Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sesame Allergy
0

4 posts in this topic

I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER.  I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction.  I also found out I am highly allergic to sesame and the sesame oil in my food that night caused the reaction I had.  So, I was out of town yesterday for a funeral and I haven't had any time to look into eating sesame free yet and my daughter gave me a handful of trail mix.  I took a handful and my tongue swelled up, my mouth itched, and I had hives on my arm.  Read the back and yep, sesame seeds.  So, it looks like I will be doing some research today to get a sesame free list.  I know that celiac will not show up on a skin test because it's an auto immune response, but wheat also showed up as an allergy.  The allergist wondered if my being allergic to pretty much all types of grasses made my body react to wheat the way it does.  I thought it was interesting as someone who isn't diagnosed celiac to look at wheat as just another type of grass my body is reacting to. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have a friend that is severly allergic (with anaphalaxsis).  It is a tricky one.  There is sesame in a lot of surprising places.  Makes restaurants hard.  Good luck!

0

Share this post


Link to post
Share on other sites

I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER.  I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction.  I also found out I am highly allergic to sesame and the sesame oil in my food that night caused the reaction I had.  So, I was out of town yesterday for a funeral and I haven't had any time to look into eating sesame free yet and my daughter gave me a handful of trail mix.  I took a handful and my tongue swelled up, my mouth itched, and I had hives on my arm.  Read the back and yep, sesame seeds.  So, it looks like I will be doing some research today to get a sesame free list.  I know that celiac will not show up on a skin test because it's an auto immune response, but wheat also showed up as an allergy.  The allergist wondered if my being allergic to pretty much all types of grasses made my body react to wheat the way it does.  I thought it was interesting as someone who isn't diagnosed celiac to look at wheat as just another type of grass my body is reacting to. 

First of all, I'm really pleased that your reaction last week was not anaphylaxis, although asthma is quite horrid.  I am a little concerned about your reaction to the sesame seeds yesterday though and think perhaps you should get that investigated as next time your symptoms could be worse.  - Sorry, I don't want to alarm you, and I hope I'm wrong.  Perhaps someone else reading this could give you more advice? Please be careful and good luck with it all and let us all know how you get on. :unsure:

0

Share this post


Link to post
Share on other sites

You can be both allergic to wheat and have celiac at the same time :)

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,641
    • Total Posts
      921,553
  • Topics

  • Posts

    • Welcome to the board. Celiac is not a death sentence by any means. I was undiagnosed from age 4 to age 46. Words can not describe the hell of the last 15 years before I was finally diagnosed. I am alive and healthier than I have ever been. There are others who also went years and are now doing well. There are some who had complications of cuorse but not everyone does. Thankfully it sounds like your doctors have found this relatively early. You should recover in time. Do be sure to read that Newbie thread and if you can get the others you live with to read it also. You can live safely in a mixed house but you to have to take precautions to be safe. As the others stated you do need to get back on gluten until all celiac related testing is done.  You don't have to eat a lot but if your going to get biopsies done you do have to have some daily. Most of all try to relax. Having celiac does take some getting used to but you will be okay.
    • Hi Kasia2016, Yes, celiac disease symptoms can vary widely.  Some people have no symptoms, we call that silent celiac.  Other have difficulty walking (gluten ataxia), skin rashes (dermatitis herpetiformis), and thyroid disease (Hashimoto's thyroiditis).  The list goes on and on.  GI symptoms can vary widely too, from mild symptoms at times to severe symptoms.
    • Hi egs1707, Welcome to the forum! Irene is right, you should not be gluten-free until all testing is completed.  The celiac disease tests are checking for immune system reactions and damage, and when you go gluten-free that starts to decline.  So the tests may not show the true immune reaction that is going on or the normal damage.  They may not show any damage in fact and you could get a false negative diagnosis.  You body starts healing and out the window go the test results.  Your doctor gets an "F" grade if they told you to go gluten-free now. But you aren't alone in having a doctor who doesn't understand the celiac disease testing process.  Many of them are woefully ignorant of proper testing for celiac disease.  That why the current estimate is somewhere in the range of 85% of celiacs in the USA are undiagnosed.  It doesn't help when doctors screw up the testing themselves.  Or refuse to test people.  Which is also far too common. I was vegetarian for 5 years.  I am not anymore and don't recommend it.  It is hard enough living gluten-free and finding safe food to eat and adequate nutrition for healing a damaged body.  I used to eat a lot of soy products when I Was vegetarian, but now soy makes me physically sick.  We can sometimes develop reactions to foods we eat a lot of while our guts are inflamed IMHO.  Soy is not a healthy food anyway from my reading. I can't do dairy now but may people who start out lactose intolerant end up being able to eat dairy after they have recovered. The best advice I can give is to avoid as much processed food as you can, and eat mostly whole foods you cook yourself at home.  When you do cook, cook big, and freeze the leftovers.  That way you can quickly take a small portion of food out of the freezer and reheat it.  Being celiac it is more important to learn how to cook.  Unless you are wealthy all those gluten-free processed foods add up quick.  Plus gluten-free processed foods often are lacking in fiber and vitamins. You'll want to watch out for vitamin deficiencies also.  Since celiac disease damages the villi in the small intestine, the vitamins and minerals etc are not digested and absorbed well.  So celiacs can be low on vitamin D, calcium,  and one other one I forget.  Vitamin B-12 may be low also ( it is important for nerve health).  Then there are some vitamins that vegetarians tend to have problems getting enough of also to consider. Adjusting to living with celiac disease means adjusting to a new diet and some lifestyle changes.  There's lots of us that make that change every year though, it's not impossible.  You will most likely end up eating better, more nutritious food than many of your peers.  And you will avoid a pletora of additional health concerns that can come along with untreated celiac disease. Learning to cook can be an adventure and you may enjoy it once you start.  you may find your taste in foods changes once you have been gluten-free for a while too. Recovery from celiac disease can take some months.  The immune system is very serious about protecting us and doesn't give up quickly.  Also it always remembers so it will react to even small amounts of gluten.  I live with gluten eaters at home and I do fine.  I just am careful about rinsing dishes off and so forth before using them. There is a Newbie 101 thread at the top of the coping with forum subsection.  It may provide some helpful info.  
    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • Pastry chain goes gluten-free, using mangoes ... But gluten is also believed to cause celiac disease, non-celiac gluten sensitivity, and wheat allergy, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,644
    • Most Online
      3,093

    Newest Member
    Jross69
    Joined