells nuts and bananas or apples.

2) Knock on a neighbor's door and see if they have a piece of fruit you can eat.

3) Don't eat, get up early the next day, and go shopping to fix the ridiculous state of food in the house.

 

Ok, #3 is a little snarky, but also meant a lot seriously.  If there is literally *NOTHING* in your house that doesn't have gluten in it, you have a very poor diet (and poor emergency planning skills)..  (Oooo... Come on people, flame me!  This is totally flame worthy!  I'll stand by it, but it's ripe for the bashing. :) )  Why do I say this?  Because fruit and vegetables do not contain gluten.  Because dairy (milk, yogurt, cheese, ice cream, etc.) do not contain gluten.  Because beans do not contain gluten.  Because rice does not contain gluten.  Because fats (oils, butters) do not contain gluten.  Because nuts and dried do not contain gluten.  (And many of these items (canned beans, canned vegetables, nuts, rice, canned meats) are useful "emergency" foods to have on hand in the case of a natural disaster.)  If *EVERY* food in your house contains gluten, you simply don't have a healthy variety of nutritious foods around you, which - many studies back this up - almost certainly means your diet as a whole does not have a healthy variety of nutritious foods.

 

I don't actually mean to sound like a "w"itch about this.  And it's not actually personal, though I'm responding to your (OP's) post.  It's a pet peeve of mine that people choose to bring unhealthy foods into their house and choose NOT to bring healthy foods into their house.  It's your responsibility (unless you are under ... let's say 15), to have some choices.  (Of course, there is the obvious exception for, as stated by PP, being homeless, destitute to the point where you have no food, and so on.  But, you have food in your house, and I don't recall you being a pre-teen, so that doesn't apply in this situation.)

 

Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

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1) Find a 24 convenience store that sells nuts and bananas or apples.

2) Knock on a neighbor's door and see if they have a piece of fruit you can eat.

3) Don't eat, get up early the next day, and go shopping to fix the ridiculous state of food in the house.

 

Ok, #3 is a little snarky, but also meant a lot seriously.  If there is literally *NOTHING* in your house that doesn't have gluten in it, you have a very poor diet (and poor emergency planning skills)..  (Oooo... Come on people, flame me!  This is totally flame worthy!  I'll stand by it, but it's ripe for the bashing. :) )  Why do I say this?  Because fruit and vegetables do not contain gluten.  Because dairy (milk, yogurt, cheese, ice cream, etc.) do not contain gluten.  Because beans do not contain gluten.  Because rice does not contain gluten.  Because fats (oils, butters) do not contain gluten.  Because nuts and dried do not contain gluten.  (And many of these items (canned beans, canned vegetables, nuts, rice, canned meats) are useful "emergency" foods to have on hand in the case of a natural disaster.)  If *EVERY* food in your house contains gluten, you simply don't have a healthy variety of nutritious foods around you, which - many studies back this up - almost certainly means your diet as a whole does not have a healthy variety of nutritious foods.

 

I don't actually mean to sound like a "w"itch about this.  And it's not actually personal, though I'm responding to your (OP's) post.  It's a pet peeve of mine that people choose to bring unhealthy foods into their house and choose NOT to bring healthy foods into their house.  It's your responsibility (unless you are under ... let's say 15), to have some choices.  (Of course, there is the obvious exception for, as stated by PP, being homeless, destitute to the point where you have no food, and so on.  But, you have food in your house, and I don't recall you being a pre-teen, so that doesn't apply in this situation.)

 

Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

That's what I was trying to say. Thank you! And the fact that he said this happens to him often tells me he isn't asking a hypothetical question.

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Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

 

Amen!!!

 

 

That's what I was trying to say. Thank you! And the fact that he said this happens to him often tells me he isn't asking a hypothetical question.

 

I think that is pretty much what we are all saying.... and I agree with you completely on the second point. 

 

as I said, even if the OP shares a home with others, there HAS TO BE SOMETHING in that fridge without gluten in it.... fruits, vegs, cheese.

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When it is late at night and I want a snack and everything is either more effort I am willing to put forth or doesn't sound good, I have a glass of milk. It is always safe, satisfies my hunger and will get me through til morning when I feel like making something. Unless I were in a life and death situation, I will go hungry 100% of the time before I will eat something that isn't safe for me. It is a simple matter of choice. Do you or do you not care about being healthy?

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Amen!!!

 

 

 

I think that is pretty much what we are all saying.... and I agree with you completely on the second point. 

