Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mushroom (Neroli) Memorial Thread
0

66 posts in this topic

Irish kindly told me about this dreadful news when we were in Croatia. Talk about shocking and so very sad. She leaves a void and will dearly be missed by so many who cherished her. She was so helpful and kind and witty; yet she told it straight when necessary. I appreciate that. I bet she touched more lives than she realized.

Words cannot adequately describe how I sympathize with Shroomie's family. Typing this just seems so wrong. I hardly even know what to say. Take comfort with good memories. Hold them close to your hearts.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I was wondering if anyone (mods?) has Neroli's address and would be willing to pm it to me? I'd like to send her husband a card with a short note telling him how she helped me and my family with our health issues and what a difference she made in our lives... even from so far away.

0

Share this post


Link to post
Share on other sites

I was wondering if anyone (mods?) has Neroli's address and would be willing to pm it to me? I'd like to send her husband a card with a short note telling him how she helped me and my family with our health issues and what a difference she made in our lives... even from so far away.

I'd be happy to. Give me a few minutes to get to my address book:)
0

Share this post


Link to post
Share on other sites

I'd be happy to. Give me a few minutes to get to my address book:)

 

Did you get it to Nicole?

 

a few days ago there was a mushroom shoot in my grocery bag tomatoes -- got giggled at by someone whom has mushrooms everywhere this time of year -- but they are rare in my neck of the desert

 

then yesterday I was watching the movie 'Epic' in 3D with the son -- in one scene the forest magically comes back to life and one of the first images is shrooms popping up that looked very much like Shroomie's Avitar -- jeez her spirit is just as strong as her personality -- miss you Shroom-ster.

0

Share this post


Link to post
Share on other sites

Did you get it to Nicole?

.

Yes, I PM'd it to her.
1

Share this post


Link to post
Share on other sites




Yes, I PM'd it to her.

Yes, thanks.  :)

0

Share this post


Link to post
Share on other sites

Oh my goodness, I just found this thread. How sad and shocking... mushroom was SO very helpful when I first landed here, and well, always, really.

 

That's a really beautiful poem, IH.

0

Share this post


Link to post
Share on other sites

 

 

That's a really beautiful poem, IH.

 

I read it at both my Dad's service and a good friend's memorial service and I should have given the credit to the author.

 

I first heard it on television and looked it up because I found it to be quite beautiful and apropos for someone who is a" force of nature" like Neroli. :)

 

It is adapted (rather liberally) from A Parable of Immortality, by Henry Van Dyke..

0

Share this post


Link to post
Share on other sites

My husband and I lost a lifelong friend on the same day as Neroli -- yep it was one very tough day for us.  Yesterday we attended a huge memorial celebration for our friend followed by a paddle out at the beach we all grew up on.  Was privately wishing I could have attended my other friend's memorial -- been able to meet her family and friends and let them all know how very much she is missed.

 

So from my crew to hers...here is the send off we gave our San Diego Friend -- Farewell Neroli :)

 

941466_10151958745707818_2043083081_n.jp

0

Share this post


Link to post
Share on other sites

That's very beautiful, Lisa. I'm so sorry about your friend.

In an unfortunate coincidence, directly before opening the email from Shroomie's husband informing me of her passing, I learned that a friend of my husband and I had also passed that morning. He had been fighting colon cancer and doing well, so this was for the most part unexpected.

0

Share this post


Link to post
Share on other sites

That's very beautiful, Lisa. I'm so sorry about your friend.

In an unfortunate coincidence, directly before opening the email from Shroomie's husband informing me of her passing, I learned that a friend of my husband and I had also passed that morning. He had been fighting colon cancer and doing well, so this was for the most part unexpected.

 

Right back at you Patti -- sorry for your additional loss this past few weeks :wub:

0

Share this post


Link to post
Share on other sites

Umm.....it's me again.... :rolleyes:

 

It's so great to celebrate a life, rather than the loss.  Time will heal and the memories will eventually find a smile.

 

(is everything spelled correctly, or she will find me :o:rolleyes: )

0

Share this post


Link to post
Share on other sites

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.

 

It's been a year....has been another tough one for me with this silly health puzzle that keeps me searching for answers. 

 

You remain a strong presence in my thoughts -- pushing me to live strong and help those that are looking for answers that we may have already found.

 

Miss you, my friend :)

0

Share this post


Link to post
Share on other sites

She also touched my life...I remain grateful for that.  

1

Share this post


Link to post
Share on other sites

I was thinking of her the other day too.  :( She was just a lovely person.

2

Share this post


Link to post
Share on other sites

Truly one of a kind:). I came across her name recently in my address book while looking for someone else. Made me smile.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,678
    • Total Posts
      921,699
  • Topics

  • Posts

    • First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion.  it really hadn't affected me until everything hit the ceiling medically for me.  I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely.  It drove me nuts for those first few weeks.  That's when I decided to try going off the gluten to see what happened.  I still dealt with the depression, anxiety at crazy levels, and inability to focus/concentrate, but it had gotten progressively better.  The anxiety got so bad I would have panic attacks in public areas which only ramped up the anxiety because people saw what was happening.  I would encourage you and your doctor to do a full Celiac panel before you decide to try the gluten free diet.  I had my blood work done after I was off gluten for about two months or so.  Thankfully, my levels were still high to register at least a gluten sensitivity.  Since going off gluten for almost a year now, things have started to finally appear "normal".  Whatever normal means for me now.  As I am healing from the 30 years of glutenizing, I combined both natural methods with the medical methods.  If you are interested in the different avenues of natural methods, I would be willing to share with you.  I will be praying for you as you go through this journey. Let me assure you, you are not alone in this journey.  Depending on family dynamics, they can be a great source of support.  This forum is also a great place to bounce thoughts or concerns off of.  Good luck.
    • I doubt it. I would think that would be a questions for the company that make them.    But if smoking makes you feel bad....and you are able to quit for several weeks at a time....why go back to it?
    • Hi. I've noticed that after a break of smoking (2-3 weeks) I feel bad, when I begin to smoke again.  Maybe they contain some additives with gluten??
    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,674
    • Most Online
      3,093

    Newest Member
    Miss_G
    Joined