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Celiac Signs In 3 Year Old ~
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Hi everyone!

I am new here, although a long time lurker :)  Our daughter is 3 and I am convinced she is gluten intolerant.  Here are the reasons why:

 

Only weighs 27.8 #; She is on the charts for her height, but no longer for her weight.

Protruding tummy

Flat bum

Her arms and legs are so tiny, it looks as if they will break at any minute

Very rarely eats, says she's not hungry

Very whiny, cling, and angry all the time.

Dark circles under her eyes.

 

We removed dairy from her diet about 6 months or so ago due to chronic constipation.  Now her stools are all over the place (although no longer constipated), gray/chalky; fatty blobs ~ sorry if TMI.  My hubby says he thinks it's all just genetics.  He wants me to have her tested.  I made the appt. for this coming Monday, but she has basically been gluten free since yesterday (other than a half piece of bread this morning).  Will a few days without gluten affect the bloodwork?  Do I need to have her eating it?  I would rather not even have her get all the testing done and just go with the gluten-free diet...

 

We also have a son who exhibits many signs of Aspergers/Autism ~ rolling, pacing, OCD tendencies, very loud all the time,  etc. We have agreed to put him on a gluten-free/CF diet to see if there are any improvements.  CF should be easy because we have several children with dairy issues.  But, for some reason, my hubby isn't being so agreeable in regards to our daughter.

 

 

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You have an appointment in three days - I would keep her on gluten until then, and do everything you can to get her blood tests, but know that they aren't as reliable in kids. (Under two is the really difficult gae for blood tests.)

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Welcome to the board.

 

Right now, the DGP IgA and DGP IgG tests are the best at picking up celiac disease in toddlers. You might want to request those tests as part of her celiac panel.  Good luck!

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My daughter is also about to be 3 and I have the same suspicions. I started a gluten free diet about a month ago and it has helped me tremendously despite a negative biopsy. My grandmother had celiac so I know it runs in the family. And the fact that I'm responsive to a gluten free diet leads me to believe that it could be the problem for her as well.

As a baby she had to be on special formula

She had blood in her stool as an infant and we never figured out why

She has been drinking cows milk but I recently switched her to almond

Se has had terrible constipation for the past few months and every day cries about how much it hurts

The past week it's changed over to diarrhea but she still cries in pain

She is a normal weight of 31# BUT she has only gained a pound this year

She likes to chew on crushed ice so I wonder if she is anemic? I always catch her sticking the metal part of toys in her mouth- even at age 3

She hardly eats even though I offer her healthy food all day

She also has the dark circles under her eyes and I've noticed she is started to bruise a lot

I'm becoming pretty worried, although she still has plenty of energy and spunk. But I hate to hear her crying in pain every day :( I've talked to the dr already and a few nurses and they keep telling me to give miralax daily and do a suppository. I don't know if I'm on the right track suspecting celiac/gluten intolerance or I just have it on my mind because I am going through it right now.

I hope you find out what's going on with your little girl. I take mine for her 3 yr appt next week and will talk to her dr then.

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Thank you everyone for your replies!  After more research, my husband decided against the testing.  He didn't want her to go through all of that for results that may not be correct, and especially since the only "cure" is a gluten free diet.  We don't need an official diagnosis for a school or special programs because we homeschool.

 

So far things are going amazing!  After three days of being gluten free she went from weighing 27.8# to weighing 28.2#!  Her stools are normal, her tummy hardness and bloating have decreased and the black "allergy" eyes have all but disappeared!  We are both so excited for her!  I haven't weighed her since Monday morning, but I know now that we are on the right track.

 

I love this forum and have found a wealth of information on it!  Thank you all so much for everything!

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Thank you everyone for your replies!  After more research, my husband decided against the testing.  He didn't want her to go through all of that for results that may not be correct, and especially since the only "cure" is a gluten free diet.  We don't need an official diagnosis for a school or special programs because we homeschool.

 

So far things are going amazing!  After three days of being gluten free she went from weighing 27.8# to weighing 28.2#!  Her stools are normal, her tummy hardness and bloating have decreased and the black "allergy" eyes have all but disappeared!  We are both so excited for her!  I haven't weighed her since Monday morning, but I know now that we are on the right track.

 

I love this forum and have found a wealth of information on it!  Thank you all so much for everything!

That's terrific news!  I'm only recently diagnosed, but my hubby's  has been gluten-free for 12 years at the recommendation of his GP and my allergist.  He refuses to get tested now, because he doesn't want all his old symptoms to come back.  I can't blame him.  I only got tested because 1) I was there for a routine colonoscopy and 2) I thought it would help the rest of my extended family.

 

I'm so happy for your daughter.  Our family is doing well on the gluten-free diet.  Just this morning, I told my daughter I'm going to attempt my chocolate mayonnaise cake in gluten-free form  this afternoon and she was happy about it.   Her friend was over yesterday  and I had purchased Annie's bunny grahams snack bags (full of gluten) and afterwards before they started on soybeans and carrots, I heard her tell her friend to wash her hands as she doesn't want to gluten her mom or dad.  Wow!

 

Have a great day!

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Thank you everyone for your replies!  After more research, my husband decided against the testing.  He didn't want her to go through all of that for results that may not be correct, and especially since the only "cure" is a gluten free diet.  We don't need an official diagnosis for a school or special programs because we homeschool.

 

So far things are going amazing!  After three days of being gluten free she went from weighing 27.8# to weighing 28.2#!  Her stools are normal, her tummy hardness and bloating have decreased and the black "allergy" eyes have all but disappeared!  We are both so excited for her!  I haven't weighed her since Monday morning, but I know now that we are on the right track.

 

I love this forum and have found a wealth of information on it!  Thank you all so much for everything!

That's wonderful news!,

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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