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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Grocery List Comparison Shopping?
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9 posts in this topic

I'm wondering if anyone maintains a list of safe foods and where they can be found? I can do web searches but then find products that are not available locally. Lots of items can be ordered online but then comparing costs gets complicated.

If this isn't a resource currently available, how could it be suggested to a reputable celiac organization? I don't think it would require lots of research, the community can contribute.

I find myself getting confused because there isn't a way to see products like this:

Manufacturer, Item, Retailer, Cost comparison by appropriate size or weight w/ shipping and tax.

I have to keep costs down. So with my bad eyesight, I search with one window open to find if there is a gluten free product, another for the manufacturers information, cost and ordering information, and several more to comparison shop. Then I have a window to find if it's available at the local store. Oh yes, and I have to have the calculator open at all times along with notepad so my brain can keep track but that doesn't account for shipping and tax variations.

To quote Charlie Brown... "Aaarrgghh!"

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The problem inherent with this idea is the shipping cost. What it costs to ship to you is not always what it will cost to ship to other people. Where it is shipping matters. Additionally, prices change so frequently, as do products and availability that maintaining any resource of reasonable size, lets say even 100 common products would be absolutely mind bogglingly time consuming.

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Thinking abot this sort of problem as a programmer, I can say that it would certainly be doable, but it would not be super simple and would require regular maintenance, and the time it would take would probably mean that it would cost money to have an application or website like that.

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I understand. I should rephrase. I know there are others who have to watch what they spend, How do you keep costs down?

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Oh my berry dear friend... do you think there could be a gluten free app 4 dat?

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There are some apps that tell you if things are gluten free, but don't deal with prices.  That's the hardest part - gluten free status changes often, but prices and availability change even more often than that!

 

As for how to keep costs down?  Buy whole, unprocessed, naturally gluten free foods.  Buy a 5lb bag of bulk dried beans - gluten free, good source of protein, cheap, and a long shelf life.  Buy a 20lb bag of brown rice - gluten free, good source of complex carbs, cheap, and a long shelf life.  Buy fresh/frozen vegetables and fruits - not a long shelf life if fresh, but very important for a healthy diet, and frozen ones don't have to be expensive.  Buy a bulk bag of nuts - gluten free, good source of healthy fats, not terribly expensive on a per-serving basis, reasonable shelf life.  Buy eggs - gluten free, price efficient source of good protein, and easy to cook.

 

Simple shopping (mostly sticking to the perimeter of the store), simple cooking (or pairing - nuts and dried fruit make a great snack, for instance, or even lunch if you add a little something more), and sticking to basics helps a lot.

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LOL berry, now you sound like me. Gluten problems are new but using whole foods is the only way. That is exactly how I eat so I'm looking for the same nutrition and hoping to find a healthy pasta that is affordable, a cornmeal and something like a whole grain flour if that is possible?

I found gluten-free Bisquick but it's expensive, highly processed and refined. For lack of other ideas, I went ahead and bought it but then added 3 to 4 oz of flax meal for each 8 oz of mix. Rice noodles are highly processed as well so I'm only using thai jasmine brown rice for now.

I have to limit beans and cruciferous  vegetables because they don't agree in large amounts or to often. I know better than to fill up on potato starch. If that weren't the case, I would have a lot more to fill the gaps with.

I don't know where to find bulk nuts if anyone can make suggestions. Whole Foods is long ago in a galaxy far, far away.

I make my yogurt and fresh cheese at home so I know what is in it. Everything else is fresh and frozen veggies and fruit.

It's upsetting that everything I do find at the grocery is on the bottom shelf, below products full of gluten. If only one package has broken then everything is contaminated. If the grocers understand so little when stocking shelves, what's gone on before with stacking and shipping? 

 

So here is the list of what I can currently find that is healthy: 

Protein - homemade yogurt, eggs, milk, occasionally beans

Carbs - Fresh/frozen veggies (limited cruciferous), fresh/frozen fruit, whole grain rice

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Honestly, I mostly skip the flours/breads.  What I do use I buy in bulk and have shipped.  (I use almond meal and oat flour, since I can tolerate gluten-free oats, for most things.  They aren't cheap, and if I were tight on money, I'd skip the flours.)  We also mostly skip the pastas.

 

Can you do lentils?  Those have lots of uses and are also cheap.

 

Rice isn't the only "grain" you can do - quinoa is more expensive, but keep it in rotation with rice and buckwheat, and that can help.

 

Sweet potatoes are a good carb source too.  But just because you don't want to fill up on potatoes doesn't mean they can't be a part of a meal.  (In, for instance, a stew, with other root veggies and maybe some meat.  Or mixed with curry spices, cauliflower (on a day you do cruiciferous veggies) and garbanzo beans.  Or as a carrier for chili.)

 

I generally buy my nuts from Trader Joe's, in the one pound bags.  Not bulk cheap, but one pound lasts a long time!

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I'm wondering if anyone maintains a list of safe foods and where they can be found? I can do web searches but then find products that are not available locally. Lots of items can be ordered online but then comparing costs gets complicated.

If this isn't a resource currently available, how could it be suggested to a reputable celiac organization? I don't think it would require lots of research, the community can contribute.

I find myself getting confused because there isn't a way to see products like this:

Manufacturer, Item, Retailer, Cost comparison by appropriate size or weight w/ shipping and tax.

I have to keep costs down. So with my bad eyesight, I search with one window open to find if there is a gluten free product, another for the manufacturers information, cost and ordering information, and several more to comparison shop. Then I have a window to find if it's available at the local store. Oh yes, and I have to have the calculator open at all times along with notepad so my brain can keep track but that doesn't account for shipping and tax variations.

To quote Charlie Brown... "Aaarrgghh!"

Publix has been the best I have found locally. On their website they have a pretty long list of gluten free products. I printed a copy and take with me when I shop

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
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