 

as I said, even if the OP shares a home with others, there HAS TO BE SOMETHING in that fridge without gluten in it.... fruits, vegs, cheese.

Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

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Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

 

Having been a member here since 2009, there has been sufficient time to learn how to stock a pantry and refrigerator, how to eat and how to be healthy. There is only a certain amount of coddling that can be done when a celiac is intentionally ingesting gluten before what they need is a wake up call and/or swift kick in the pants to help them realize they need to stop and they only person who can save them from themselves is them.

 

After more than 3 years if there is literally not a single fruit, vegetable, meat or dairy product in the house there are far bigger problems with his diet than gluten. That isn't a judgement or slamming anyone, that is the flat out honest truth that needs to be said before he ends up hospitalized. It is to help him. Tough love is still love.

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Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

 

I am always nice, supportive and non judgmental. You know this about me.

Of all the replies,at least  I gave the OP an "out"--that maybe she lives with Gluten eaters

 

and frankly, I have no idea why you have selected my post to highlight here.

 

And sometimes I honestly wonder why I continue to take the time to help when I get slammed as often as I do.

 

And the OP is not "new" and she needs to get it together fast. Everything I say is my opinion, given with compassion. She can take it or leave it. but there is no need to accuse me of being judgmental.

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The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open

 

Discuss your next decision here and your reasoning...

 

Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)

 

Your better tomorrow never comes because you seem to eat gluten regularly. Prayer isn't going to help. Not eating gluten will help.

However, if this is me, my next decision is to go to a gas station and buy something, or else suck it up and drink a lot of water hoping it'll keep me from being too hungry.

You can go a looooong time without eating before you get repercussions from it, much longer than a day.

You need to break this cycle you seem to have, the 'eat gluten-->feel shitty-->don't plan groceries properly or don't grocery shop at all-->eat the only food in your house which contains gluten'.

 

If you honestly feel so bad so often that you can't feed yourself properly, and all the shopping and planning that entails to be 100% gluten free, you would qualify as disabled by canadian standards and you should get help. Either government or medical or family or friends. There's nothing to be ashamed asking for help. You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

Of course I'm also kinda worried that you have a fridge full of gluten so you're obviously living in a shared house. If you have never felt better, even when you've been super, super careful for months, you are likely getting cross-contamination and your own house seems an obvious place. If whoever you're living with isn't supportive or just refuses to be as careful as they need to be (even if they act kind and caring), it's time you moved to your own place. Get welfare or try for disability if you need financial assistance.

 

You are killing yourself whenever you eat gluten. You need to do whatever it takes to stop eating it. Period.

 

Also, if no one has reached a point in their lives when no, they don't care about their health a good chunk of the time, the only thing that matters is the here and now and you're hungry so you're going to goddamned well eat something, you don't get it. Tough love doesn't change drug-addicts, alcoholics, gamblers, pretty much any other addiction, so I don't know why people keep thinking it's necessary or even helpful. Furthermore, if you have depression or social anxiety etc, 'tough love' is going to hurt far more than it helps, as you fall farther away from society and loved ones.

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 You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

 

You are assuming an awful lot about this situation without having all the facts.

 

Let's get back to the original post.

 

A question was posed and people answered.

 

Let the OP decide what to do with it.

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Sometimes I find myself wondering what happened to the old forum...the one where everyone was nice and supportive, the one where you could unload without being judged or slammed.

 

That's probably just me though.

The OP has been a member for over four years, but is still eating gluten on a regular basis. There is a problem, but I don't see it being in the people responding. The OP asked a question, and got answers that were honest, even if they weren't what they wanted. UnhappyCoeliac needs to stop eating gluten. Now. Forever. Period. Too bad if that wasn't what they wanted to hear.
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I'm kind of puzzled that you are still going thru this after so many years. That being said, I have totally been in your position. I was starving, my friends had nothing to offer but pizza, and I didn't have money to go to a store nor did I have a ride home. I had packed food but had finished it hours ago. Now, I learned to pack extra food than I need, any time I step outside the house. Even if I'm only driving a short distance away, I think "well, my car could break down and the tow truck guy could take forever!" Plan for the worst, hope for the best. Some of my friends felt bad the last time I had nothing to eat. They said they will take me to the grocery store so I can buy stuff to leave in their cupboard. I noticed you said you don't eat a lot, bad Idea, just eat right before you leave for the day.

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 You have a medical condition, and being weak in your diet to me means you suffer from pretty bad mental issues. Ideally, and likely, they are gluten-induced, but it really seems like you need extra help right now, even if being gluten free would eventually make them go away. An addiction counsellor might help a lot.

