Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Just Venting
0

11 posts in this topic

Please excuse my pity party but its either post on this website full of prople who get it or run screaming through the neighborhood and get locked in the looney bin.

I've had about all I can take of this gluten challenge. Admittedly I've let of go too far (eating too much gluten), partly because I'm desperate for confidence in a diagnosis (+ of -, idont care, i judg want to be sure my test results are accurate) and partly because I'm mourning the loss of my childhood comfort diet (processed junk food). My head is such a mess. Headache and brain fog so thick I cant thnk straight, exhausted despite more sleep than usual, dark circles under my eyes, horrible smells all around me (body odor and gas, despite stict hygiene measures), it hurts to lie down, it hurts to sit up. Stomach acid boiling, constant acod in the back of my throat. Everyone at work has noticed, they keep asking me if m ok, that I look sick. And I AM sick. The worst part is the Ffect on my fmily. I'm missing out on time with my son, breaks my heart when he asks me if I'm still sick..."you not sick anymore mommy?" He's not even four yet...i don't remember telling him I as sick, but he obviously gets that something is wrong with mommy. :*( My marriage is strained. Hubby is trying to understand, but he just doesn't. My libido is gone, all I want to do is sleep/lay down... He is being as supportive as he can, but its not fair to him... Plus i just realized that i most likely ahve to keep eating gluten for longer thN i was thinking, unless the GI is able to schedule for an endo right away, ive got AT LEAST 2ore weeks of hell i fromt of me. Ugggggggggh. I just want to curl into a ball and hide. My optimism and positivity are gone. I hope they come back.

Sorry for the negativity. Just had to get that all out. Maybe looking back at this post will help me stay gluten free someday....

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ps please excuse the typos and grammar errors. On my phone...and frankly scarlet I don't give a da*$.

0

Share this post


Link to post
Share on other sites

((((((hugs)))))

0

Share this post


Link to post
Share on other sites

Look at it this way, there is only two more weeks to go. You've made it this far, you can do it!

0

Share this post


Link to post
Share on other sites

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!

( that was what you said, wasn't it? )

0

Share this post


Link to post
Share on other sites




((((((((((((((hugs, kiddo, hang on, you're almost there)))))))))))))))))

0

Share this post


Link to post
Share on other sites

IT WILL GET BETTER AFTER (all of it iykwim)

My husband has back and even better version of me than the one he married.

It is always worth calling for cancellations. I wrote down my gluten challenge symptoms and my doctor saw me pretty sharply.

I know you want the definitive diagnosis, but many of us are ncgi, and experience massive benefits from gluten-free. Your body has made it very clear.

We are all rooting for you and will be here for your journey back to health.

0

Share this post


Link to post
Share on other sites

Thanks everyone!! I can't tell you how grateful I am for this site...having support from people who really know this hell is invaluable. 

 

I woke up feeling more positive this morning. Heard a few songs on the radio on the way to work that were encouraging, and a reminder that I'm not alone and foresaken, there is amazing support here and He is always with me.  Reminded me I need to be thankful the symptoms aren't much worse, caz they really could be a LOT worse. I can get through this day.  I can get through the rest of this challenge.  Then I can start healing and get my life back. It will be ok. :)

 

 

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!



( that was what you said, wasn't it? )

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

0

Share this post


Link to post
Share on other sites

 

 

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

 

I know.  Just wanted you to laugh.

0

Share this post


Link to post
Share on other sites

I know.  Just wanted you to laugh.

:D  well done!! :lol:

0

Share this post


Link to post
Share on other sites

:D  well done!! :lol:

 

 

The neighbors would have been talking about that for years!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,622
  • Topics

  • Posts

    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,656
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined