Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Thyroid Medication? Levoxyl Discontinued
0

36 posts in this topic

I take Synthroid. It is gluten free.

The manufacturer of Synthroid (Abbott) DOES NOT GUARANTEE THE GLUTEN FREE STATUS OF ITS PRODUCT ANY LONGER. I believe this includes all dosages. Please check glutenfreedrugs.com

1

Share this post


Link to post
Share on other sites


Ads by Google:

Of course, you will have a source for this claim, and I expect that you will be sharing it with us promptly.

Please check the Alpha List at GlutenFreeDrugs.com

http://www.glutenfreedrugs.com/list.htm

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from http://glutenfreeresourcedirectory.com/uid/2eda24e3-6553-4a96-b186-429aa6f3f545/

1

Share this post


Link to post
Share on other sites

Please check the Alpha List at GlutenFreeDrugs.comhttp://www.glutenfreedrugs.com/list.htm

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from http://glutenfreeresourcedirectory.com/uid/2eda24e3-6553-4a96-b186-429aa6f3f545/

There is a difference between " yes. Our drug contains gluten" and "we don't knowingly use gluten "but, because we don't test for gluten, we will no longer say officially " gluten free". I choose to read the ingredients. You may decide to use it or not. That would be your choice.
0

Share this post


Link to post
Share on other sites

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

0

Share this post


Link to post
Share on other sites

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

So you never eat frozen veggies? Fresh fruits? Canned pineapple? Dried beans? Meats?

It's your choice but hard to eat healthy that way. As far as meds, very few have gluten in them, so I'm not sure about cc. I wonder how many drug companies say gluten-free but haven't tested them. I guess you could call every food or drug company and quiz them about why they say gluten-free.

Where do you get the info that Synthroid's company "they have had some doses that supposedly included a gluten ingredient in the past and doses that did not"? Did the company post that? Or are you just guessing?

0

Share this post


Link to post
Share on other sites




I take Mylan brand levothyroxine.  Some times people don't do well with a certain brand, but what matters is that you find one that works for you and stick with it.  If you change manufacturers, follow up with a blood test, since when things are measured in micrograms, the teeny differences in active ingredients between manufacturers can be enough to make you need a different strength.  A lot of physicians will write brand name Synthroid as medically necessary to avoid these problems.

 

I work in a hospital pharmacy, and we carry 4 different brands of levothyroxine, all strengths, plus the alternatives, and they try to keep the patient on the brand/manufacturer they were already on, or use the meds they bring from home, as to not adversely affect their blood levels. 

 

If you are nerdy like me and would like to read into this further, here is a good article from University of Illinois Pharmacy School:

http://dig.pharm.uic.edu/faq/levothyroxine.aspx

 

I hope you have good luck settling into another brand.  Usually at a singular retail pharmacy, they will only carry one brand of generic levothyroxine as to not cause mix ups, but they can order your preferred brand as well.  That way you can keep all your medications safely filled at one place.  :)

0

Share this post


Link to post
Share on other sites

Lannett brand generic levothyroxine is gluten free.

0

Share this post


Link to post
Share on other sites

I Had To Get Off Of Synthroid Since It Was No Longer Gluten-Free. I Am Also Not On Amour Because It Is Not Gluten-Free. I Have Been On Levothyroxine And It Has Made Me Bloat Up.

So what do you take then?

0

Share this post


Link to post
Share on other sites

So what do you take then?

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

0

Share this post


Link to post
Share on other sites

So glad I found this thread. I'm jumping through hoops getting my HMO to get/order gluten-free thyroid meds for me. I brought a copy of glutenfreedrugs.com list to show my Endo and the Pharmacist. I've been gluten-free because of celiac disease for a year and apparently my meds aren't "clean".

 

I get my prescription from Costco (Armour Thyroid) and I DO NOT use my insurance.  If my doc writes the script for 100 tablets, it's actually cheaper than paying the monthly co-pay.  I don't have to order each month or go through a mail-house pharmacy either!  Shop around your local pharmacys and ask for the cash price.  Then get whatever thyroid med you want as long as it's gluten free!   :)

0

Share this post


Link to post
Share on other sites

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

I for one can multi  task . I am "into" celiacs that is true but since other autoimmune diseases ( such as hashimotos ) go hand and hand with celiacs many of us have  learn to multi task .

I can not recommend any of the "thyroid " sites for information . They are just plain scary .

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,418
    • Total Posts
      917,668
  • Topics

  • Posts

    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
    • Generic meds
      Your best bet is to contact the manufacturer (as Squirmingitch suggested).   My doctor has no time to worry about medication containing gluten.  My pharmacist admitted that she does not have the time to help me, but recommended that I take responsibility and always contact the manufacturer.  My pharmacist did help by insuring that my thyroid replacement medication (Armour) is ordered in a full bottle, sealed and direct from the manufacturer.  I have to give her credit for being honest with me.  I also see her running around non-stop, so I believe that she is super busy.   Why did your doctor switch your medication?  Can you go back to your old brand?  How is your thyroid?   This is a bit off topic, but I subscribe to the Bicycling magazine.  I found this article fascinating about the impacts of cycling, swimming or running on ADHD.   http://www.bicycling.com/culture/people/riding-my-ritalin-how-one-cyclist-gained-control-over-his-adhd I hope you figure it out!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,549
    • Most Online
      1,763

    Newest Member
    ahp
    Joined