 

 

You are assuming an awful lot about this situation without having all the facts.

 

 

 

The OP's name is Unhappycoeliac. They themselves report failing at accomplishing a necessary part of their life, grocery shopping regularly. At least I am offering suggestions besides 'don't eat gluten dumbass'.

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The OP's name is Unhappycoeliac. They themselves report failing at accomplishing a necessary part of their life, grocery shopping regularly. At least I am offering suggestions besides 'don't eat gluten dumbass'.

 

If you read the many suggestions offered, you will see that no one says "don't eat gluten dumbass".

 

 

Eating something substantial during the day so you are not hungry, making a grocery shopping list, embracing the diagnosis--these were suggested, 

 

Whatever the reason may be for her username, it hardly means she has a "serious mental health" issue.

 

And her lack of preparation could be for any number of reasons. As I pointed out, she may have housemates who are gluten eaters--and to her,

all of their food is available and tempting--but she is overlooking the fruits, veggies and other foods she could be eating.

 

This is all about the choices we make to be healthy and the OP may need a shift in her thinking. 

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How about you tell me why you, personally, would get into the situation that the OP gets into, and furthermore, chooses to eat the gluten instead of not eat the gluten. And then think about why you'd continually do such a thing. The answer "I would never do that" isn't allowed. Place yourself in a state of mind and social context where that would be what YOU would do, no matter how ridiculous or unlikely it would be. Now tell me that getting outside help wouldn't be one of the best things to help you, or that you would be in a perfectly healthy mental state.

 

"As I pointed out, she may have housemates who are gluten eaters--and to her, all of their food is available and tempting--but she is overlooking the fruits, veggies and other foods she could be eating."

 

And this is just as assumptive as what I said, if not moreso. But I'm not bashing you for saying that, unlike you who so quickly pointed out that perhaps I am wrong.

In any case, I'm not even contradicting that, I am saying that someone who is that weak-willed as to have their roommates affect them so, is someone who I would say could benefit greatly from outside, professional help, or from avoiding the temptation as much as possible, via something like moving out. You wouldn't suggest to an alcoholic to live with people who drank at every meal and simply tell them to choose orange juice without vodka and expect it to work.

 

I don't see how it is anything but crystal clear that the OP has willpower problems that need to be addressed. As has been pointed out, 4 years is a very long time to still be succumbing to this.

 

To anyone who is confused or angered by the OP's actions, then you obviously don't understand them and so your advice probably isn't going to be the type that will work for them.

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yowzah!  how about we take a ride on the relaxi taxi lolz - i liked what someone else said:  OVER pack (or over-supply) food where ever and whatever you think you need, bring extra.  maybe get a buddy to help remind OP to keep supplies at hand.   

 

i know as soon as i leave my house, i am starving to death - but my hubs reminds me i should bring a supply of snacks/etc.  

 

peanut butter and jelly on gluten-free bread are my go-to's alot of times.  easy and cheap  :)  

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Having been a member here since 2009, there has been sufficient time to learn how to stock a pantry and refrigerator, how to eat and how to be healthy. There is only a certain amount of coddling that can be done when a celiac is intentionally ingesting gluten before what they need is a wake up call and/or swift kick in the pants to help them realize they need to stop and they only person who can save them from themselves is them.

 

After more than 3 years if there is literally not a single fruit, vegetable, meat or dairy product in the house there are far bigger problems with his diet than gluten. That isn't a judgement or slamming anyone, that is the flat out honest truth that needs to be said before he ends up hospitalized. It is to help him. Tough love is still love.

  Great post, Addy!  I couldn't have said it better than this.  This what I love about this forum.....there are still people out there who know the difference between the time to help out and molly-coddle someone new or the time for tough love.  That seems to be lost on the "everyone's a victim" crowd.  Time for the OP to get control of their life. 

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yowzah!  how about we take a ride on the relaxi taxi lolz - i liked what someone else said:  OVER pack (or over-supply) food where ever and whatever you think you need, bring extra.  maybe get a buddy to help remind OP to keep supplies at hand.   

 

i know as soon as i leave my house, i am starving to death - but my hubs reminds me i should bring a supply of snacks/etc.  

 

peanut butter and jelly on gluten-free bread are my go-to's alot of times.  easy and cheap   :)

The relaxi taxi???????  Oh, my...that's a good one!   :lol:

 

One of my personal emergency food favorites?  Peanut butter and fluff sandwich......YUM!

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    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
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